After 14 years of undiagnosed pain, about 4 months ago I was diagnosed with rheumatoid arthritis. My anti-ccp levels were a massive 1,640 which is a strong indicator of RA, apparently even though I have no visible damage and a negative RA factor.
I've often wondered though, if there is something more to my diagnosis. Everyone talks about "flares", though my pain is constant and never ending. Sure, if I remain sedentary for long periods or exercise hard, the pain increases, but for the most part, the pain is always bad and always constant. There aren't good times.
Can this be an indicator that I have something more than RA? I've been tested for lyme (though from my reading I need to take a more conclusive test like the Igenix). I've been tested for lupus.
Before I go on Methotrexate and suppress my immune system, I'm first trying to heal it through LDN, diet, turmeric paste, CBD oil, and borax. Nothing is helping though. Even prednisone didn't help me. Which makes me wonder if maybe I have a bacterial infection caused by a dental procedure (root canal, dental post). Bacterial infections can cause auto-immune problems. Maybe thats why nothing is working for me.
Anyone else with RA experience constant pain? Could a bacterial infection be the culprit considering nothing is working for me yet? Are my 14 years of chronic pain (started with back, then neck, now knees and ankles) symptomatic of RA, and if so, shouldn't I have permanent visible damage by now?
I know it's still early with the LDN, diet... so maybe I just have to wait longer. I just want to make sure I'm not ignoring something else (like possible infection). Funds are limited so I have to be wise with my medical decisions. Thank you.