does anyone ever feel like just giving in?: - NRAS
does anyone ever feel like just giving in?
Just one day Jaqi I wasnt able to flush the toilet because of the pain in my wrists I came out of the toilet went to the kitchen opened the cupboard and in a fit of tears I smashed a load of dishes That was a very low day for me I felt as if I had had enough and wanted to give up but after I calmed down I felt better Of course it wasnt much fun clearing up the mess either lol But you ve got to keep on going never give up Tomorrow is usually better
i know that feeling. my hands hurt so much i couldn't even spray my deodrant. i have gone from being a person that dosen't give in to colds and stuff to this person that i feel is pathetic and so so tired
I have to use a roll on as they are much easier. I also have thick handled cutlery and two handled mugs and cups. I have had days when i feel like throwing all the drugs down the toilet as well.
Just remember God only gives what he knows we can cope with. Another person who has what you have wouldn't be able to cope. You are one strong lady and don't you forget it. Love sylvi.xx
often.
but things can get better.and do - sometimes it's seems impossible to believe!
you are not alone.
keep in touch.
sandra.
oh so sorry to hear this Jaqi1 - we do have ways and means to cope with days like these - all very different - and then come back fighting again.......my heart goes out to you. (I used to sit on the bed hold the spray can on top of my bent knee and aim - but I can't even do that now)- accept your bad days - things will improve/alter/ajust and you'll feel that you are coping better......Take carexxxx
It is a dreadful feeling.
Described it to my HR Rep and my manager. That felt worse having RA than I did having cancer.
1 people treat you better when you have a diagnosis of cancer.
2 there is light at the end of the tunnel with cancer but this disease is so unpredictable.
Greater understanding by others,employers, family
The pain drags you down.
Keep your chin up. Better days are coming.
Hugs from me x.
hI jaqi
the short answer is yes I often thought about giving up BUT i didn't and hung on in there.
I know you are not long diagnosed and a year ago i was feeling exactly the same, pained, miserable, exhausted, not really managing to get through the day the way I used to, and feeling so useless. I went from working, climbing mountains, gym every day, to lying in a little heap crying ...in a week. So I think i know what you are feeling. Theres lots of other people tonight who are sore and tired, mine is always worse in the cold and rain so i bet others are feeling like you.
BUT i didnt take my pain medication well cos I I thought i was tough and would be brave, big mistake, when i got my pain meds used properly the relief was great. BUT I spoke to the rheumies and told them i wasnt coping and they gave me a steroid drip which gave me enough relief to start to think more clearly. AND i called the helpline and they were more than wonderful and helped me as I didn't want to speak to my family too much as i felt (unwisely I have now found out) that they would be sick of me, actually they wished i had opened up more. AND I was so mad at my GP when he said i should maybe see a counsellor, its so common for people when not long diagnosed to feel fed up or even get depressed, so i grudgingly went and honest it was an eye opener and it really helped me come to terms and accept the why me, why now, did i deserve this, why am i so blooming tired? I found as well as you have that talking here is marvelous and helped me so much.
So it would maybe would have been easy just to give in but now actually I am starting to feel better, have better meds, have lots of support and I on my way to seeing the light at the end of the tunnel like you will be. Give it time, dont rush to do things, rest and allow yourself to take this time for you and things will feel better.
You are anything but pathetic, you are so brave and even listening to you thinking about websites and stuff is fantastic, so give yourself permission to feel rubbish but then get some rest and help and you will improve.
So i will send u cyber hugs as I cant give you a real one, but thinking of you and hope you get some rest tonight and tomorrow feels better for you , we are all with you
Axx
Hi Jaqi,
I am really ill at moment but I just wanted to say YES for myself, many times, But Somehow I keep fighting, through all the aspects and negativities of this disease, I know I am here for a reason, and allowing this to destroy me mentally, spiritually as well as Physical is NOT and Option for me, Please do not allow it for yourself, I know this is what seems an endless battle, but we are all here because we want to go on, and That alone says so much XX
Lisa ((HUGS)) XXX
Hi Jaqi, the answer to your question is "yes". We all have days and sometimes weeks when we feel like you do at the moment. It's all part of the cycle unfortunately. If you still feel the same today don't sit on it, go make some noise to your GP or rheumy team. They will understand because it happens to all of us at some time or another.
Really hope that today you are feeling better but don't suffer it alone, if your GP or rheumy team dont know how you are feeling they cant help you, that's what they are there for (even so called 'normal' people have 'down times' but we have a reason for it).
Like I say "Really hope today is a better day for you".
Judi xxxxxxx
PS: Deodorants: I now use the roll on type and any other sprays I use need to be the old fashioned ones with just a button to squirt not the ones with a shaped top.
HI JAQI
I think everyone on here has felt like that BUT most people on here are what we call RA warriors.
they just keep plodding on at the best of times you can and will find that trying to ocupy your mind does help with it a bit and not waiting and thinking when the next pain is comming then ya feel it and you start to consentrate your mind on that area then something else starts aching and you find yourself consentrating on 2 areas of pain.
we all do it to some extent.
i for one am guilty of this when walking i think why is that not hurting and sure enough a few more steps and it does.
when ya get like this look at a picture frame in the house breath in and follow the point where you start and go all the way round to where you started looking and breath out this helps me a bit somthing some one told me the other week and it seems to carm you down.
for some reason
hope you are on the mend soon.
Your not alone! Sometimes a good cry and a feel sorry for yourself hour or two sorts you out. Also try and speak to someone you trust. Stick in there! I'm 14 years down the line and you get better at dealing with the not so good days. Let it all out and know that it's ok to feel fed up and worn down at times. Dig deep, It will get better xxx
Know exactly what you mean, I've had it for 21 years now and sometimes are much worse than others, but I have found a cocktail of herbal drugs which I order from Healthspan which work brilliantly together, it costs me a fortune but it definately works with the pain, my consultant agrees that it could easily be helping, I certainly see an increase in pain when I've run out of any of them, happy to give you the list if you're interested? anyone else for that matter?
Lydia
Hi there Trish, I'll give you a list of all that I take and you can look into them:
From Healthspan I get: ChondroMax - 500mg Glucosamine & 400mg Chondroitin, Bromelain (which is a natural anti inflamatory), Rose Hip 250mg Standardised Extract (which complement the ChondroMax), Omega 3 Capsules Pure Fish Oils 1,000mg - One a day pure fish oils and Devil's Claw JointAid (which is a natural pain relief.) Then I get the multi vitamin & mineral tablet from Holland & Barratt called ONE and lastly I get something called Reduced L-Glutathione 100mg (Hyopallergenic), which i get from nutricentre.com this also helps with the pain, all these are compatible with my RA drugs, have been taking them for about 6 years now and have found that I can't do without a single one, they seem to work very well with the conventional drugs, I've tried and proved that i can't just have just conventional or just herbal I have to combine the two. Hope this all helps and let me know if you need to know more about them.
All the best
Lydia
Will I ever feel \"normal\" again?
Does this sound like RA?
Does this sound like RA?
Anyone able to give some advice?
