The world has gone crazy!
Unfortunately 2 weeks ago my White blood count dropped to 0.2 which meant emergency stop of all RA meds - sulphazine was the culprit.
On the brighter side of the story my consultant told me I now qualify for anti tnfs and gave me leaflets, told me to pick which one I wanted and come back in 2weeks.
The pain over the past weeks has been unbearable and at one point I couldn't feed myself. So the excitement of my Tuesday consultant appointment was my only thing keeping me going.
Tuesday arrived I barely slept I was like a kid at christmas. I decided that humira was my drug of choice and off we went to the hospital.
Then came the disappointment. My consultant explained all about humira showed me the pen and how to do it. I was then told that due to government guidllines and the NICE department I have to wait another month and to come back in a month.
They packed me off with tablet steroids to keep me going as the injections haven't worked.
I now have to wait till the 20th September 35 days away
My mum could see the disappointment in my eyes and I sobbed the hole way home. I couldn't believe I qualify, I'm in severe pain and they can just pack u off all because of government guidlines.
Once I stopped crying I told my mum I was going rioting as I have something to riot about and I am going to run over David Cameron so he can't get out of bed too.
The people that make these decisions don't have the crippling pain and fatigue we have. They sit in there fancy office sipping Starbucks and making decisions that change people's lives and I can't believe the drugs are there but we can't ha e them.
What a crazy world we live in