Neuroscience tumour

[lisa2525]

Hi

Any one out there had an net tumour, I have a low grade one that only measured 2 mm in size, the powers that be have decided to watch and wait to see if it changes in size and planning another endoscopy in 6 months time.

My problem is I feel sick all of the time and they say they do not think the sickness is been coursed by the tumour

Which on a daily basis gives me no quality of life.

Neuroendocrine tumour

Regards Dave

[Mauser1905]

Hello Dave,

Sorry to know your diagnosis. Having said that it's caught in time and MDT must be making a tactical call based on all factors in your case.

How is your digestion? Constipated?

[lisa2525 in reply to Mauser1905]

Hi MauserI have been taking cosmocol for 6 months plus, my biggest problem with all this is feeling sick on a daily basis that is what is grinding me down and the fact the doctors do not know what is causing my symptoms

[Mauser1905 in reply to lisa2525]

Ok as I suspected. Cosmocol is not good for long term for chronic constipation. Bulk forming laxatives are good.

Suggest speaking to your pharmacist and review the laxative for your sickness. Fibre supplemented bulk forming.

The neuroendocrine cancer in the GI tract can cause diarrhoea or constipation. In your case constipation is being treated with consmocol.

Your sickness is primarily (in my view) can be related to the delayed gastric movement. Assuming your GI team have looked into pyloric function in detail. Often some tweaking in diet, lifestyle, some change of routines etc can help get rid of the feeling sick.

First call would be review by your pharmacist.

[lisa2525 in reply to Mauser1905]

Thanks MauserI have sometimes suspected cosmocol may be causing my sickness but been scared to stop taking them because of becoming constipated again, I have been on them for about 6 months now, may try something else for a couple of days and see if I still get this awful sickness.

Regards Dave

[Mauser1905 in reply to lisa2525]

Hi Dave,Didn't mean to pinpoint on the cosmocol per say. But gut feeling is that the delayed emptying for a variety of reasons may be the cause to your sickness. Little experimentation with daily things needed to come over.

Believe you are giving sufficient movement exercise for the bowels. May be a brisk walk in fresh air in the morning may be helpful.

More fiber in the diet.

[Singforyoursupper]

So sorry to hear this. I feel sick sporadically and it is horrible. Good advice re fibre etc . I would always advocate pre and probiotics for our compromised guts (fermented foods such as kefir, sauerkraut, kombucha etc ) and exercise. I walk regularly, and use a rebounder ( mini trampoline) and have read that patients with constipation find it very 'therapeutic'. It definitely works - without being too graphic I cannot imagine doing a rebounding class in a gym situation! Dietitians have been known too recommend too. It can be a very gentle exercise, but it's also great fun and only takes a few minutes.

If of interest I'd be happy to tell you more.

[lisa2525 in reply to Singforyoursupper]

Thanks for your reply, yes would be interested to know more, by the way my tumore is only 2mm in size so it is a watch and wait situationRegards Dave

[Singforyoursupper in reply to lisa2525]

Would you like more info on pre and pro biotic diet or rebounding Dave?

[lisa2525 in reply to Singforyoursupper]

HiWould be useful on both rebound and pro biotics

Regards Dave

[Singforyoursupper in reply to lisa2525]

Ok well the rebounder was a cheapy from Amazon (in case it was a white elephant ). Homcom 48" - is only £44 today. I wasn't strong enough to put it together but found a friend! In retrospect a folding one would have been good as it takes up space. Use You tube to find a work out that you like and of course that is suitable for your fitness level. There are heaps of Hollywood gymbunnies doing it but plenty of ordinary mortals too - a guy called Keith McFarlane does some videos which are good for starters. I started slow and built up to no more than half an hour. Even though I know constipation is the issue for you I would not bounce after a meal for at least an hour.Re diet, I fear taking any advice here may not be possible until you have cracked the nausea, but I'll sum up : I not eat meat but do eat fish. I really like veg which is good, as a diet to include pre and pro biotics and plenty of fibre needs you to eat plenty of veg. I easily eat 30 types of veg/fruit/plant based food ( nuts cereals ) a week. You don't have to eat much of each a week, but variety is key, and colour, so think about eating a rainbow of foods. You may like me have to eat little and often and soft? Bread is difficult but other starches like cous cous, quinoa, brown rice, bulgar wheat, are much easier and mix well into salads roast veg type dishes. Dark chocolate ( 70%) is good for you ( yes!)and dried fruits so you can have sweet things too.

Kefir can be bought from the supermarkets but you can also make your own which is hugely cheaper - it is a fermented dairy food with much higher numbers of good gut bacteria than live yoghurt. It's not to everyone's tase : I'm the only one in this house who'll eat it , but if you can't manage that, just ramp up the number of fruit and veg you eat and eat yoghurt too. Another tip would be to make smoothies out of your fruit and veg- loads of ideas on the internet.

I really hope you manage to get somewhere with some or any of this Dave. Don't mean to preach, just offer an idea or two.

[lisa2525 in reply to Singforyoursupper]

Thank you so much for your reply its nice to know there are good people out there trying to help, when you are desperate for answers, I have this nausea every single day of my life, and it really grinds you down,Regards Dave

[Singforyoursupper in reply to lisa2525]

One day at a time, thinking of you.

[lisa2525 in reply to Singforyoursupper]

Thanks all the best will keep in touch if any important newsRegards Dave

[Singforyoursupper in reply to lisa2525]

How is it going for you Dave? Hope you’re feeling a bit better.