Suffering in Silence, I wish there were support groups in my area with people with the same illnesses,
I was wondering how to go about setting up one as I cant find one, a group for people with what I call silent illness, I mean sometimes we look Great on the outside and people dont think we are sick, and I dont feel I can share with my friends, I am tired of trying to explain to people about RA and Fibro and how Exhausting and Painful it is, and they say, Oh yeah, I get a bit of stiffness in my little finger sometimes, WHAT? I need someone to understand what I am going through that maybe I can go have a coffe with, and talk about the Good days as well as the Bad. Any Suggestions
If you contact NRAS they will be able to help you set up a group. Or you could do it through your local Rheumatology Dept. I am sure Occupational Health would help you too. Give up trying to explain to other people, if you do they don''t understand. Good Luck
Thank You for your suggestion, I will do that.
Sorry about the late response to your blog. We do have local NRAS groups across the country that are run by our volunteers. I'm afraid at the moment the only group we have in Cornwall is based in Plymouth, which I believe is quite a distance from you. If you would like to find out more about how to set up a group in your area please email my colleague Maimie on: firstname.lastname@example.org
Hello Sarah, Thank You for your comment, I do have arrangements for a telecom with Maimie tomorrow (Friday) and Look forward to our discussion, again, Many Thanks
No problem Lisa, that's great news
Hello again Lisa I just replied to your message on my blog when I spotted this. I totally agree with what you're saying about people not understanding. RA is just totally misunderstood by the vast majority of people. I too have nobody to share a coffee with and talk things over but if you ever need someone to listen there will be someone on here with some friendly words of advice. I'm sorry to hear that you lost your beloved cat Lucky. He was obviously very happy to have lived such a long life. I lost my cat Joey about 8 years ago when he was 15 and I still miss him. I also have two dogs who are my substitute children now that my son and daughter have grown up. Good luck with setting up a group in your local area, I'll be interested to hear how it goes.
Sorry I should of said "she" when referring to Lucky. x
Good luck in the setting up of a support group a great idea, so sorry to hear about your cat, 22 is a grand old age. they are such a comfort I have two, my latest I got as a kitten over 2.5 years ago in the grim dark days when I was first ill to keep me company and give me a focus x
HI Lisa - just wanted to send you a big cyber hug and tell you that you are not alone. I remember when our first cat was run over and I was so grief stricken for ages because he was my big cuddly beast of a cat. I now have a dog and he's so adored I can't bear to think of anything happening to him - and I have three sons and a husband who feel the same way about him! Perhaps it's time to get yourself another cat - not to replace Lucky but to keep you company in the way that good pets do.
I can't believe you've had RA for that long without treatment - hope the MTX works well for you - it's worked for me although the RA still creeps about but I am not screaming into my pillow with wrist pain etc anymore at least and have just added a new drug in. MTX does work brilliantly for many here but if it doesn't suit you then there are lots of other drugs that might. Keep coming on here we are a fun lot you will see. And i hope you do managed to get a group going in your area - there must be lots of people out there who would appreciate it too. Tilda x
Thank You everyone for your comment and support, It made me smile, Have not done that in a while, I will let you know the updates on a support group in my area, As far as Lucky, Well, I made her a promise the day I had to put her to sleep, we had discussed this before that day, But I promised I would never have another cat ( I feel I would resent it, because it is not Lucky, and I would always compare) N pet deserves that, So maybe someday a fish, yeas I know you cant hold a fish, But I hold Luckys stuffed animal Blue, and I light her candle everyday and still talk to her, I would never betray her, I miss her soooo Much xx Thanks again for the support xx Lisa