Hello my name is Jo and I have been 'lurking' around here for a little while now, reading the posts daily and feeling relieved that I have found a place where everyone understands. I tried to do a post before Christmas but my laptop decided to refresh the page or something and I lost everything I'd written. Silly as it sounds I burst into tears, I just didn't have the strength mentally, or in my fingers, to start again. But anyway here goes again..
You seem like a really friendly bunch and I have learnt so much more about my condition here than any doctor has told me. I've had aches and pains in my fingers and wrists for about two years now but in October last year, it suddenly started to get unbearable. I found myself leaving my desk more and more to just go and run my hands under the hot tap for some relief from the incredible pain and stiffness. On the 29th October I couldn't get comfortable at all, I had a severe pain and numbness at the base of my spine and my hands just would not free up. At lunchtime I threw in the towel and decided to go home. I had to sit in the car for about 15 minutes with the heater on full blast holding my hands in the warmish air to free them up enough to be able to drive home.
I drove home in pain like I never knew before with tears streaming down my face. I haven't been back to work since.
I am desperate for some sort of treatment to start so that I can return to work but I keep seeing locums at the local hospital and each one sends me for new tests but when I go back for the results, lo and behold, there's another locum with another diagnosis and another set of tests...it's very depressing and my GP has written in exasperation to the Rheumatology department asking on my behalf for some form of continuity of care, a proper diagnosis and treatment to start. She was convinced that at my last appointment with Rheumatology (just after Christmas) they would start me on some form of DMARDs and was incredulous when I saw another locum with another idea of what I may have.
My Dad, his sister and brother all had/have Rheumatoid Arthritis and my Dad actually died of lung complications connected with it when he was just 8 years older than I am now (I'm 48) so I'm maybe making mountains out of mole hills but I'd be lying if I said I wasn't frightened of the same thing happening to me.
Sorry if I've drivelled on I only meant to stop by and say 'hello'!