Arnyspurs

[Arnyspurs]

Morning All my chemotherapy and Drug treatments starts in about 10 days time for my oesophageal cancer and they also told me the cancer has spread to my liver but it can be treated so my journey starts soon All the best to All

[Popsic]

I shall pray all goes well and you have a speedy recovery. Onwards and upwards. All the best

Popsic

[Arnyspurs in reply to Popsic]

Thankyou

[MaryNick]

I hope & pray that your treatment will be successfull & that any side effects are minimal. Let people help you. Whoever is in your life wants to know what they can do, but can't guess what you need.Every best wish to you

[Arnyspurs in reply to MaryNick]

Thankyou

[JE1983]

wishing you the very best and praying for successful treatments and your recovery after x

[Arnyspurs in reply to JE1983]

Thankyou

[Smithyrat159]

Hi Arnyspurs, wishing you the very best for your treatment and recovery. It's a tough road but worth the fight and you might sail through and wonder what all the fuss was about, I hope so x Good luck

[Arnyspurs in reply to Smithyrat159]

Thankyou

[dollyxxx]

what treatment are you going to be getting? Good luck x

[Arnyspurs in reply to dollyxxx]

Not to sure find out Tuesday x Thankyou x😊

[Sunbury]

Hi , I was diagnosed back in November 24 and started my Foldix chemo treatment in early December.

I have an advanced tumour 14cm on my oesophagus with spread to lymph glands and liver. So stage 4 and inoperable.

I lost my swallow in December and was admitted through A&E and had a double stent fitted. This was a game changer and I was able to eat pretty much normally afterwards and have been able to regain all weight lost in previous weeks.

I’m 61 and was fit and healthy up to this point, no real long term symptoms prior so all a bit of a shock.

Initial progress 3 months without treatment, let’s aim for 12 with treatment!

I’m 8/12 treatments in and mid term scan has showed positive results, tumour in liver reduced by 50% and the stents have now migrated to stomach as tumour in oesophagus also reduced.

I am managing side effects quite well, nausea but no sickness, tiredness and fatigue for a good few days after steroids wear off, chronic hiccups for 3 days but hear this is unusual, sensitivity to cold and sore lining of nose.

Unfortunately not suitable for immunotherapy so second line treatments a little uncertain at this stage.

A positive frame of mind and support from friends and family is your best weapon, I share my journey openly and find this helps.

The chats do seem to be full of positive Ivor Lewis surgery cases, less so do is no surgery candidates.

Happy to chat and answer any questions.

Have you started your treatment yet, and how is it going for you.

[Arnyspurs in reply to Sunbury]

All the best to you mine starts next week I’m unsure what’s going to happen but my first visit is Tuesday bloods lifestyle and many other things chemotherapy and drug therapy I’m Actually struggling to eat for the last 4to 5 weeks Any suggestions of help what to eat would be great .Thankyou ….All the best to you

[Sunbury in reply to Arnyspurs]

Hi have you been allocated a cancer nurse specialist? Mine is great and has been able to answer any questions and deal with any new symptoms.

When you say trouble eating is this because of an obstruction in your gullet and difficulty swallowing or loss of appetite

I lost my swallow in December and was fitted with a stent- has this been discussed with you? It was a game changer for me.

Have you been assessed for immunotherapy and are you suitable for this treatment or are you just having chemo?

Have you been given your staging diagnosis, I assume if you have metastases to liver they have said you are not suitable for Ivor Lewis surgery?

Are you having Flot or Folfox?

Answers to these questions will help me and others to give you some more advice

Good luck next week

[Jdisney]

Jamie had 4 lots of 5 hour sessions every two weeks and a Chemotherapy pump for 24 hours. His chemotherapy was FLOT. He coped very well but everyone is different. He got very tied and irritable which is understandable. I think he found the actual pic line more difficult.Rest when you can. I took Jamie’s iPad with us. I was lucky l was able to stay with Jamie because of his learning disability. Luckily Jamie’s tumour has not spread and he is due to have surgery next weds. Good luck with your treatment l hope all goes well 😊

[Arnyspurs in reply to Jdisney]

Thankyou …All the best jamie