I was so chuffed to have made Julie smile with my Tripoli analogy that I thought I'd be brave and write another blog.
I've just been for an "Away Day" with my choir. Exhausted now but home to a chaotic household as other half had been doing guttering and internal chaos awaited me with hyper dog and teens - they've taken every towel we have for their extensive showers, left toilets disgusting, frying pan with congealed scrambled egg on stove - smears of ketchup - maths homework strewn - sure many of you know the scenario. So instead of tackling it all now I thought I'd put my feet up and chat to all of you until I can summon enough energy to tackle some of it at least in a bit!
I woke up at 8am after an excellent night (amitriptyline and codeine but no whisky) - the first in ages. I expected to wake with a sore knee because I went to bed with one. I knew how much standing and being still I would have to do today so last night I made myself walk up and down our stairs about 15 times before shower and bed and this seems to have worked but I'm aware that I'm still early on in the suffering stakes and lucky to be able to walk things off in this way. In fact I find that if I don't I seize up and then things really do hurt horribly.
And for first time in 6 months I awoke to NO PAIN or heat at all. So what with the lowering of ESR and the no pain I thought "hey ho here we go thsi could still be post viral or something - could be on it's way out?!". But mindful of the body's equivalent of Gaddafi's lot lurking somewhere close by I didn't mention this possibility even to my other half. Walked the dog early and arrived feeling great. But I did keep moving because more than ten minutes in once spot, whether sitting or standing, and I find I'm bug****d. I think fellow choir members are getting used to me wandering around waving my hands and wriggling my feet like a crazy lady but all my joints have taken to snapping loudly too now as I go which is disconcerting - is this something about getting older or am I just noticing it more now I wonder?
Choir mistress was very solicitous and at the end instructed me to rest because I looked "wiped out" and boy did i feel it - but then so did everyone else I'm sure! I broke my gluten and dairy free diet of recent months because everyone brought scrummy food stuff and my oatcakes and my own philly with smoked salmon seemed to go down well so I felt obliged to sample all the other dishes - you know how it is - needs must?
But then as we started again I realised that my hands were aching horribly and bottom left thumb joint was making movement and page turning increasingly hard to the point where I could hardly hold my pencil or lift the music. Well it wasn't exactly a full burst of gunfire I guess but a bit of a reality check nonetheless.
Towards the end of our rushed tea break a friend, who is also a GP from another island came up for a chat and asked if I was on MTX yet? So I told her of continued limbo that for me = Tripoli situation and she thought about this a bit and said that it was probably best to assume I've got RA and am just having a good day - because, although she had come across the rare instance of a longer bout of post viral arthritis and Palandromic one they didn't have positive RFs and it is rare that it disappears entirely (although possible she conceded) She felt that if f I assume it is RA I'll be that much more appreciative and surprised if it does eventually dwindle away to nothing. Better that way round she's right don't you think? Then a chap joined in the discussion and said that his neighbour has RA and was wheelchair bound for a while but she started drinking Manuka Honey mixed with cider vinegar and hot water and had noticed a huge improvement to joints and was back to walking with crutches again now.
So that's why I decided to blog here again and opt out of denial for a bit longer because I keep getting so badly depressed the other way round when gunfire sounds again that I realise I'm just torturing myself.
Not sure about the gloves yet Julie - they are so tight I can't type when wearing them but will try them now while I hoover and let you know. Sorry this is so long but better therapy than housework anyday!