Good morning,
Had my second Rituximab on Thursday , had rituximab for quite a few years and never had a problem before but after this last session, it’s knocked the stuffing out of me .
my joints are quite bad especially my hands , never had this before , feel quite rubbish today .
could just be a coincidence 🤷♀️ anyone else had problems after the infusion
Thanks Gill
I didn’t feel as good as usual after mine in May back to a sort of equilibrium now but wondering if it’s a different formulation
I was recently prescribed Rituximab infusion In conjunction with celebrex. 10 yrs on Humira has failed to help Any more. And embral was then prescribed but it didn't seem to do anything to help the inflammation and flares. They said it would take a couple of months to see if inflammation would be reduced with the rituximab infusion
I Have not started either of these two new drugs because they sound so darn scary.
So I've decided a diet reduction/ elimination of sugar, dairy, fats, processed foods and add more water and juicing. The flairs seem to come and go.
I’ve been having Rx for2 -3 years usually with no problems other than feeling a bit dozy for the next day . Just once I felt really unwell the next day - racing pulse and ‘odd’ generally. That time I’d had the infusion in the afternoon - and maybe a bit more quickly -
Was anxious about the next infusion but it was fine . May have been more due to the other medication which accompany the Rx
I had rituximab for about 6 years and totally knocked me for six, brain fog and fatigue for about a month (2 infusions 2 weeks apart), just about returned to normal and then the second infusion. Despite that I have to admit it is one of the most effective treatments I have had. I stopped as I work full time as an analyst and need to have a clear mind which rituximab interfered with.
mine is still working after 1 infusion 13 months ago. Caused back to back chest infections but joints are good 🙄
I only have a single RTX about every 8 months & it works beautifully for me. But every time I holiday abroad, I come back with a bad chest infection!!. But now I’ve been given an ‘Emergency Pack’ of Prednisolone & Antibiotics to take with me, so I can start them earlier if I need to. But otherwise RTX infusions have worked wonders for me for the past 3 years 🤞🏼.
Sorry you are feeling rubbish after your last Rtx infusion. Are you only having the one infusion and not two, two weeks apart ? I hope it’s just a temporary thing and you feel better very soon and is because it was administered too quickly. In my case with Rtx I only had two rounds of it and it knocked out my immune system and it hasn’t recovered and never will which is unfortunate but I am presuming that they’ve checked out your immunoglobulins? It could be that they’re a bit or too low ? maybe chase up the results and find out because it isn’t always picked up with staff being ultra busy. Hope it isn’t the case and you feel better soon.
Thank you , I had 2 , two weeks apart and felt fine after the first infusion , just the second one knocked the stuffing out of me. So could have been given too quick .
It works really well , been on for a few years , just this last infusion 🤔🤔
Will mention it whenever I speak to the Rhuemy 🤷♀️ god knows when that will be .
Thank you all for the reply’s 😘😘😘
A lot of hospitals are changing to bio similar
Yes , I have tried the bio similar Truxima and find that Rituximab is definitely better , just was a bit rough this time 🤷♀️after the second infusion
Did you keep yourself well hydrated during and after your infusion? I always feel rubbish for 48 hours after my Rituximab infusions but it’s definitely worse if I don’t keep myself hydrated.
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