So tired and fed up with life at the moment... - NRAS

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So tired and fed up with life at the moment...

sylvi profile image
41 Replies

Well here i am feeling sorry for myself because i am so tired and exhausted all the time. This year hasn't been a easy one for me with my health. Hae had my toes in my left foot straightened ans though it is 8 weeks post surgery they still swell up and can be hot and sore. Which comes down to the fact do i have the other foot done. The surgery went well which is good news.

My back and neck are not getting any better and i am finding it harder and harder to do things. I am so exhausted from not feeling well not being able to do anything because of all thats wrong with me. My chest has decided it wants to join the party as well and i am struggling to breather as well. My fingers feel like sausages most of the time. I feel constantly tired and so exhausted. We are going away next Monday fr a week in Skegness. I just hope i feel bright enough to enjoy it. Sorry fo this pitiful offering ,but it is how i feel today sadly.

One piece of good news is i am having my hair coloured again.xxx

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sylvi
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41 Replies
Mmrr profile image
Mmrr

sylvi, it's okay to feel down , you have been through such a lot and yet remain so cheerful most of the time. You do inspire me and I love reading your posts . I'm sorry to hear you are not so good just now, it is probably best not to make decisions about further surgery now. Feeling so low will pass and you will move on. Thinking about you in the meantime and do enjoy the little perk up having your hair coloured will hopefully bring you.

Vonnie10 profile image
Vonnie10

Sylvi you’ve got it so tough I hope and prey your moods lifts for you, your so colourful it’s hard to see you down , please god make silvi feel better x

Elswick profile image
Elswick

Sylvia what ever life throws at you your always positive I admire you sending you a MASSIVE huge x

Sorry you feel so manky. I hope your hair is a fab colour and lifts the spirits of all in Skegness and you feel better for going.

Doughnut61 profile image
Doughnut61

You have to believe my darling x Gentle hugs to you 🌷🌷🌷

Shalf profile image
Shalf

Huge hugs Sylvi ! ♥️ Great re hair! Hope they pamper you with a relaxing scalp massage too! X

popsmith1874 profile image
popsmith1874

Sylvi you've certainly been through the mill pet but you always fight your way through things and give us all the strength to fight on and are an inspiration to us all on here, hope things ease for you and you get some respite from the pain you're going through and have a nice break away xxx

VeronicaF profile image
VeronicaF

oh that looks so painful, I can feel your pain,so sorry your having a tuff time, your always so warm and caring to everyone its not fair your having this.

I think it is you who needs some TLC now, so sending you just that (((Big Hugs))and lots of love tha tyou get some rest bite real soon from all the pain and discomfort.

xxx

sylvi profile image
sylvi

Wow thank you all very much for your words of comfort it is so lovely of you all to comment on my sadness. Yes i will feel brighter soon,just today i don't feel very well either. I love you you very much.xxxxx

sjhewitt42 profile image
sjhewitt42

That looks so painful 😖 Hopefully a break and a new hair do will lift your spirits. I feel your pain with back and neck. Big hugs xxxxx

Hi Sylvi

Really sorry to hear that you feel so rubbish. I wish I could offer more than simple platitudes.

Thunkibg of you. X

nomoreheels profile image
nomoreheels

Oh Sylvi. I wish we could all put in for you to have a good week so you'll be able to enjoy your hols. I know you'll try & it is a change from home but just having a lovely time is what I wish for you.

At least you can look forward to having your hair coloured, it doesn't take much effort & it gets you out of the house. x

Fatfingers profile image
Fatfingers

So sorry you're in pain Sylvia, but really hope you have a great time away. X

medway-lady profile image
medway-lady

Come on Sylvi your not down for long, and 8 weeks isn't too bad. I had this done and was still in a surgical boot after having the cast off at 6 weeks. You know it makes sense to think of the long game and you could get the nails done a fetching yellow to match the bruises..... Go away, get enough rest, and the foot elevated as much as you can whilst doing the short walks they recommend as well. And don't forget to use Bio oil on the scars, I promise it does work and your worth new shoes too .lol xxxx

weathervane profile image
weathervane

Hope the sea air will give you a bit of a lift and you start to feel a bit better . Best wishes and have a lovely break 💐💐💐

gwynedd profile image
gwynedd

Sending you lots of hugs Sylvi. You're definitely being put through the mill! Relax on your holiday and take each day as it comes. 🌹

beeckey profile image
beeckey

Awe so sorry to hear you are feeling so down lets hope your holiday gives you a little lift and you get a bit of sunshine that will hopefully lift your spirits.Enjoy your holiday x

nablur profile image
nablur

Getting away should help some. Try to look forward to the trip! ❤️

Parker16- profile image
Parker16-

Bless you this is a really bad condition we all have and I really know how you feel I am feeling the same . I can’t find a drug that my liver likes so it’s a battle. I just keep trying to be positive when around other but I am so tired. Keep your head up and try to enjoy that holiday we are all with you. The break will do you good . Pam x

sylvi profile image
sylvi

Thank you all for your comments. I feel you all know how i feel as you all suffer and i thank you all for taking time out of your life to give me support,even though you are all in the same boat as me in one way or another. Love you all.xxxx

MaryTH profile image
MaryTH

Oh dear Sylvi you are entitled to feel down now and then as we all are. I hope you have a very restful holiday xx

Beviejon1 profile image
Beviejon1

I am right there with you.Everyone I start feeling good/better along comes something else.Seems like every summer something goes wrong with me.This summer I aquired Graves.Been so sick since mid July.Thank God my reumy got me in with an endrocrenologist the 14th of Aug.I'm on meds now and feeling better everyday.I have a trip coming up also.

Stay strong and let's hope better days ahead.

sylvi profile image
sylvi in reply to Beviejon1

Thats good to hear you have the help you so badly need darling. I agree you getone thing then something else comes along. This has been one of the worst years i have had since i got RA 16yrs ago.xxxx

Gnarli profile image
Gnarli

Oh bless you Sylvi. I hope the fresh seaside air and change of scene helps to cheer you up. Hugs

J

Kalimera57 profile image
Kalimera57

You need lots of nice treats Sylvi - some nice foodie ones too.

jessiegirl profile image
jessiegirl

I am hoping today is a good day .you have a lot going on . Try think of just one thing thing you remember made you smile and go from there. look up friends on and chat .make a change just a small one if you can .hugs

Stacymurphy813 profile image
Stacymurphy813

It is times like this where you have to realize you have earned the right to feel stressed and like the world has just crapped on your parade. The thing you need to remember is you are tough and you CAN make it past this!!!!

I am so happy you are able to color your hair. That alone should give you a boost.

Stay tought and know you are not alone!!!

So sorry Sylvi. It is hard to stay up every day, especially when things are usually down. Adding you to my prayer list if that is okay and sending gentle hugs and best wishes...

Stats12 profile image
Stats12

Bless you Slyvi, we feel dwn sometimes this RA business is the pits, you’ve always been so supportive and positive with your posts I think you are allowed a little moan 😜

When I feel meh.. I always think doesn’t matter how bad u feel there is always someone worse off than you 🙈

Chin up n enjoy Skegness xxx

Mummyola profile image
Mummyola

I sort of know how you feel, it’s been four weeks since my op on my broken ankle, I still can’t load bare, the plaster is annoying me, I hate anything wrapped around my legs I can’t pull off when I want too. I have been in floods of tears today feeling sorry for myself. Fortunately the pain has subsided in my foot. But my RH is getting bad, I popped a rib on Sunday, sounds like we are a pair together😁I like you am usually an up beat person, but I think from time to time we all need to have a little bit of self indulgence when we feel down. Don’t feel bad about it, have a good cry feel sorry for yourself, and once you stop pick yourself up and carry on. These things are sent to try us. Hope you feel better today, look forwards to your time away, and remember we are strong and together. Wishing you well. Chris

sylvi profile image
sylvi in reply to Mummyola

Darling i broke my ankle four years ago and i feel for you as i too had six weeks non weight bearing,but two weeks in we went on holiday to Burnham on sea and to say it was fun is an understatement. It was a real struggle. May i suggest you get a knitting needle to scratch down your cast darling. That will help with any itching you may have.xxxx

sylvi profile image
sylvi

Just been to the drs and he agrees with me that i could be anaemic,but until i get the blood test done Thursday he can't give me anything. So he is going to ring me Friday morning with the results as he has given me a form to add to the one from the hospital.If it shows i am anaemic i will be given some iron tablets.xxxx

Mummyola profile image
Mummyola in reply to sylvi

If you are found to be anaemic and they suggest injections, take it from me have something really nice to eat and drink the night before, as your taste buds will be on hold, it took a couple of days to get the metallic taste away.

I was told not to poke anything down the cast as it could be dangerous. As if I should cut my leg being diabetic it could turn septic.

amanda-dunmow profile image
amanda-dunmow

Hi Sylvi

Sorry to hear you are not feeling yourself. Toes look angry, hoping it doesn't take the edge off your week away. Let's hope you get lots of sunshine to lift your mood so you can enjoy your holiday.

Amanda

Flatstanley profile image
Flatstanley

Sylvi, it’s no wonder you are feeling tired and low, you’ve had a lot to deal with lately. Getting ready to go on hols is always exhausting I think, so much to remember etc. I hope you do get away to Skegness, and maybe the lovely sea air will boost your spirits and you feel the benefit. Xxxx

sylvi profile image
sylvi

Thank you all very much for your lovely words.xxxxx

Hessie5 profile image
Hessie5

Try not to worry too much. I know easier said then done. Wishing you well, sending you a big healing hug Sylvi. 🤗 Hessie

sylvi profile image
sylvi

Well it is silly o'clock and i can't sleep due to the pain in my body. Just took codiene and had a cup of tea and i hope i can get back to sleep down here in my recliner.xxxx

Damaged profile image
Damaged

🏝🌅🌃🌉🎆🏞 I wish I could give you a big big hug 🤗 but gentle as well. So very sorry you are struggling . I hope there are better days ahead soon.

Rheumagal profile image
Rheumagal

I’m so sorry things are so tough right now. If I could I would take it all away. So glad you are here to share with us good or bad. It helps us all endure knowing we are not alone and seeing your strength through difficulty. Hugs.

lornaisobel profile image
lornaisobel

I cant really think of anything to say RA is a pig of a thing - I do hope you enjoy your holiday and your hair looks good - I once dyed mine blue - bright blue when I was feeling awful I keep thinking green would be a nice colour - take care x

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