low neutrophils: Sorry I think I’ve posted in wrong... - NRAS

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low neutrophils

Dancing69 profile image
9 Replies

Sorry I think I’ve posted in wrong place/person don’t usually come on this site . It’s a question re neutrophils my blood test was 1.8 and Rheumatology asked me to stop meds for 2 weeks .

I’m on Sulfasalazine 1g daily this has happened about 6 times over last 5 years .

Also I sometimes have anaemia flagged up after blood tests.

Any advice ?

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Dancing69 profile image
Dancing69
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9 Replies
KittyJ profile image
KittyJ

I think you’ve posted in the right place 😊 I think it’s quite common to get the odd blood test result that is out of range but stopping meds like you’ve been told has worked for me. Just keep an eye on things and flag it up if you’re concerned.

Wobbies profile image
Wobbies

My neutrophils are always about 1.8 and recently went down to 1.2 and was just warned I might have to stop meds but continue for the moment. What type of anaemia have you. I have anaemia of chronic inflammation and have had for a few years - no treatment. Not sure if that helps you but type of anaemia matters.

RA64 profile image
RA64 in reply to Wobbies

is it possible to find out what type of anemia one has. I have had low iron levels for past 4 months. how do I find out which type please.

Wobbies profile image
Wobbies in reply to RA64

I have access to my test results online, and usually the doctor puts a comment on the results and says what type of anaemia it is and what needs to be done. If you don't have online access I think you can get it through the NHS app but I emailed my surgery to ask for access to my records and they gave me a username and password. I track al my results as I am not sure that anyone else does.

francko profile image
francko

Do you track your blood work numbers so that you see any trends? I graph mine to look at any anomalies i.e. when I have vaccines, colds, etc. My neutrophils and WBC count will usually go up in those cases. My normal for neutrophils is 1.4 but it's always been low even before I started with RA.

RA64 profile image
RA64

sorry to hear that. I have had the same issue with low iron levels . have to take supplements regularly.

Doughnut61 profile image
Doughnut61

I am on Sulphasalazine too, my neutrophils are always low. Was told that not to worry unless they go down to 1 or under? Although I do not suffer with anemia 🥰

quatjen profile image
quatjen

Hi Dancing69, I’ve had to pause leflunomide initially for 2 weeks my neutrophils have dropped to 0.89 my next blood test was 0.84 😳 I’ve been on imarldi for 10 weeks and isn’t thought to affect bloods, luckily it’s working and haven’t gone into a flair, my next rheumatology appointment is in 5 weeks, hopefully I can restart leflunomide, just keep a good hygiene routine and avoid anyone who’s unwell, I do have anaemia but my blood test was a normal 4.58 for RBS and my white cell count is low 2.78, just try and eat healthy lots of veg and hopefully yours and mine will recover, I’ve just looked at my blood test for October when they halved my dose, it was 1.70 then, I have a feeling, although it’s been good for my joints I don’t think I’ll be going back on the leflunomide anytime soon. Good luck and hopefully yours will recover soon, all the best Jen.

weathervane profile image
weathervane

mdpi.com/2072-6643/15/9/2145

Might be of interest.

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