Having to put Benipali on hold.: Advice from Specialist... - NRAS

NRAS

36,743 members45,436 posts

Having to put Benipali on hold.

Jackie1947 profile image
4 Replies

Advice from Specialist Nurse at the hospital to stop Benipali until I've seen the Gastroenterologist and had a colonoscopy. Recent CT scan showed Diverticulor disease and calcification of the Pancreas.The stomach issues 4 months after starting Beni. Coincidence? Also it's news to me that biological meds can effect the gut also having RA. I ended up in A&E on Sunday with terrible stomach pains. My RA consultant has been messaged so hope to get more information when the Specialist Nurse rings later. I just hope my appointments are soon as they are marked urgent . Since being on Beni for last 13 months my RA has improved remarkably. Anyone here been in the same position?

Written by
Jackie1947 profile image
Jackie1947
To view profiles and participate in discussions please or .
Read more about...
4 Replies
AnnieJ123 profile image
AnnieJ123

I have gum disease despite good dental hygiene and have suffered from SIBO for years. I think many with RA have bacteria in the saliva and gut that cause inflammation. If they sorted this out we would all be better. Good luck.

Jackie1947 profile image
Jackie1947 in reply to AnnieJ123

RA and gum problems yes but I have no gum problems and once thought as IBS for many years is DD.

oldtimer2 profile image
oldtimer2

It takes many years for diverticula to develop in the gut and it's a very common finding as you get older. Common things occur commonly!

Keep in mind that just because things happen at the same time, one is not necessarily causing the other, however much our minds try to make sense out of random happenings.

Jackie1947 profile image
Jackie1947 in reply to oldtimer2

It was mistaken for IBS until recently also it's generic as that makes 3 of us in the family. Pancreatitis I don't even drink or smoke 😀

You may also like...

Medication put on hold

surgery has not been informed either. As I haven't seen anyone for over 2 years for my RA (No...

Benipali

Hi everyone, so I take Benipali once a week and it says it’s got to be stored between 2-8 degrees....

Benipali - Change from Embrel

regarding the switch from Embrel to Benipali in the next couple of months. Like many, she received...

Puts things into perspective

My specialist nurse noticed I was dragging my leg and recommended I saw my GP. A lot of time has...

Still sitting on hold!

June 27. Since no RA meds did a cleanse. I have been drug free for nearly three months. I am in an...