New job going well but I am feeling so painful and stiff in my fingers knuckles and ankles and feet !!
Bloods tomorrow for me and I’ve been in bed at like 8pm sometimes earlier for the past week and half !!
Feel like I’m struggling a bit again after my euphoric week of feeling all good !! Maybe done too much too fast !!
Banking some spins over the next few days !!
And the house is just a mess !! Kitchen half done but waiting for worktops and tiling ! Flooring to be done in lounge but walls need to be striped ! I don’t have enough time or energy that’s for sure
Ohhh how things have changed ! I just can’t get used to feeling likenthis ! I try and try and convince myself I am
Dealing with and then I go downhill and realise I’m just not the same person
And massive rant incoming !! No one ever. Ever !! Contacts me to see how I’m doing !! It’s like yiu don’t want to go for. A meal anymore so not bothering !! I’m learning who my true friends are that’s for sure !
Oh what a mixed mood I’m in xx prob cos I hurt ! I’ll feel better tomorrow x
Sorry for the rant xx
Written by
Gottaloveastaffy
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Hopefully, once the work in your house is sorted you'll feel better but with the stress of it all and holding down a job too, I'm not surprised you're feeling the way you do. Glad to hear the job's going well. x
I’m so sad that you feel so unsupported but I think a lot of us fellow sufferers feel the same way at some point in our RA journey. Out of all my small circle of close friends only one knows what a struggle life is for us and always asks how I am. I’ve lived with daily pain since my late 40’s and I’m in my late 70’s now. First with Fibromyalgia and then with RA. I’ve lost friends on the way , one told me to pull myself together and stop being a coward when I said no to tap dancing classes! Needless to say that friendship didn’t last long. It’s just something we have to accept I’m afraid. I firmly believe that it’s the word Arthritis after Rheumatoid. People think you just have to take a pill or any other weird concoction and you’ll be better. If only! I’m so sorry your feeling down, I hope things feel better for you soon. I think we all have to learn to pace ourselves and not overdo things. That is so difficult to do when you are so young. All the best.
Tap dancing.....unfortunately it is the kind of 'advice' that comes our way with great regularity. Have you tried joining the local walking group ? What about yoga ? Aquarobics ? When I struggle to walk from my house to my car.
I hate saying arthritis. The number of times I've heard stories of their grandads big toe or something that is 'the same thing' I could scream. It's hard to be polite sometimes.
A neighbour has just been round and told me I have RA because I was hairdresser!! She looked completely blank when I said it was an autoimmune disease. She thought I just had a bad back from bending forwards a lot! I have decided I’m going to call it Rheumatoid Disease in future.
I'm not rude to people making uneducated or uninformed comments, but I don't accept their unsolicited comments either. I just say it straight. I say something like unfortunately that's not correct, I have a complicated diagnosis of autoimmune origin, involving my full body. I am on some of the most advanced medication available worldwide and under the care of 3 consultants in one of the leading Scottish Hospitals, would you like to know more ? Eyes glaze over....often, but not always an apology follows. I fail to understand why people offer medical advice when they are ignorant of human biology or diseases process, yet they would never tell a plumber how to do their job.
But I really don't think people offer the same uneducated, banal advice to trades men, dentists, accountants and so on as they do people with medical conditions. I have highly educated friends who regularly offered comment on my health, one even brought me antiiflammitory over the counter meds bought in Australia somewhere, people do not do that with others.
Hi G! I ‘liked’ your post, not because I like how you’re feeling but I think this can resonate with so many on here. You certainly have a lot on your hands but know it’s impossible to do it all at once. You just have to divide it up into doable chunks and get plenty of rest between. As for the ‘friends and relatives’ 🙄 Nobody understands ‘only a bit of arthritis that everyone has’. You either have to tell it as it is or ignore those that fall by the wayside. It’s a fine line we tread but sadly, that’s our life. You can have a good rant on here where everyone understands. xx
Nothing wrong with a rant. Big hug. I hate my fatigue just every day waking up and still shattered just does my head in. Anyway back to the sofa I go been up 3hrs need a quick nap!
I think even if I were without RA I'd find starting a new job pretty draining, its the whole mental side too getting to know everything I think as well as the physical.
You're spreading yourself a little thin at the moment by the sounds of it, it's cold and dark by 8.30 anyway You're not missing much by going to bed early 😅
I think you're awesome with everything you've had to deal with, you made a hard decision to leave your old job and with your husband being poorly etc.You should give yourself a pat on the back (probably snap something so that was metaphorical ha ha ) .
Just sending those supportive and warm wishes of mine to you. Some days we are on top of things and other days it's like being on the big dipper and the waltzers at the same time and you just want to get off. Life can be tough enough as we know, but when you throw RD (and co) into the mix it takes on a new and different twist and turn. xxx
I'm sorry you feel so unsupported. You do have such a lot on. I just could not imagine doing anything like you are doing, I met a friend yesterday for a coffee and I'm completely wiped out this morning. Once the house is sorted hopefully things will settle down for you.
Hey there sorry things are not good. HU is great but sometimes you just need to talk to someone. Our Here for You services puts you in contact with one of our trained telephone support volunteers who has RA so you can have a chat. You can find out more on our website and register for a call nras.org.uk/resource/here-f... take care of yourself.
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So tired and utterly fed up
Really tired of this constant horrible pain.
So Tired
