Sulfasalazine question

Hi I'd give the nurse a call and ask her about the symptoms you describe, they could all be side effects. When I was on Sulphasalazine many years ago I had a really bad reaction to them, plus I became very lethargic and weepy, had to stop taking them after about 10 weeks.

Give her a call it won't hurt to ask advice.

Hope you feel better soon.

Beth xx

Thank you Beth- Just been reading about your bad time on sulfa.

I think my nurse get a bit sick of me, that's why I'm grateful for this site.

She's always moaning that she is rushed off her feet, and patients can be such a nuisance- she insists that i am not- but it does not stop you thinking that you are.

Im having the steroid injection Friday- she hummed and r'd about me wanting the numbing cream (as im needle phobic) so I think she has not got much patience for folks like me

Thanks for you post xx Caroline xx

Hi, i had dizzy spells and headaches too when i started on it but was told to try to continue as they would settle down and they claimed it would really help my RA, it didnt but everyone is different, but was warned that takes a while to kick in. Maybe give it awhile longer and get your thyroid levels checked too, take care.

Hi

I've been on sulphasal for many years; it does take a few months to do anything and its more to slow down RA - so although you may not feel much benefit, it can be doing its job. I came off mxt (soooo sick affter 5 years of it working really well) and onto sulpha long ago, originally twice daily, but cannot tolerate the night dose-it leaves me with a metallic taste in my mouth. What are you on for pain relief? Your steroid injection should boost you over your bad spell....I used to have reducing doses of steriods (tablets) when I was younger to help me manage with two children-they were my lifeline!! Unfortunately nowadays they are not so easily available for me. Hope you soon get some relief.....ALWAYS pester for help; its your body/life! All the best.....hopalong

Hello Caroline, I am too on sulphasalazine along with my methotrexate. I suffer with headaches on and off, but the dizzy spells, that I had in the beginning, have all disappeared ( fingers crossed).

I keep going with the meds, and have felt better on both, I have little or no stiffness now, but can not seem to shift the pain !!

Good luck to you, hope you feel better soon.

Jo x

Thanks Jo

Have you been on both drugs for a while? I was on the meth, seemed to do the trick but we are all diffrent- I feel like a zombie- comatosed, weird. On the sulfa- I also noticed (tonight) purple thread veins on my chest-and shins. Golly dont we go thru it

Take care xx

im on sulfasalazine and when i started i suffered with dizzy spells , headaches, and real bad nausea. on the plus side i lost 2 stone without trying as i could hardly eat anything. i still get the odd headache and dont have a big appetite anymore. i was told it takes 3-6 months to feel the full benefit.

Why did you come off MTX (meth) if it seemed to do the trick Caroline? I tried Sulpha last year but had a really bad reaction to it so was forced to come off. It made me feel all the same things as others on here have experienced plus a swollen neck and painful ear and an all body itchy rash that started as photolight sensitivity. I have no reaction to the MTX but haven't really got a clue if it's doing the trick or not?! TTx