Morning all, hope the sun is shining for you like it is here.
Been on this site for some time but first blog so please bear with me. Had to come off MTX 25mg injections about 8 weeks ago due to chest pain and feeling breathless at times.After 5 weeks of stressfull appointments at rapid access,cardiology,breathing clinic plus 2 lung x-rays and a lung scan i was allowed back on MTX.
By this time both knees were like footballs and so painful , my rheummy suggested i have them drained and injected,had this done more times than i care to remember so didn't think twice.This was done 3 weeks ago on the wednesday and were still painful but that is useually the case so wasn't concerned,little did i know!!!
On the sat. morning i had a call from my rheummys registra to ask if i was ok and how were my knees ? well alarm bells started to ring, first time this has ever happened in the 36 yrs of having RA.Apparently the fluid from my right knee showed some kind of bug that they couldn't identify,so he gave me his mobile no. and said to call him if i was concerned about any changes swelling etc.
On the mon. he called me back over to the clinic and said that they wanted to drain off more fluid to send to the lab. and do some culture bloods.I was reluctant as right knee was still painful and felt sore.Knew it was sensible so agreed and then limped off home.Didn't hear back so i thought ok this is just a blip so put it out of my mind although i felt stangely unwell.
Well nothing is ever easy with this RA malarky is it !! low and behold on thurs. night a cluster rash appears on r/knee ,first thought was infection although it stung like when i had chicken pox at 43.Managed to get an emergency app. with gp next morning and yes you guessed shingles :/ on my knee ?
So after a phone call with rheummy i'm now off MTX again!!!
GP put me on Aciclovir 400mg 5 times a day and told me to go back if i was concerned at all or A&E over the weekend.
So sitting here tapping away feeling sh*t with all sorts of questions going through my mind like this is the first time my knees have been injected since being on MTX 2 yrs ago and shingles would not have shown up in the tests they did apparently.
Would appreciate any thoughts or experience on all of this and thanks for reading.
Take care Beth 48 xxx
I can just send you love& gentle hugs, I have no wise words for where you are. I hope you get all the help you need to feel more comfortable very soon. Its very scary with the drugs we take & our reactions to them.
Sun is out here by the sea although clouds are looming, gulls are noisy!
Love Alison x
Thanks have a lovely day xx
Beth all i can say is get better soon. I am having breathing problems since xmas have been on and off mtx and then i was off it when i had my revision done in may. Now back on it,for how for i don't know. I am having breathing problems,but how much is done to being overweight i don't know.
Sending hugs your way. love sylvi.xxx
Hi Sylvi, thanks for that
I seem to be having so many episodes that come to no conclusion like the breathing saga and one health issue overlapping another without getting the first one sorted.I could write a book on it,wouldn't that make depressing reading lol.Wasn't told to come off the sulfa.but having looked at a couple of web sites i've stopped that for a few days too to give my system a bit of a rest.
The sun is out in Rugby hope it is for you.
Beth your only just down the road from me i live in bulkington. How is that for coincedence. Like you i take a fair few drugs and there are times when i feel like throwing the lot in the bin. Which hospital are you under? I am at the eliot,but my dr works from walsgrave. sylvi.xx
Hi again,yes i knew you were near when you mentioned Walsgrave,my rheummy is there too but i useually see him at St.Cross in Rugby.I go over to cov. if there are any issues outside of his clinic hours here.I'd rather not give names on here but pm anytime you want to talk about anything to do with the dr's or hospital.
Just ventured out for a walk,have been told to rest but find it so hard and frustrating.Knees are playing up now so will have to rest ...
Me too beth,i get so frustrated sitting down. I end up getting told if i overdo it,i know their hearts in the right place,but boy does it get me down when i see things i used to do and now it is left to others to do. I get told off if i do anything like this morning i put the washer on and got it in the ear as there wasn't a full load,i put it on as there was a good chance i would get it dry and i have and i have ironed it as well.
You will have to let me know who your dr is mine is dr chaudariy, lovely man.
Beth what can I say? Rest up, take the medicines and watch the rain from the comfort of your own window. It's frustrating as you say never to get the first problem dealt with before a new one takes over. It will pass but how quickly depends on you doing as the doctor ordered. Take care my dear. Thinking of you and sending hugs. Xx angie
Thanks for your comments Angie.
Take care Beth xx
NO experience of this at all Beth, never heard of shingles on your knee. Are they making sure that it is not spreading elsewhere?
Take it easy and i wish you the quickest recovery.