dry eyes - dry nose?: I have a chronic AI rheumatoid... - NRAS

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dry eyes - dry nose?

Stills profile image
18 Replies

I have a chronic AI rheumatoid condition (diagnosed 1979) and other AI conditions that have joined in over the last twenty years. I have dry eyes and wonder is this syndrome can also affect the nostrils? I get a very strange feeling that builds during the day almost as if I’m inhaling eucalyptus or something, it’s most disconcerting and I’ve just started to wonder if perhaps my nose lining is dry ? I’m not on RA meds and have no known allergies, I do not have sinus issues, a cold, Covid or any thing I can identify as a contributing factor except tinnitus and helicopter blade feeling in my head. Weird huh?

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Stills
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18 Replies
Deeb1764 profile image
Deeb1764

since RA dry eyes and nose been bad and tinnitus. bUT let GP team or RA team know too. I had a hearing test done recently to check ears and they were fine but I have tinnitus but glad I checked nothing going on.

Stills profile image
Stills in reply toDeeb1764

I suspect it’s thyroid related actually, another complex area and difficult to get the right diagnosis and treatment but I’m managing whatever it all is atm . Opticians soon which may shed some light.

Deeb1764 profile image
Deeb1764 in reply toStills

My ophthalmologist gave me a great routine including eye massages and Xailin which was my game changer 🥰

Stills profile image
Stills in reply toDeeb1764

xailin? OTC or POM?

Deeb1764 profile image
Deeb1764 in reply toStills

When back home will check

Deeb1764 profile image
Deeb1764 in reply toStills

Xailin Plus HA 0.2% eye drops

Stills profile image
Stills in reply toDeeb1764

Thank you do you get these prescribed?

Deeb1764 profile image
Deeb1764 in reply toStills

Yes the ophthalmologist did the first script and said repeat every month for GP.

Haz58 profile image
Haz58

My eyes and nose are always very dry since RA. I've never mentioned my nose to the rheumy as I've never connected it until I've just read your post.

Stills profile image
Stills in reply toHaz58

It will be interesting to hear what your rheumatologist say if you get the opportunity ask about it.

Haz58 profile image
Haz58 in reply toStills

I've made a note to ask her in June.

Fruitandnutcase profile image
Fruitandnutcase

Could you have Sjorgen’s that could cause your nose to feel dry among other things? Be best to try to speak to your doctors.

cyberbarn profile image
cyberbarn

I have dry eyes and nose, kept telling my GP and Rheumy, both ignored. Finally after my optometrist said I am starting to get some damage the rheumy referred me to ophthalmology.

It is a shame that western medicine is done by silos, with thyroid overseen by endocrinology and joints by rheumatology. It should be that people with autoimmune disease should be seem by immunity specialists!

So keep on at them about it!

Stills profile image
Stills in reply tocyberbarn

Good point, well made thank you.

WilfDog profile image
WilfDog in reply tocyberbarn

A holistic approach is always the best way and when I was diagnosed with sJIA at five in 1973 I was automatically seen by many different departments and the results were all put in a central place so the consultant could have an overview of what was going on. I was thoroughly checked for several ailments at each appointment. Them were the days!

Stills profile image
Stills in reply toWilfDog

Yes that’s what it was like, when I had my specialist appointments, it was an all day trek round the different departments then a final hour with the Prof.

I live in Colorado where it is very dry. I also have RA. I us Moist heat compress. Microwaves in 20 seconds and feels good. I also use Ocusoft lid scrub when my eyelids get dry. It actually is good to clean your eyelids.

Stills profile image
Stills in reply toGenesisRevelation

Good tips thank you very much

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