I had my latest Covid vaccine 5 days ago; no reaction for the rest of that day (usual sore arm) but each day since I’ve become gradually more breathless upon exertion and thus light headed. My symptoms have worsened considerably ((couldn’t dress this morning without have to rest after each item was in place 😂) so I made a GP appointment. The senior nurse (extremely well qualified) checked me thoroughly. His conclusion is that I have had a very strong autoimmune response. I didn’t have my usual Saturday MTX subcutaneous dose, the jury’s out from Rheumy whether my RA is as controlled as it could be. Has anyone else had a similar reaction? I’ve had Pfizer twice before without a problem. 7th was Sanofi and I had a week long flare afterwards.
8th COVID JAB REACTION??: I had my latest Covid vaccine... - NRAS
8th COVID JAB REACTION??
I had mine last week and each day after the sore arm went calmer I have got more sweats and my fatigue which was bad is off the charts. I am just assuming it’s an2 week hit of crap!
Oh no Deeb…you don’t need this! I’m hoping there’s at least one positive for you in that you do not catch Covid. Thinking of you. X
I hope you get the protection .i dint want to scare you but I got reaction to first shot and by second I lost feeling in half my face. I still got covid and even with paxlovid got long and nerves in legs attacked and I. Having issues walking since a month after getting. I was provsx for those who think it's best for theirvm bodies but no jab protected me and it's now proven not to be protective more than about three months .
I’m sorry to hear your disappointing experience and send you healing wishes.
So many people are having terrible side effects. You are right, the shot does not prevent catching it that’s why they are pushing out the next one. What are we up to now, #8? I feel so bad for them.
I've just got back home from my 8th jag lol double whammy with the flu one too now I'm worried 🤣🤣🤣🤣
Fingers crossed for you
The only reaction I’ve had, apart from fatigue and and aching arm, was from my 7th jab, my second Pfizer. I ended up with 2 days of aching bones, a constant headache and terrible sickness and diarrhoea. My 8th jab is in 2 weeks time.
That is good news….let’s hope more folk are like you!
sorry helenlw7…I thought I was replying to Jsartbtb! Good luck with your next jab…hopefully no side effects.
Had my 8th Jab (Pfizer) last week. No problems except usual sore arm.
See my first reply to helenlw7…it was meant for you!
On advice from Rheumy did not take my MTX in the week of my 8th covid vaccine. ( Had flu jab at same time Sat morning)
Was ok on the day- sore arm by evening. Squashed into fatigue and misery by the next morning Sunday. Achey, bad head, weary, sore eyes wobbly and flarey. Was back in bed by 10am- audiobooks noodles for lunch- horrid sweaty shivery weary. Felt a bit better this morning. Have had a very quiet sitting around day. Trying to get up and walk around a bit each hour. Bubble bath was good.
❤️ Sending much love and hope you are feeling a bit better.
I have high hopes of tomorrow. Just taking it steady and doing as much self care as poss.
😘💕
Oh poor you….. sounds as if you’re having a horrid time. Let’s hope these unwanted side effects leave you and me pdq!
Was wondering if stopping MTX (as advised) allowed greater immune response. Hoping my biologic on Thursday will knock it back a bit.
Today’s positives- Dogs have been lying around with me. 🐺🐺 At least I got out to check the chickens today 🐓🐓.
😎☀️Put old reclining office chair in patch of sunshine - free apples from neighbour- less headache today 👍
Sending best wishes
o poor you, that sounds horrid. Fingers crossed you and me both will soon be feeling back to ‘normal’ 😵💫 !
I sometimes have a reaction the day after and feel 'off' for 2 or 3 days but I always have a rheumatoid flare for a week or so following any of the vaccines.
Hello Sheila…sorry to hear you have a flare post vaccines. I’m certainly experiencing that now…the concern for me was that I was getting breathless and lightheaded with the slightest exertion and I’d just had a venogram procedure. I was actually relieved my GP felt I had a reaction to the vaccine…and several other correspondents have also experienced some breathlessness. Thanks for your reply.
I had a 4th covid jab april and had a flare with RA. Rhuemy nurses said the covid vax could be responsible. Got appt 4th october to discuss new meds as still not controlled. They have just notified me due for another vax going to consider whether to have.
I've not yet been called in for my latest Covid or Flu vaccine, my Doctor's surgery ususally starts them mid October from my experience. In terms of a reaction, for me it's unusal not to have a reaction to any vaccine. I normally schedule them on a Friday, so that I have the weekend to get over them. My normal reaction is a full on flare, stiffness, 'aching bones', pain at the injection site (for one vaccine this lasted until early Jan) feels like I have a very bad bout of the flu. I didn't realise these symptoms were the same as an arthtitic flare, as I was diagnosed with Inflamatory Arthritis at the begining of this year. However, I have 2 other autoimmune diseases which means my doctor's surgery has called me in for Flu/Covid for the past 10 years plus and as mentioned above I expect to react and if I don't (very few occasions) it comes as a surprise. I'm starting Amegevita this week, it will be interesting if the vaccine effects will be any different whilst on a biologic.
May I asked what other AI conditions you have? I have Adult Onset Stills Disease (1979) which for me manifests as RD. I have other AI conditions and currently awaiting abdominal scan after negative gastroscopy for new symptoms as yet undiagnosed although personally I suspect autoimmune thyroiditis.
I have Coeliac Disease, diagnosed around 1997 (I'm strict about not having gluten & preventing cross-contamination) and Psoriasis (I can't remember when that one was diagnosed, maybe around ten years ago). The Psoriasis is solely in my hairline and tends to worsen during cold weather months or periods of extreme stress. It has been mostly inactive the past few years, but I do have a mini flare in progress at the moment (I'm also in the middle of a mild arthritic flare; I had a bad one that lasted three weeks in mid-August - my longest flare yet, and within weeks of that one ending, another one started - I normally have longer between flares), so I will keep an eye out and see if my arthritic flares & psoriasis flares are linked. I'm also interested to see if the Amgeviata helps with the scalp psoriasis.
That’s interesting thank you and I’m sorry you are suffering a flare up. I have strange skin growths mainly on my torso, I use dermovate cream which calms them although it was actually prescribed for lichen sclerosis but helps this too. I kept a note and found my skin is always worse when my joints flare as are other symptoms so I’m certain the skin issue is connected although dismissed by drs years ago as being the case. I test negative for celiac disease but always flare after too much gluten. Stress also affects my skin and joints and was suggested as the actually cause of Stills back in 1979. I lost my Dad, and step Dad in December who both died on the same day would you believe and ex husband a few weeks later. I think it’s poss the emotional stress triggered whatever is going on with me now but time will tell. Modern life is so stressful we need to look after ourselves. Wishing you better days and less flares.
I'm so sorry to hear about your losses, especially in such a short timeframe. Stress is one of my biggest triggers, I try very hard to try and keep it to a minimum, but my job is high stress and I also care for my disabled father which piles it on more. Meditation, finding time for me (even at the expense of missing out on nights out/drinks ect) and pushing back at work and saying no help. I hope you are also able to get your condition under control
Thank you. You have a lot on your plate to deal with, I’m lucky that my 87 year old Mum is still just about able with some help and we are organising a daily care visit for 80 year old step Mum who has been in a steep decline since Dad died in December. I’m suffering from a deep dread that I can’t explain or shake off so try deep breathing at night but know I really need more. I swim twice a week when feeling perky so that helps. Take care.
Hello , I read a post on HU thyroid pages reporting that selenium supplements cleared up the writers psoriasis and remembered your previous post….
Thank you, I’ll look into it
Thank you Stills - I did a bit of research, and apparently selenium should be avoided with Amgevita due to the fact that it can boost the immune system. I'll monitor it, and see how I go. However, I've just read the Amgevita list of side effects and it's scared the life out of me (there is much more on the info leaflet than there is on the Versus Arthritis or NHS website). The nurse is coming this morning to teach me how to take my first dose
Hope it goes ok and works well for you
I’m pleased your GP keeps a close eye on you particularly as you have 3 AA issues to deal with. It would be so good if Angelita works well for you (and no nasty post vaccine effects)….do let us know how you get on.
Sorry to hear you’ve been badly effected. I had the double jab last week. As usual I had sore arms (double bubble) but nothing more. This was my 8th, too.
Good news….let’s hope more folk have only minimal side effects!
I only had my 6th in June and they have called me for my 7th already. I had a flare straight after that one so not sure about going for my 7th so soon
My understanding that if we qualify for this autumn booster, only 3 months between the last vaccination is required.
Oh I feel your pain. I am not having anymore Covid jabs. I am going to take my chances. I can’t go through what you and others seem to be experiencing. I too haven’t felt well since my one last year. I hope your symptoms abate very soon. xx
Which is worse the short term effects of the jab or possibly a Covid illness which can be severe still as well as the risk of long Covid? It's important always to balance the risks of each.
Each to their own eh?
The trouble is ….the effects of the jabs aren’t necessarily short term….I had horrible side effects to jabs 1&2,,,I did go on to 3&4…..then I had Covid, & for me it was far less stressful than the vaccine after effects.
With my rheumy’s appoval, I’m sticking at 4 jabs.
Good for you. I was so concerned getting any jabs after I did in-depth research reading medical journals on what it can do to my immune system which is already messed up. I have RA and before finding RA drugs that worked I was in the worse flare for months and months. I got a new RA Dr and she finally got the flare under control. I never want to experience a flare like that EVER again! So I decided against the Covid shot. I had Covid during the height of Covid and was sick in bed for 2 weeks. Slept mostly. Then had it again when it was called Delta. That time it was like having a cold and I was better in 3 days. I think my body fought it off so easily because my body made its own antibodies having it the 1st time. I am 64 year old and in pretty good shape other than having RA and after finding out even more about the jab and how ineffective it is in preventing Covid I am so glad I made the right decision not taking it.
Golly…..I certainly don’t want anyone to not have their vaccination because of my reaction! I’m grateful to have the protection against what could be far more serious than an RA flare….however, each of us could ask advice from our Rheumy team if we are unsure.
Please do not feel you have swayed my decision. I made that myself a while ago after feeling so Ill after the last injection. X
Thanks for reassuring me! X
I had the most painful, longest flare ever for months and months! I never, ever want that to happen again! So much high dose of prednisone for over a year I got man made Cushing syndrome. No thanks. I made the correct choice in not getting jabbed. To each their own.
I am not saying that this is the case with you, but it is always worth keeping in mind with any vaccination that it doesn't protect you straight away. That means it is possible to get flu straight after the vaccination for flu. I have heard people say they no longer have the flu vax because when they get it they get flu straight away. So I point out to them that they were in a crowded surgery waiting for the vax, it is just as likely that they picked something up there rather than getting a reaction to the vax.
Just something to keep in mind.
We must also keep in mind Vaccinations do not stop you catching whatever it is you’re being vaccinated against.
The idea is that your immune system will have been alerted and will hopefully react quickly to which ever virus you might pick up & ensure you only get a mild dose of whatever,,,,not that you will never get …Flu,.covid or whatever a vaccine is directed at.
So once you have had your vaccinations, don’t put caution aside, you still need to be alert.
Had my jab on Friday and felt fine. Saturday woke up in agony with ribs hip knee aching! Felt really rough over the weekend but a bit better today! Is the cure worse than the ailment?? Just don’t want covid again as it makes me very ill. Take care🎢 how would I be without the vaccine support I wonder? Probably not here! 🥳💜
Had my 8th just a sore arm for a day. I did stop my MTX will restart next week
Had my eighth jab. Sore arm. Took a couple of paracetomol and felt better. I still remember the fear and deaths before we had vaccines and at that time any amount of discomfort would have been as nothing, in order not to end up on a ventilator or worse. You'll guess I'm very pro vaccine. But I have close friends who "wouldn't touch it with a barge pole".
Hope you recover soon. My Nurse said it's just some people's immune system make a fuss 😀
Wow, how many Covid jabs are you allowed to have over there? I’ve had five, the last being Dec last year and we aren’t allowed anymore.
TBH I wouldn't be having anymore if I was you because it sounds like your immune system is over reacting due to over vaccination of the MRNa vaccine. You need to report your reaction online on the yellow card system. Did the GP do an ECG?
Thank you for your reply, however I’m happy with the thorough check I had with my GP and, as of this morning, reassurance from my rheumatologist.
Hi , So sorry to hear you are suffering ....I have been in a constant flare since spring covid booster back in May! ...5 days after taking it I had bad rash on neck & chest , swollen feet and hands, very fatigued .....I was considered to be in remission before the vaccine and was just reducing methotrexate .....now I'm on steroids and increase of methotrexate along side biologic.
Its so totally frustrating , The nurses at the hospital (rheumy clinic ) said several people have had this reaction ... I'm seeing them again on Monday , I haven't taken the latest covid vaccine or flu jab as need to get this flare under control , its all so upsetting isn't it , and hardly anyone wearing masks.
Wishing you a speedy recovery xXx
You too, Sunshine. Fingers crossed you see light at the end of the tunnel very soon.
I feel so bad for you. I myself choose not to get the jab because i did research on how it interacts with immune systems. Prior to Covid coming around, I had the worse, longest flare for months and months with mega doses of prednisone for a very long time. Actually got man made Cushing syndrome from all that prednisone. I never want that pain in both wrists and shoulders for months and ever again. Could not even turn the faucet on! That’s why I decided no jab for me. Had Covid in the height of the original Covid and was in bed so tired for two weeks, not really a breathing issue it was mostly in my stomach and so nauseous. Slept and slept and slept. Then later got the Omnicron version which was like a cold. No issues.
Hi, I had Pfizer jab and my flu last weekend, arms are really hot. swollen and painful, I have been really lightheaded and very sweaty and hot too x
Look at it this way….if you tell an immune system 7 times…to look out there’s a virus about….then nothing happens…who can blame it if it’s told an eighth time and freaks out?
Hope things calm down soon.
I had I couple of Moderna ones that wiped me out for 2 days. I didn't have any reactions to Astra Zeneca, but boy do I remember the Moderna ones!
But we HAD them and (hopefully) were therefore better protected!
Yes I'm due another one soon, but don't know which one it will be I don't know.
from what I hear and read on here, it would seem to be mostly Pfizer being given this time around
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