Hi everyone, sorry major whinge alert here!
In my mind right now I am having the screaming ab dabs, a full blown toddler tantrum, stamping my feet, screaming, crying and throwing things til they break. But physically I'm sitting gently on one cheek on the sofa, seething, writing this.
Basically I've been having tests for RA for over a year now but nothing conclusive despite being off work since October with gradually worsening symptoms. Saw the proper consultant back in September but since then I have only seen locums who don't seem keen to make a solid diagnosis seeing as they're only there for a short time.
Saw my GP at 2pm today, she's lovely, very caring and sympathetic, just what you want from a GP. She's great, She told me how she'd sent a letter to the Rheumatologist demanding that he sort some treatment out for me and that HE should see me personally next time not another locum. Anyway the reply came back that the Rheumy said he would make a diagnosis based on the results of my scan requested by the locum I saw back in December.
Ah yes the 'scan' , that brought me to my next question, I'm seeing Rheumatology on 3rd April and I still haven't had the ultrasound scan appointment through yet I'm worried it won't be done and have the results back before my Rheumatology appointment.
My GP thought that was a little odd so she rang the radiology dept. and asked to speak to the ultrasound guys. Explained the problem to them and I saw her face change, she said 'Oh really? That's very interesting....thanks' she put the phone down turned to me and said 'Guess what?, apparently the Isle of Man no longer do ultrasound scans on hands and feet for Rheumatology, obviously the locum who requested this didn't know that but as soon as they (radiology) got the request they wrote back (does no one use email in the health service?) saying we don't do that anymore do you want to arrange an MRI scan? But they've not heard back.
So to recap my Rheumy says he's waiting on the results of a scan that isn't even performed here anymore before he makes a diagnosis. What the hell?
My GP is so angry, she said she can see me deteriorating before her eyes but there's nothing more she can do without Rheumatology's diagnosis. She suggested I take someone with me to my next appointment to help fight my corner. Flipping heck, What's the world coming to when your own GP recommends you take someone to the hospital to help fight your corner?
Sorry for the rant I'm just so mad and disappointed and scared all rolled into one right now
P.S. Here the Isle of Man has it's own version of the NHS but it isn't the same as the UK's so we don't have Patient Charters, or PALS, or the right to choose another hospital. It's put up or shut up and right now I am not inclined to do either....