Recurring shingles : Hi all,gone down with shingles... - NRAS

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Recurring shingles

Jeremycfc profile image
13 Replies

Hi all,gone down with shingles, third episode in five months feeling lousy, I'm on sulfasalazine and mxt when I saw my consultant in January ( which I had to pay for privately) he suggested the possibility of switching to a biologic as the next step,he did mention one but i can't remember which one,wanted to ask what drug we're any of you good people switched to when methotrexate kept setting off infections, thanks and all the best Jeremy

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Jeremycfc
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13 Replies
medway-lady profile image
medway-lady

I was prescribed Acyclovir after Shingles to stop it returning until I could get a vaccination. So I’d suggest you ask for a that type of thing if the RA med is working well. If not then it’s pretty much pot luck as they can make us more susceptible to viruses etc. Even with the vaccine it’s still possible to get it again so I was told to keep a pack of Acyclovir in the cupboard. I hope that helps.

Jeremycfc profile image
Jeremycfc in reply to medway-lady

Hi,thanks for your reply, taking Acyclovir, usually takes me about a week to feel better,I'm hoping to get something more targeted for the RA ,here's hoping all the best 👍

medway-lady profile image
medway-lady in reply to Jeremycfc

No I took it at half dose for years after the first bout of Shingles, because I was hospitalised with it.

KittyJ profile image
KittyJ

Biologics can make us more susceptible to infections so changing from mtx for that reason might not work. NRAS have a publication about the medicines used for RA so it might be useful to look at that for when you next see your rheumy.

Jeremycfc profile image
Jeremycfc in reply to KittyJ

👍

Green230461 profile image
Green230461

I was put on humira. It worked for nine years. Now on baricitinib good luck

Jeremycfc profile image
Jeremycfc in reply to Green230461

Thanks 😊

Seatgeorge profile image
Seatgeorge

I got switched to Benapali seems to be working fine good luck

Jeremycfc profile image
Jeremycfc in reply to Seatgeorge

Thank you 😊

RAexperiences profile image
RAexperiences

i hate to break it to you but i was fully vaccinated against shingles and got on a new biologic (abatacept) and got my first shingles attack. It was a very mild attack however so wuiet manageable. So not sure a biologic will protect you from attacks. That must be miserable. Best wishes.

Jeremycfc profile image
Jeremycfc in reply to RAexperiences

Thank you, looking like my hope's were misplaced all the best 👍

Angels54 profile image
Angels54

HI , I switched to Abatacept and was ok .

Jeremycfc profile image
Jeremycfc in reply to Angels54

Hi thanks for your reply, have spoken to the nurses and they said that I've no chance of a biologic because my RA is well under control with my current meds,hey ho hope all's well with you all the best Jeremy 👍

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