Does anyone else have chronic lung disease and arthritis. I have bronchiectasis and inflam arthritis causing daily pain which presents anywhere and everywhere, most often in back, toe, neck, jaw and fingers.
I cannot take NSAIs because it caused ulceration to lower bowel. Tried hydroxy which initially seemed to help, but after a month or so began having flashes which progressed into full blown pretty constant migraine. I have been prescribed Sulpha and haven't managed to get on them yet as I had facial surgery because of lentigo maligna (pre cancerous). Pathology found rogue cells in the margins and so had to use cream which latches onto rogue cells and promotes the immune system to attack them. Since Christmas samples from my lungs have cultured haemopyllus influenzae and I have been on virtually constant antibiotics during this time.
I was interested to read, if a bit alarmed, that some of the dmrds are photosensitive. This is concerning to me as some of the abs I take for my lungs are also photosensitive and I have my facial stuff to consider, although I always use factor 50+.
My inflam markers are always very difficult to interpret - is it the lungs or the arth or both at any one given time. Aaargh.
A rheumy I had suggested it is thought there is thought to be a connection between bronchiectasis and inflam arthritis - makes sense to me as my immune system has always had to work overtime as it were. I don't have the R factor. My lung cons did say you can get sulphasalazin lung Aaaargh again. Take so many drugs and nebs I am concerned I can tell you re starting these drugs.
If what my rheumy says is correct re bronchs and inflam arthritis when I would hope to hear from someone in a similar position or any helpful suggestions or comments would be appreciated.