Morning all, hope the sun is shining for you like it is here.
Been on this site for some time but first blog so please bear with me. Had to come off MTX 25mg injections about 8 weeks ago due to chest pain and feeling breathless at times.After 5 weeks of stressfull appointments at rapid access,cardiology,breathing clinic plus 2 lung x-rays and a lung scan i was allowed back on MTX.
By this time both knees were like footballs and so painful , my rheummy suggested i have them drained and injected,had this done more times than i care to remember so didn't think twice.This was done 3 weeks ago on the wednesday and were still painful but that is useually the case so wasn't concerned,little did i know!!!
On the sat. morning i had a call from my rheummys registra to ask if i was ok and how were my knees ? well alarm bells started to ring, first time this has ever happened in the 36 yrs of having RA.Apparently the fluid from my right knee showed some kind of bug that they couldn't identify,so he gave me his mobile no. and said to call him if i was concerned about any changes swelling etc.
On the mon. he called me back over to the clinic and said that they wanted to drain off more fluid to send to the lab. and do some culture bloods.I was reluctant as right knee was still painful and felt sore.Knew it was sensible so agreed and then limped off home.Didn't hear back so i thought ok this is just a blip so put it out of my mind although i felt stangely unwell.
Well nothing is ever easy with this RA malarky is it !! low and behold on thurs. night a cluster rash appears on r/knee ,first thought was infection although it stung like when i had chicken pox at 43.Managed to get an emergency app. with gp next morning and yes you guessed shingles :/ on my knee ?
So after a phone call with rheummy i'm now off MTX again!!!
GP put me on Aciclovir 400mg 5 times a day and told me to go back if i was concerned at all or A&E over the weekend.
So sitting here tapping away feeling sh*t with all sorts of questions going through my mind like this is the first time my knees have been injected since being on MTX 2 yrs ago and shingles would not have shown up in the tests they did apparently.
Would appreciate any thoughts or experience on all of this and thanks for reading.
Take care Beth 48 xxx