First week a work awful.. bullyng til friday!!!. again.. horrid!!
.Bp off scale now on Bp meds not v happy sure work stress and incorrectly medication for ra have contributed.. main culprit prob steroids and being in pain.. awaiting new meds.
Second das score on weds ,negative rf value ie sero negative my HOSP or rather my
consultant thinks this equals non elgibilty for anti tnf treatment.. will soon as poss get second opinion either nhs or private within next month probably...
Today off for short cheap break in on line offer for spa type hotel Burnham beeches( bucks) one night package for two dinner and bb. ( spa treatments are extra)// its about 80 min away or about 80 miles away from here i think. in Buckinghamshire.
have a great break, sounds as if you really deserve it! And it's rubbish that sero-neg people aren't eligible for biologics....there's not a word about it in the NICE guidelines as all about DAS score and previous treatment history. Px
Keep a record of all incidents and any other evidence dates, times, actions. Attitudes. Then report it to HR.. if you are not in a union. Get advice from ACAS. Bullying is wide spread in the NHS. I tolerated it for too long. Until i'd had enough. Stronger and happier now... thinking of you.
Love Carole
Sorry to hear it's started so soon after returning to work, try and relax, enjoy your short break. xxx
Have a great weekend summer will be thinking of you enjoying yourself and will be envious.xxxx
Same from me - have a great time away. As you know I think your treatment sucks but what to do about it I don't know. There are plenty of people on here who have qualified for anti tnfs despite being sero negative - hope 2nd opinion sorts this nonsense out for for once and all. Tilda xx
I hope you're enjoying you weekend, summer. You are not far from me, I live near silverstone which borders Buckinghamshire. It's been trying to snow all day here, how about you?
I have just been offered anti-tnf treatment and I am seronegative ! It's utter nonsense to be refused because of this. And I'm really surprised to know that bullying goes on within the NHS, that's awful. I hope your weekend has washed all thoughts of your bad week away.
I am seronegative and got biologicals within 3 months as my inflammation was so bad. Unususal i know but he treated the patient. i couldnt move at all, so i am glad they took me into account.
And remember keep going to the HR over this!! love Axx
Hi Summer, and all
As far as we are aware, being seronegative should not affect your eligibilty for anti-TNF drugs. Ailsa, NRAS CEO herself is seronegative and on an anti-TNF, so Summer I think you're right in thinking along the lines of seeking a second opinion. The only biologic drug that may be affected by the rheumatoid factor test is rituximab, as those who are seronegative are less likely to respond to rituximab. It does not rule the drug out for those who are seronegative and so it may still be offered.
I hope you were able to enjoy your weekend Summer and get things sorted at work.
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