Am I being too sensitive? I was diagnosed sero posive just over a year ago and although initially people seemed sympathetic and said all the right things, I have found now that, they all seem to think that I should be over it now and don’t want to know.
The first reaction from my mother when I told her that I had RA and had just had my first steroid injection was, “you’re not going to get a big fat backside are you?”!, I haven’t bothered mentioning anything to her again, until today when I told her that I had to come off methotrexate because it had given me a skin viral infection similar to chickenpox. She raised her eyes to my sister, totally ignored what I said and changed the subject.
Having just spent an hour driving to visit them (if I want to see anyone I have to do the driving), I picked up my stuff and left.
I have been through hell this last year, I live on my own and have to do everything myself, I don’t need to explain the pain or challenges on a daily basis to any of you because you already know what is involved. However, at times when I try to speak to anyone, I feel that I am completely shut down. I know that I can go to professionals and groups etc., but the hurt I feel when my own family are so uncaring is almost worse than the physical pain of RA. Giving them leaflets etc., wouldn’t help, I just know they would not take them seriously.
I feel so alone, and that the only way to avoid this sort of emotional hurt is to cut them out completely and accept that I have to deal with this on my own.
Sorry for such a depressing first time contact, but I would appreciate any views or similar experiences and how to deal with the fact that I don’t have supportive friends or family.