Hi my Rheumy mates, not been on site for a while so I thought I'd tell you all why.
Had a lovely holiday in July despite being diagnosed with a protruding disc before I went, RA kept itself under control too so that was even better.
Thank you for the personal messages, nice to know I was missed.
Have had to put off next Rituximab treatment for a while as white cells are still a little low (recent blogg) and so to is my creatinine level (kidney function) this has been fluctuating for quite some time, apparently! RA still behaving itself to a certain extent so that's good.
Prolactin levels (recent blogg) still playing up, waiting to go back to see consultant and probably have another brain scan, I'll have no brain left!! not got much as it is! lol!!
Have also has a referral to a Gynecologist because of my periods being all over the place. GP thinks it may be connected to Prolactin levels ( and so do I) but he needs to be sure. Had appointment last week and now have to go in for a Hysteroscopy,biopsy and a d&c.
Still waiting on appointment for epidural and facet joint injections, always think of Tricia on this one and what she's going through. I do hope they come through before Gyne one as I know you can get into some awkward positions on that operating table!!
In my last blogg I told you I was treated for a kidney infection. Well, I had a "funny turn" which led the GP to believe that it was a kidney infection I've since has another. I get pain in the kidney area which is very sudden and usually at night when I get up for the loo I then go dizzy and light headed feel very sick and bail out of sweat I can feel myself dropping to the floor. Two or three times know my son as come to my rescue and helped me back to bed.So I'm now being sent for a ultrasound on my kidney's which is on the 24th August.
Have had to put back op on left foot as I feel others are more important at the moment and foot isn't so bad that I can't cope. Have to see surgeon again in November.
I think that's about it guys, I'm desperately trying to stay positive and strong and not to let things get me down but it's so difficult at times.Just the other day I was thinking I'm 47 this year and I've spent 27 of those years in and out of hospital, 17 of them for RA and the other 10 for another problem.
I know it's not just me we all suffer in one way or another, but don't you think that having RA should be enough for anyone to cope with. Life just doesn't seem fair at times does it?
I feel better know I've shared it with you all only my hubby knows about most of this as I feel I can't talk to other members of the family. Don't get me wrong certain ones have always been supportive and never judgmental it's just how I feel. Sometimes I feel people think "what's wrong with her now!" like I'm making it up for attention, you can see that uncaring look in their eyes.
I know people on here won't judge me has most of us have lots of things to cope with not just RA so I feel happier sharing it all with you.
Take care everyone