Humira! Hooray!

[craftmay71]

I don’t normally post anything but I felt I had to write this. I was taken off Humira and put on Imraldi (to save the NHS money - which I was more than happy to do). For the last 8 months I’ve experienced some unpleasant side effects but my Rheumatology nurse was brilliant and recommended that I go back on to Humira & my consultant agreed. Tonight I’ve just had my Humira - all done pain free (not like the Imraldi which was so bloody painful to administer). I hope you don’t mind me sharing good news, you just have to find the good in some situations.

[KittyJ]

That’s good news, I’m very happy for you 😊

[craftmay71 in reply to KittyJ]

Thank you x

[helixhelix]

Great to share good news! And it will give people struggling with the same thing some hope.

[craftmay71 in reply to helixhelix]

Thank you x

[AgedCrone]

There are a lot of really good rheumy staff helping us out....you just have to be lucky & find them....glad you did & told us.

Hope all continues to go well😇

[craftmay71 in reply to AgedCrone]

Thank you. To be honest I was expecting the consultant to say no as she can be awkward

[AgedCrone in reply to craftmay71]

I stayed on Rituximab when my hospital was starting to introduce Truxima .

The hospital told us if we didn’t want to switch, to call the rheumatology pharmacist....She asked a few questions & said I could reman on Rtx.

I think there is usually a way to sort things out if you just ask calmly.

[craftmay71 in reply to AgedCrone]

I was told first off “you don’t have a choice”. Unfortunately she is a very difficult woman but I’ve learnt over the years how to interact with her.

[rab1874]

Great news xx

[craftmay71 in reply to rab1874]

Thank you

[Hidden]

👍it should all be about making life easier not money... delighted for you

[craftmay71 in reply to Hidden]

Absolutely - thank you

[Jacey15]

I find imraldi really painful too.

[craftmay71 in reply to Jacey15]

Shame - can you try something else too? I had an awful rash across my tummy as well

[Maggsie]

Hope Humira works well for you second time around. I had a similar experience with Enbrel > benepali>enbrel but it was never as good the second time. I'm still trying g to find something else that works 3 years later!

[craftmay71 in reply to Maggsie]

Shame 🙁 I have had the same worry- fingers crossed you get something sorted soon

[Shalf]

This is reassuring. Thanks for sharing and all the best! xx

[Mk223]

Awesome!