Carpel tunnel syndrome : Hi hope everyone is enjoying... - NRAS

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Carpel tunnel syndrome

Vonnie10 profile image
8 Replies

Hi hope everyone is enjoying this lovely weather and pain free, me however its never ending lately my question i is CTS a complications of RD and is it a indication of your disese not been controlled it's back and forth with my clinic and who have all my das score wrong so it looks like my das isn't so bad when infact it at the high end will.be speaking to nurse agun on Tuesday re das score I have a ulta sound on the 22st and occuphealth on the 28th can't come quick enough this as gone for nearly 3 months.

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Vonnie10 profile image
Vonnie10
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8 Replies
rmros profile image
rmros

My understanding is that CTS is triggered by something causing the carpal tunnel space in the wrist to narrow, putting pressure on the median nerve. So inflammation in the wrist could be a cause and that's why it's relatively common in inflammatory arthritis.

Vonnie10 profile image
Vonnie10 in reply tormros

Irs so painful I hope it settles quickly

flowerlover profile image
flowerlover

My GP wanted me to have surgery on both wrists even though a steroid injection in one wrist had given instant relief (temporarily). I had already been referred to rheumatology & they were sure that the CTS would go as soon as my RA was under controlThe decider was an ultra sound on both wrists, almost 18 months down the line! I was by this time on Prednisolone to allow me some relief from the pain - I had to stop taking it prior to US as it masks the inflammation. I was already on methotrexate & hydroxy so the decision was taken for a biologic. I was started on Imraldi early 2020 & haven't looked back. I also wear splints on both hands at night & will continue to do so.

I felt I couldn't go on much longer. Please ask for an US scan. The longer the CTS goes on the more risk for permanent damage - my left hand has been damaged & is very weak with some bent fingers. Good luck

Vonnie10 profile image
Vonnie10 in reply toflowerlover

I have a US booked for the 21 St June due to my ra flaring they want to see of its innflamation before deciding if my toclizumab needs changing I've got splints had to wear them of a day time also pain is horrible.

Gymcactus profile image
Gymcactus

Worst pain ever, I sympathise with you, but as soon as Meds started working my carpel tunnel disappeared and have had no problems since, now 4yrs on.

Vonnie10 profile image
Vonnie10 in reply toGymcactus

Mine all resolved for 3 plus year on tocilizumab but 3 months ago .rhematoid kicked off clinic want a us before they'll change toc looking for innflamtion bloods are normal but this carple came on this week gp put me on coxib 6 weeks ago its was slowly increased to max dose and I thought 2 weeks ago things were finally settling so stopped the coxib on Monday to see if this drug was actually doing its job slowly all the stiffness as returned so stated coxib again and now carpel i joined in just to add to the misery of it all t's going jn my left hand as well as my right can't cope every task is a nightmare . Hate this disease.

Miasnana profile image
Miasnana

CTS was one of my first sign of ra the pain was very bad and had to beg gp to give me steroid injection despite him saying he hadn’t given them for quite sometime. Eventually I had an operation on both wrists by nurse practitioner at my local hospital, thankfully I have not had that level of pain in my wrists since. Like a lot of people have said on this forum ra just keeps on giving.

Vonnie10 profile image
Vonnie10 in reply toMiasnana

It's a devil isn't it especially when it flares up had a steriod injection 3 months ago didn't help in anyway ive got worst infact so I'm at the mercy of a US to see if i have innflamation my bloods are all normal doesn't fit into the criteria for a change of biological drugs so its a waiting game for me. I have appointment with OT also everything is so long winded nightmare .

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