JIA reader reviewers needed to review 1 article

[Victoria-NRAS]

Hi all

Our NRAS article on JIA is currently up for review, and I am looking for 4-5 reader-reviewers that might be able to look at it for us, to give us the patient-perspective on whether the language is patient-friendly etc. I have plenty of standard reader reviewers that I can use, but ideally I would like the reviewers to have JIA specifically, rather than RA.

If anyone on here has JIA and would be interested in reviewing the article for me, please let me know asap. I am hoping to get the review completed in the next couple of weeks, so if you can let me know by the end of the week if possible that would be really helpful.

If you are interested, please send me a private message on here.

Many thanks

Vicky

[bub124]

Hi Vicky

I don't have JIA now as I'm 48 but I was diagnosed initially with it back in 1973. I expect you want current sufferers but if I can help, let me know

[Victoria-NRAS Partner Moderator NRAS in reply to bub124]

Hi Bub124

Actually when someone is diagnosed with JIA it is technically always JIA even if it continues into adulthood. Not sure if in your case the JIA burnt out and then you got RA later, but if it continued from childhood it would still count as JIA.

Either way, I think you would be a good person to review it, as anyone that has or has had JIA but is on here will be an adult.

If you would definitely be interested, please could you send me your email address by private message and I will send you the details.

Many thanks

Victoria

[Ella32]

Hi Victoria

I would love to do this for you guys but unfortunately i am going in to have ankle surgery on Thursday.

Please ask again or let me know if this still spplies next week as i would love the distraction

Thanks

Ella

[Victoria-NRAS Partner Moderator NRAS in reply to Ella32]

Hi Ella

Hope the ankle surgery goes well. Next week shouldn't be too late, so see how you are feeling, and if you feel up to reading the article and as you say would like the distraction, please send me your email address in a provate message and I will send you the article and a questionnaire.

Many thanks

Victoria

[Tinwoman2]

I have JRA, diagnosed in 1970-42 years ago. I live in the US so don't know if that would be as helpful.

Christine

[Victoria-NRAS Partner Moderator NRAS in reply to Tinwoman2]

Hello

I don't think it would be a problem that you live in the US and would value your opinions. Some of the information may differ slightly given the different healthcare systems, but the article has already been peer reviewed to check that it is factually correct, so it would be more from the point of view of checking that the language is patient-friendly etc.

If you're interested, please private message me your email address and I will send the article and quetionnaire to you.

Many thanks

Victoria