Does anyone else get "double dip" dumping?

[patchworker]

Hello everyone, I'm new here. I'm lying on my bed recovering from dumping two hours ago. Does anyone else find sometimes just as you start to feel better, it starts all over again?

[Hidden]

Yes it does happen and I suffered greatly in the early days after op to the extent of thought was dying!!! Now 18th months post op and it only happens occasionally.With the digestive system being if you like new it does take a while to adjust etc.just ride with it (know thats difficult as it feels awful but to stop you worrying its a normal side effect)

Hope that helps a bit

[patchworker]

Thank you for your answer, Griff.

I should have explained I'm now two and a half years post esophagectomy, and I know what makes me ill, (creamy pastas) and what doesn't and when I eat the wrong thing just because I love it, it's fair that I get "punished" for it. But today I had a massive double dip dump when I hadn't done anything to deserve it. I was actually angry with my own stomach for a few minutes then I would have laughed at myself if I hadn't been feeling so awful.

I'm really very lucky, I was still O K at the last check up, I'm due for another in three weeks time. Fingers crossed.

[getoverit in reply to patchworker]

Hiya, i had my IVOR LEWIS FEB....2010, i get double d/s and sometimes even very late next day dumping when i have not eaten since the nite before, confuses the dog sometimes , get half way up the hill then have to hurry back to the loo.As most people say here its knowing what and how much to eat and as you say having to put up with the punishment for eating what we enjoy. I find to much of any liquid before or after makes it worse.

[Bernadette]

Recently I found out that taking liquid gaviscon helps when I feel sick after eating something that has made me feel sick, I don't have the indigestion symptoms just feeling sick, so a month ago I tried gaviscon and it really helped. Sorry to hear you are suffering, I know when it happens to me I feel really down and hard done by.

[jay2908]

Hi,

I too used to suffer from dumping syndrome and still do on occasion. I'm assuming that after the first attack you lie down and rest. Are you getting the attack when you get up? If so, it could be because your blood pressure is a little low. Try having a good glass of water before you eat, this should help with blood pressure. If it is a case of low blood sugar, eat something like half a banana before and after your meal. It release sugar slowly and may even prevent the first set of dumping.

It would be good to understand the symptoms you get on the first and second dips.

Jay

[patchworker]

Thanks for trying to help.

I couldn't drink a glass of water. If I drank half a glass I'd be full and unable to eat. Same with half a banana. I try to eat small amounts every two hours.

When I dump, I get a sweaty, clammy feeling first, then my heart starts to thud. At that point I go to lie down, because I know I'll feel faint next. Then after a few minutes, I MUST go to the loo, despite the room swimming round. Back in bed I feel really rotten in a way that's difficult to describe. I often fall asleep, and wake an hour or so later. Then sometimes it starts all over again, exactly the same, without me having eaten or even moved.

[gutlesswonder in reply to patchworker]

I struggled with exactly these symptoms for 8 years post-op until I found my solution .It is to stay completely still for 2 hours after finishing ingesting.I do not even reach to answer a phone.I joke with folks that if the fire alarm sounds i won't budge.

This affords almost complete control.

But this regime is impractical if you are on grazing (snacks every two hours) because you cannot spend the rest of your life sitting down.I succeeded over many months in becoming accustomed to eating larger,more widely spaced portions.

Thus life in between is normal.

High G/I foods exacerbate the condition --thus for me Pasta or Baked Potato are absolute no noes.

If I am unlucky ,at the first vague feeling of unease which you need to train yourself to detect onset ,then I quickly chew 6 boiled sweets.The attack is then mild.

WARNING

If during an attack you continue to exercise and deplete your blood sugar level even further you may have a seizure.

Remember that when hypo you may be completely irrational,aggressive and stubborn.

This happened to me on two occasions--on the first I was out for a walk with my family ,suddenly became hypo ,insisted on trying to reach "that bench over there" had a violent fit in which I fractured two vertebrae and awoke 24 hours later with an ensuing

4 weeks hospitalization.

[Hidden]

One thing you might try, with the help of your doctor, is to monitor what seems like spikes of insulin:sugar imbalance. The doctor might prescribe a meter (usually for diabetics though). This won't make you feel any better, but it might give you a clue as to how your body is behaving, and might give you a route forwards for avoiding some of the worst of the problems.

I am presuming that what you are experiencing is not just 'early dumping' (ie within 30 minutes of eating. Carbohydrates enter the digestive tract quickly and disturb the osmotic balance (concentrations) causing dizziness, faintness, palpitations, low blood pressure, cramping and diarrhoea. Resting immediately after eating may help) - as opposed to 'late dumping' (normally 2 - 3 hours after eating or if a meal is missed. Primarily caused by poorly-timed insulin release for the amount of food entering the digestive system and results in feeling faint or sick and shaky.)

I am quoting from Dumping Syndrome and low glycemic index food at opa.org.uk/regional-shop/lo...

[Cortex1]

Yes, there is "early" and "late" dumping. You can suffer from both. I usually get early dumping but sometimes the late too. Early dumping starts within 30 min after a meal, late dumping starts a couple of hours later.