Finally feeling vindicated, although there's no glory in it.

[Andrea_Shapiro]

I've been having flare up, after flare up for months, and on some occasions felt like, 'the bad old days'. I made an appointment on Monday morning: took me 89 redials to get through! They made me an appointment for this morning at 8am: no problem, as I don't really sleep that good. I had attended a hospital appointment yesterday for an ultrasound on my feet, and hadn't slept so well, so have been huffing & puffing about negative effects (an ultrasound on one's feet is not pleasant! I'd imagined it to feel like a massage, but they go over all boney & cartilage bits). I thought that I may as well get my bloods done whilst I was I there. On seeing GP today, she disclosed that my inflammatory markers are up 50% on the last ones, (I only had them taken yesterday!) and have been steadily rising over the last 9 months. I kept on telling them I wasn't well!

[Hidden]

Well it's satisfying to have the proof even if it's b*****y horrible to live with the effects day by day!

I hope that you finally get some action in the way of adjustments to your treatment plan and meds. Poor you, you've been having a rotten time this year

Take good care of yourself,

Cece x

[julieporter]

Hi Andrea

When will the doctors realise that we know our own bodies better than anyone else and it shouldn't take a bllood test result to prove it.

As Cece says hopefully you will now get the treatment that you should have had months ago!

Sorry to go on but this has happened to me in the past and it makes me so angry!!!

Anyway take care and hope you're feeling better very soon

Julie xxx

[PJ68]

Hi

I had my hands scanned in July and tried so hard not to cry, I understand that they have to check things out, but as the guy was pressing down on my swollen fingers he kept saying 'Oh, thats not good!'

I really wnated to hit him, but it probably would have hurt me more!

Hope things improve for you very soon!

Pen x

[sylvi]

Morning,I wish they would treat us holistically, I kept telling there was something more wrong with me and they didn't listen. It took me to keep pestering them to find out what was wrong. Each department would treat their own little bit and they don't talk to each other,it would be so much easier if they all worked together.

I hope that you soon get sorted out and get some relieve.

Sending you my thoughts.

Sylvia. xx

[Beth58]

It's great when our bodies confirm what we've been telling them. But I'm sorry you've having to go through a rough time for them to finally listen.

I completely agree with Sylvi, they should treat us holistically. Our bodies are ours and we know when something is not working properly.

Then there's the impact of long term chronic illness/pain has on our mental health, sometimes I feel really poorly mentally too and this is always ignored.

Our mental health needs taken care of too!

[Hidden]

I hope you improve soon but you're in good company when you say 'I told 'em I was ill' That was the epitaph Spike Milligan had inscribed on his gravestone.

[Hidden]

I do hope you get some relief soon xx

[Andrea_Shapiro]

I don't hold out at getting much relief. I worked for the NHS for 15 years, and never experienced anyone listening to patients. When I practised as a nurse myself, I recall feeling uppity when a patient described symptoms that 'we' didn't agree with. Fortunately, I did my training in the 1980's. Unfortunately, I don't think that attitudes have changed that much.