A month ago I was told I had Ra. It didn't come as a complete surprise but it was still a blow. To be fair It's not what I was expecting to hear at 43, just as my children had grown up and I was embarking on the next stage of my life. Having to explain the disease to my parents, husband, children and friends has not been the easiest thing either but it's done now. Tears were shed and slowly I came to terms with the new me. Sometimes I catch my husband looking at me in a way which I'm not keen on, like he's feeling love but sadness. Next time I catch him doing it I'll get him to speak up and tell me what's on his mind as I know he needs to talk too. But here I am, a month on from starting mtx, I've not gone bald as feared and am getting back my lust for life and sense of humor which had all but disappeared under the weight of pain. My weekly blood tests have been fine, showing no problems with liver function and a gradual decrease in my inflammatory markers. For the past week I've been waking up with no stiffness or pain in my hands or feet either so I'm feeling very thankful. I know this is a tricky devil of a disease and it will probably find a way around the drugs at some point but for now I'm enjoying every pain free day. I've got a few things planned to look forward to in the next few months. A trip to London in August to see Blood Brothers and stay in a nice hotel for our 25th Anniversary. Our first proper date was a trip to Alton Towers when I was 16 and OH was 19 so in September were going to do it again, roller coasters and all! In December were going to see War of the Worlds on tour in Liverpool and I've also signed up for membership to a really nice health club to work more on my fitness. So as you can see life has not stopped because I got Ra. I think if anything it has helped me realise I need to live for today and enjoy life to the full. I've lost 4st, stopped drinking, started exercising, eat a much healthier diet and rediscovered my waistline To anyone facing a diagnosis please please try to stay positive as you may also find living with Ra is not as bad you expected.
love to all