Introduction: Hi everyone, just want to introduce... - NRAS

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Introduction

Honeybee61 profile image
Honeybee61
โ€ข86 Replies

Hi everyone, just want to introduce myself. I'm Debra, I've had RA for 25 years. Been reading your messages for a while. Everyone seems so helpful so thought it would be nice to join in, and hopefully I'm able to help you too! Take care. x

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Honeybee61 profile image
Honeybee61
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86 Replies
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Fra22-57 profile image
Fra22-57

Morning Debra..you do get lots of help on here and I like to read peoples experiences. I have has RA for 9 years but have other complicated health issues which doesn't help.We are all different.At what age where you diagnosed

Honeybee61 profile image
Honeybee61โ€ข in reply toFra22-57

Thanks for the reply Fra22-57. You are right, we are all very different and its such a complex disease. I was 38 when I was diagnosed. Sorry to hear you have other health issues. Hope you're not feeling too bad.๐Ÿ˜ Take care. x

Boxerlady profile image
Boxerlady

Hi Debra ๐Ÿ‘‹๐Ÿ˜„

Honeybee61 profile image
Honeybee61โ€ข in reply toBoxerlady

Hi Boxerlady๐Ÿ‘๐Ÿ˜€

Mmrr profile image
Mmrr

๐Ÿ‘‹ welcome to the forum Debra

Honeybee61 profile image
Honeybee61โ€ข in reply toMmrr

Thank you Mmrr๐Ÿ‘๐Ÿ™‚

patsymay13 profile image
patsymay13

Morning Debra x

Honeybee61 profile image
Honeybee61โ€ข in reply topatsymay13

Good morning patsymay13, hope you are well๐Ÿ™‚

Moomin8 profile image
Moomin8

Morning ๐Ÿ˜ŠIt's a great forum, with amazing support ๐Ÿ’•

Honeybee61 profile image
Honeybee61โ€ข in reply toMoomin8

Good morning , yes, I'm enjoying reading the posts. Its amazing how many are relevant!๐Ÿ™‚

Welcome Debra . As you can see from our posts itโ€™s not all doom and gloom . We do like a chuckle. Do join in the more the merrier x

Honeybee61 profile image
Honeybee61โ€ข in reply to

Thank you J1707. Yes, I will, I like a laugh. You have to sometimes, don't you?๐Ÿ˜€

springcross profile image
springcross

Hi Debra and welcome to the forum. ๐Ÿ™‚

Honeybee61 profile image
Honeybee61โ€ข in reply tospringcross

Thanks springcross๐Ÿ™‚

KittyJ profile image
KittyJ

Hi and welcome Debra, good to have you here, Iโ€™ve had RA for 30 years now. Iโ€™m sure youโ€™ll find thereโ€™s lots of help you can give people ๐Ÿ˜Š

Honeybee61 profile image
Honeybee61โ€ข in reply toKittyJ

Thanks so much KittyJ. Looking forward to getting involved. I can see I've written 25 years I've had RA, meant to be 22!! That's long enough๐Ÿ˜ƒ

Hey Debra ๐Ÿ‘‹

Honeybee61 profile image
Honeybee61โ€ข in reply toMarionfromhappydays

Hi Marionfromhappydays๐Ÿ™‚

Kags1068 profile image
Kags1068

Hi Debra

Just wanted to join in and welcome you! Hope you enjoy the wittering and ramblings (and that's just me)!๐Ÿ˜„ Look forward to hearing more from you. I've had "it" 38 years now (since 14) so basically think I've done my time and it really ought to go away now (putting it politely)!!Still, we can hope, eh?!๐Ÿ˜‰

Honeybee61 profile image
Honeybee61โ€ข in reply toKags1068

Thank you Kags1068. It's lovely to be here with such friendly people! Ah, that must have been so difficult for you at the age of 14. I really do think you've done enough time!! It's such a cruel disease isn't it. ๐Ÿ˜˜

Kags1068 profile image
Kags1068โ€ข in reply toHoneybee61

Haha - thank you for agreeing with me! ๐Ÿ˜ I absolutely agree with you too - it's a bloomin cruel disease. Once it gets it's grip, it doesn't like to let go - grrrr!!๐Ÿ˜‰xx

rounder profile image
rounder

Hi Debra, welcome aboard from another Deborah.......though only ever get the full name at hospital or if my mum is grumpy๐Ÿ˜‚๐Ÿ˜‚.

madme1 profile image
madme1โ€ข in reply torounder

That's like me, I only get Debra when I've done something wrong. I believe that there was a leader called Debra who's mentioned in the bible. It's a name that translates as a born leader. I can't say that applies to me though! ๐Ÿ˜Š

rounder profile image
rounderโ€ข in reply tomadme1

Glad I'm not the only one ๐Ÿ˜…. I don't think I will ever be a leader.....more hobbling along behind trying desperately to keep up these days๐Ÿ˜‚

Honeybee61 profile image
Honeybee61

Thank you! Same here, I'm just Deb to everyone, except my eldest sister๐Ÿคทโ€โ™€๏ธ๐Ÿ˜‚

rounder profile image
rounderโ€ข in reply toHoneybee61

Most people call me Deb too, it definitely feels more friendly.xx

Honeybee61 profile image
Honeybee61โ€ข in reply torounder

It does! I find Debra can sound a little harsh sometimes๐Ÿ˜‚๐Ÿ˜‚

Dilly2 profile image
Dilly2

Welcome ๐Ÿค—

Honeybee61 profile image
Honeybee61

Thanks Dilly2๐Ÿ™‚

sunnyweek profile image
sunnyweek

Welcome Debra good to meet you. Hope you're doing well.

You're another long timer, same here, always good to hear from people how it was before the newer drugs came along. We can always hope it burns out. Enjoy the forum.

Honeybee61 profile image
Honeybee61โ€ข in reply tosunnyweek

Thank you sunnyweek. I'm not too bad at the moment thanks. Hope you're ok too? I've had a long awaited boost having had a steroid injection 6 weeks ago. It was very welcome after almost two years. They don't always work for me, maybe it was the long gap, this one has certainly helped.

I can't imagine how I would have managed without biologics and now JAKs. I'm sure life would be so much more difficult for sure. Nice to hear from you

๐Ÿ™‚

Evie3 profile image
Evie3

Hi Debraโ€ฆ.yes it is a great group with a wealth of knowledge.

Honeybee61 profile image
Honeybee61โ€ข in reply toEvie3

Hi Evie3, its great to know there's always someone to talk to, who know what you're going through and are so helpful here. Thanks for replying๐Ÿ™‚

Sheila_G profile image
Sheila_G

Hi Debra. Welcome. It is a great site for many reasons and you can come and go as you please.

Honeybee61 profile image
Honeybee61โ€ข in reply toSheila_G

Thank you Sheila_G and everyone for the lovely welcome. Hope you are well (as can be!)๐Ÿ™‚

stbernhard profile image
stbernhard

Hello Debra, I am sure that with 25 years of experience you'll be able to help someone. You must have seen a lot of changes in the treatment of RA. I hope yours is well controlled.

Honeybee61 profile image
Honeybee61โ€ข in reply tostbernhard

Hi stbernhard. Yes, things have definitely improved in the 22 years (25 was a typo) I'm now on Bariticinib as well as Methotrexate, although still have good days and bad, I'm managing quite well thank you. Hope you are ok too๐Ÿ™‚

stbernhard profile image
stbernhardโ€ข in reply toHoneybee61

Thank you Debra. I am in remission and self manage well. Keep in touch.

Honeybee61 profile image
Honeybee61โ€ข in reply tostbernhard

I will. Still finding my way around but enjoying it too. Its a very friendly group, just what we all need๐Ÿ™‚

Thingybob profile image
Thingybob

Hello! ๐Ÿ‘‹ from another Debra. I havent come across many people with our spelling of the name. (I know I was named after a 50s film star as my parents were keen film goers ) .Hope you are feeling good. Its great that you are joining the voices on here. Best wishes ๐Ÿ™‚

Honeybee61 profile image
Honeybee61โ€ข in reply toThingybob

Ah hello Debra. Well I was meant to be Pamela but my sister (who was 6 at the time) refused to call me anything but Debra, so I'm told๐Ÿ˜€6 year olds can be very influential, I have a Grandson of that age who can quite easily twist me around his little finger๐Ÿ˜‚๐Ÿ˜‚I'm quite good at the moment thanks, hope you are too.๐Ÿ™‚

madme1 profile image
madme1โ€ข in reply toThingybob

Hi Thingybob, my dad apparently forgot how to spell Deborah so I to ended up with Debra, mum was non to pleased! ๐Ÿ˜Š

Gladders profile image
Gladders

Good morning Debra and welcome to this lovely group.

Honeybee61 profile image
Honeybee61โ€ข in reply toGladders

Good morning Gladders, thank you! It is a lovely group, I'm becoming addicted!! ๐Ÿ˜€

smilelines profile image
smilelines

I like to hear that you have survived RA for 22 years. This gives me hope.

CagneysMum profile image
CagneysMum

Hi Deb, welcome โ€ฆThis group has been a real life saver for me since being diagnosed with RA just over 3 years ago at the age of 56. Had a very lucky life without any major illnesses and then BAM โ€ฆ RA struck in almost all of my joints and I didnโ€™t have a clue what was going on. No history of RA in my family at all. Scared the life out of me but this group helped me cope and start to deal with things. Like yours now well controlled (๐Ÿคž๐Ÿคž) with biologics, methotrexate and hydroxychloroquin.

Glad youโ€™ve joined our merry band xx

Honeybee61 profile image
Honeybee61โ€ข in reply toCagneysMum

Hi CagneysMum, thank for the welcome๐Ÿ™‚ It's such a shock isn't it? BAM is the perfect word for it! My lifestyle completely changed in a matter of weeks. There was no history in my family either. The strange thing is, my brother who is older than me also got diagnosed 10 years ago๐Ÿคทโ€โ™€๏ธ Glad yours (RA) is well controlled.๐Ÿ™‚

Honeybee61 profile image
Honeybee61

Good morning smilelines. It's been a struggle at times that's for sure. I hope you are managing ok at the moment? ๐Ÿ™‚

HamHammy profile image
HamHammy

Hi Debra. I have had RA for 20 years. Welcome to the forum ๐Ÿ‘‹๐Ÿ‘‹๐Ÿ‘‹

Honeybee61 profile image
Honeybee61

Hi HamHammy. It's a long time when you think back isn't it. Thank you๐Ÿ™‚

HamHammy profile image
HamHammyโ€ข in reply toHoneybee61

Time just goes. Mind it went slowly in the first 2 to 3 years till my RA was controlled. I believe the docs r better at reducing this time period now with more research so I have heard anyway

Honeybee61 profile image
Honeybee61โ€ข in reply toHamHammy

I agree! The first few years were a challenge to say the least! I must say to anyone at that stage now, it does get better!! ๐Ÿ™‚

Gymcactus profile image
Gymcactus

Welcome Debra, like CagneysMum I was struck down with RA 4 years ago at age 67, stress related after losing my husband to cancer. Awful time but now coping with meds.

Honeybee61 profile image
Honeybee61โ€ข in reply toGymcactus

I'm so sorry to hear about your husband Gymcactus. I can only imagine how awful it was after such a devastating time. So glad you're coping now. Best wishes to you. x

Happy5 profile image
Happy5

Good to have you join us albeit not for the best reason i.e. being in the RA club ๐Ÿ˜€

Honeybee61 profile image
Honeybee61โ€ข in reply toHappy5

Thank you Happy5๐Ÿ™‚ Yes! I know what you mean๐Ÿ˜€๐Ÿ˜‚

Green230461 profile image
Green230461

Welcome to the RAwarrior group!

madme1 profile image
madme1โ€ข in reply toGreen230461

I love that the RA warrior Group!

Honeybee61 profile image
Honeybee61โ€ข in reply toGreen230461

Thank you Green230461๐Ÿ˜€ ๐Ÿ‘‹

madme1 profile image
madme1

Welcome Debra, you'll find we are a friendly bunch. What treatment are you on for RA if you don't mind me asking. I've just had my first infusion in 3 years on Friday. Had to laugh because one of the nurses, there has now been promoted yo sister! I didn't recognise her because of different uniform and the mask! ๐Ÿ˜Š. I was on, Rituximab, that was going to be changed to Truxima. I never got that one because of infections and delays, then lockdowns. They changed me to Remsima.

Honeybee61 profile image
Honeybee61โ€ข in reply tomadme1

Thank you madme1, you are a lovely bunch!! I've never had such a lovely welcome anywhere๐Ÿ˜€ I'm now on Baricitinib which are JAK inhibitors and are in tablet form, as well as methotrexate. I started on Embrel, that worked well for a while, then Rituximab, Humira, Abatacept.... I suppose its just finding the right one for you. I found I still struggled a bit during lockdown without a steroid injection though. Hope you are getting on well with Remsima?

Mumcon profile image
Mumcon

Hi Debra ๐Ÿ‘‹

Honeybee61 profile image
Honeybee61โ€ข in reply toMumcon

Hi Mumcon๐Ÿ™‚

jojoishere profile image
jojoishere

Hi ๐Ÿ‘‹ and welcome debrajh ๐Ÿ˜€

Honeybee61 profile image
Honeybee61โ€ข in reply tojojoishere

Thank you jojoishere๐Ÿ‘‹๐Ÿ™‚

Plumcrumble profile image
Plumcrumble

Hi Debra, ๐Ÿ‘‹๐Ÿ‘‹๐Ÿ’•

Honeybee61 profile image
Honeybee61

Hi Plumcrumble, ๐Ÿ™‚๐Ÿ‘‹ thank you. x

Bluepegasus profile image
Bluepegasus

Welcome to the Forum Debra, it's helped me a lot over the last few years since I was diagnosed, everyone helps each other. A Forum email pops into my Inbox every morning with questions, answers, experiences, information, happiness and sadness. It's so comforting and helpful to hear about other people's pain, sufferings, solutions and triumphs many of which may coincide with yours, especially when friends, family, work colleagues etc. often just don't get it.

Honeybee61 profile image
Honeybee61โ€ข in reply toBluepegasus

Thank you for the welcome Bluepegasus. Its so lovely that there's always somewhere to "go" should you need to. I remember feeling very alone when I was first diagnosed 22 years ago. No-one that I knew had any idea what it was. Think we've all had the "oh I've got that in my knee/finger/toes conversation๐Ÿคฆโ€โ™€๏ธ๐Ÿ™‚ here, we're all on the same page! All the best๐Ÿ™‚

Wraf22 profile image
Wraf22

Welcome, always good to talk to like minds and make new friends. Take care

Honeybee61 profile image
Honeybee61

Thanks Wraf22. Exactly! Very friendly place to be๐Ÿ™‚ You take care too.

forislava profile image
forislava

Hi Debra:) Iโ€™m quite new too but welcome!! There is no place like this one when you need support for whatever reason! And given the fact you had RA for 25 years where I was diagnosed 2 years ago you are a true warriorโ€ฆ best of wishes from me and thereโ€™s always someone for us here when we need it the most!

Ritaritis profile image
Ritaritis

Hi DebraJH, I'm single with no family and signing up to this site since my diagnosis in March 2021 has been one of my best decisions made for years. We are here to help and support.๐Ÿ•๐Ÿ•

Honeybee61 profile image
Honeybee61โ€ข in reply toRitaritis

Hi Ritaritis, ah I'm glad you've found this group. I find reading through some of the posts, I can relate to to little bits here and there in many of them. This will definitely be my "go to" place from now on. Hope people don't get fed up of me!!๐Ÿ˜‚๐Ÿ˜‚ Hope you are keeping as well as can be๐Ÿ™‚

Honeybee61 profile image
Honeybee61

Thank you so much forislava, that's so kind of you๐Ÿ™‚ hope you are ok. x

Blodynhaul profile image
Blodynhaul

Lovely to 'meet' you Debra . Would be great to hear your RA history & experience sometime. I've had it 24 years, so similar in that way. ๐Ÿ˜๐Ÿ’–๐Ÿ‘

Honeybee61 profile image
Honeybee61

Thank you Blodynhaul. I'm sure between us we'd be able to write a top seller๐Ÿ˜‚๐Ÿ˜˜ Any questions, feel free to ask๐Ÿ˜ƒ

Bethany02 profile image
Bethany02

Hi Debra still a newbie in your terms lots of nice people here very helpful

Honeybee61 profile image
Honeybee61โ€ข in reply toBethany02

Thanks Bethany02. I can see that from the wonderful welcome I've had๐Ÿ™‚ hope you're ok๐Ÿ™‚

nanapat61 profile image
nanapat61

Hi Debra - and welcome!

Honeybee61 profile image
Honeybee61โ€ข in reply tonanapat61

Thanks nanapat61๐Ÿ™‚ I'm nana too, I have 2 boisterous little Grandsons๐Ÿ˜‚ hope you are as well as can be๐Ÿ™‚

nanapat61 profile image
nanapat61โ€ข in reply toHoneybee61

We've three amazing grandkids who live close by and have always been a joy to us - well, mostly๐Ÿ˜‚ They're growing up so quickly (youngest is 10) and fast becoming independent young people but I'm so glad to have had the opportunity to spend so much time with them from birth and way before I developed this dratted disease. Enjoy every moment with your little ones as best you can!

Honeybee61 profile image
Honeybee61โ€ข in reply tonanapat61

Thank you๐Ÿ’—

gailyb profile image
gailyb

Hi Deborah, I'm Gail. Like you I liked to read all the messages. They cheer me up. I've been diagnosed about 4 years ago. And recently I was at my lowest, But reaching out to all these lovely people really lifted my sprit. And helped me a lot. X

Honeybee61 profile image
Honeybee61

Hi Gail. So sorry to hear you've had a rough time lately, hope you're on the up? This forum is so lovely and cheery, certainly not all doom and gloom as someone has already said. Let's face it, we all get our bad days and sometimes it really is hell, so having somewhere we can speak and share our problems is fantastic. Take care. x

liveinwoods profile image
liveinwoods

Welcome Debra! This is a great forum. It has given me the kind of information that my doctor doesnโ€™t. It has made me feel less isolated battling RA.

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