Hi everyone, just want to introduce myself. I'm Debra, I've had RA for 25 years. Been reading your messages for a while. Everyone seems so helpful so thought it would be nice to join in, and hopefully I'm able to help you too! Take care. x
Introduction: Hi everyone, just want to introduce... - NRAS
Morning Debra..you do get lots of help on here and I like to read peoples experiences. I have has RA for 9 years but have other complicated health issues which doesn't help.We are all different.At what age where you diagnosed
Morning 😊It's a great forum, with amazing support 💕
Welcome Debra . As you can see from our posts it’s not all doom and gloom . We do like a chuckle. Do join in the more the merrier x
Hi and welcome Debra, good to have you here, I’ve had RA for 30 years now. I’m sure you’ll find there’s lots of help you can give people 😊
Just wanted to join in and welcome you! Hope you enjoy the wittering and ramblings (and that's just me)!😄 Look forward to hearing more from you. I've had "it" 38 years now (since 14) so basically think I've done my time and it really ought to go away now (putting it politely)!!Still, we can hope, eh?!😉
Thank you Kags1068. It's lovely to be here with such friendly people! Ah, that must have been so difficult for you at the age of 14. I really do think you've done enough time!! It's such a cruel disease isn't it. 😘
Hi Debra, welcome aboard from another Deborah.......though only ever get the full name at hospital or if my mum is grumpy😂😂.
That's like me, I only get Debra when I've done something wrong. I believe that there was a leader called Debra who's mentioned in the bible. It's a name that translates as a born leader. I can't say that applies to me though! 😊
Thank you! Same here, I'm just Deb to everyone, except my eldest sister🤷♀️😂
Welcome Debra good to meet you. Hope you're doing well.
You're another long timer, same here, always good to hear from people how it was before the newer drugs came along. We can always hope it burns out. Enjoy the forum.
Thank you sunnyweek. I'm not too bad at the moment thanks. Hope you're ok too? I've had a long awaited boost having had a steroid injection 6 weeks ago. It was very welcome after almost two years. They don't always work for me, maybe it was the long gap, this one has certainly helped.
I can't imagine how I would have managed without biologics and now JAKs. I'm sure life would be so much more difficult for sure. Nice to hear from you
Hi Debra….yes it is a great group with a wealth of knowledge.
Hi Debra. Welcome. It is a great site for many reasons and you can come and go as you please.
Hello Debra, I am sure that with 25 years of experience you'll be able to help someone. You must have seen a lot of changes in the treatment of RA. I hope yours is well controlled.
Hi stbernhard. Yes, things have definitely improved in the 22 years (25 was a typo) I'm now on Bariticinib as well as Methotrexate, although still have good days and bad, I'm managing quite well thank you. Hope you are ok too🙂
Hello! 👋 from another Debra. I havent come across many people with our spelling of the name. (I know I was named after a 50s film star as my parents were keen film goers ) .Hope you are feeling good. Its great that you are joining the voices on here. Best wishes 🙂
Ah hello Debra. Well I was meant to be Pamela but my sister (who was 6 at the time) refused to call me anything but Debra, so I'm told😀6 year olds can be very influential, I have a Grandson of that age who can quite easily twist me around his little finger😂😂I'm quite good at the moment thanks, hope you are too.🙂
Good morning Debra and welcome to this lovely group.
I like to hear that you have survived RA for 22 years. This gives me hope.
Hi Deb, welcome …This group has been a real life saver for me since being diagnosed with RA just over 3 years ago at the age of 56. Had a very lucky life without any major illnesses and then BAM … RA struck in almost all of my joints and I didn’t have a clue what was going on. No history of RA in my family at all. Scared the life out of me but this group helped me cope and start to deal with things. Like yours now well controlled (🤞🤞) with biologics, methotrexate and hydroxychloroquin.
Glad you’ve joined our merry band xx
Hi CagneysMum, thank for the welcome🙂 It's such a shock isn't it? BAM is the perfect word for it! My lifestyle completely changed in a matter of weeks. There was no history in my family either. The strange thing is, my brother who is older than me also got diagnosed 10 years ago🤷♀️ Glad yours (RA) is well controlled.🙂
Good morning smilelines. It's been a struggle at times that's for sure. I hope you are managing ok at the moment? 🙂
Hi Debra. I have had RA for 20 years. Welcome to the forum 👋👋👋
Hi HamHammy. It's a long time when you think back isn't it. Thank you🙂
Time just goes. Mind it went slowly in the first 2 to 3 years till my RA was controlled. I believe the docs r better at reducing this time period now with more research so I have heard anyway
Welcome Debra, like CagneysMum I was struck down with RA 4 years ago at age 67, stress related after losing my husband to cancer. Awful time but now coping with meds.
Good to have you join us albeit not for the best reason i.e. being in the RA club 😀
Welcome to the RAwarrior group!
Welcome Debra, you'll find we are a friendly bunch. What treatment are you on for RA if you don't mind me asking. I've just had my first infusion in 3 years on Friday. Had to laugh because one of the nurses, there has now been promoted yo sister! I didn't recognise her because of different uniform and the mask! 😊. I was on, Rituximab, that was going to be changed to Truxima. I never got that one because of infections and delays, then lockdowns. They changed me to Remsima.
Thank you madme1, you are a lovely bunch!! I've never had such a lovely welcome anywhere😀 I'm now on Baricitinib which are JAK inhibitors and are in tablet form, as well as methotrexate. I started on Embrel, that worked well for a while, then Rituximab, Humira, Abatacept.... I suppose its just finding the right one for you. I found I still struggled a bit during lockdown without a steroid injection though. Hope you are getting on well with Remsima?
Hi Debra, 👋👋💕
Hi Plumcrumble, 🙂👋 thank you. x
Welcome to the Forum Debra, it's helped me a lot over the last few years since I was diagnosed, everyone helps each other. A Forum email pops into my Inbox every morning with questions, answers, experiences, information, happiness and sadness. It's so comforting and helpful to hear about other people's pain, sufferings, solutions and triumphs many of which may coincide with yours, especially when friends, family, work colleagues etc. often just don't get it.
Thank you for the welcome Bluepegasus. Its so lovely that there's always somewhere to "go" should you need to. I remember feeling very alone when I was first diagnosed 22 years ago. No-one that I knew had any idea what it was. Think we've all had the "oh I've got that in my knee/finger/toes conversation🤦♀️🙂 here, we're all on the same page! All the best🙂
Welcome, always good to talk to like minds and make new friends. Take care
Thanks Wraf22. Exactly! Very friendly place to be🙂 You take care too.
Hi Debra I’m quite new too but welcome!! There is no place like this one when you need support for whatever reason! And given the fact you had RA for 25 years where I was diagnosed 2 years ago you are a true warrior… best of wishes from me and there’s always someone for us here when we need it the most!
Hi DebraJH, I'm single with no family and signing up to this site since my diagnosis in March 2021 has been one of my best decisions made for years. We are here to help and support.🐕🐕
Hi Ritaritis, ah I'm glad you've found this group. I find reading through some of the posts, I can relate to to little bits here and there in many of them. This will definitely be my "go to" place from now on. Hope people don't get fed up of me!!😂😂 Hope you are keeping as well as can be🙂
Thank you so much forislava, that's so kind of you🙂 hope you are ok. x
Lovely to 'meet' you Debra . Would be great to hear your RA history & experience sometime. I've had it 24 years, so similar in that way. 😁💖👍
Thank you Blodynhaul. I'm sure between us we'd be able to write a top seller😂😘 Any questions, feel free to ask😃
Hi Debra still a newbie in your terms lots of nice people here very helpful
Hi Debra - and welcome!
Thanks nanapat61🙂 I'm nana too, I have 2 boisterous little Grandsons😂 hope you are as well as can be🙂
We've three amazing grandkids who live close by and have always been a joy to us - well, mostly😂 They're growing up so quickly (youngest is 10) and fast becoming independent young people but I'm so glad to have had the opportunity to spend so much time with them from birth and way before I developed this dratted disease. Enjoy every moment with your little ones as best you can!
Hi Deborah, I'm Gail. Like you I liked to read all the messages. They cheer me up. I've been diagnosed about 4 years ago. And recently I was at my lowest, But reaching out to all these lovely people really lifted my sprit. And helped me a lot. X
Hi Gail. So sorry to hear you've had a rough time lately, hope you're on the up? This forum is so lovely and cheery, certainly not all doom and gloom as someone has already said. Let's face it, we all get our bad days and sometimes it really is hell, so having somewhere we can speak and share our problems is fantastic. Take care. x
Welcome Debra! This is a great forum. It has given me the kind of information that my doctor doesn’t. It has made me feel less isolated battling RA.
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