Olumiant jak inhibitors

[JJJA]

I am just about to start jak inhibitor olumiant baricitinib any advice on side effects and effectiveness would be helpful I have recently been diagnosed with Sjoegens disease I already have RA and fibromyalgia and now have sleep apnea thanks 🙏

[MoniqueB]

I'm still early days with baricitinib (I'm a month in), but, so far, I've found the results very , very good. I've been on an assortment of drugs and this one has been the best for fast results. That said, I am taking baricitinib in conjunction with Methotrexate (daily dose of baricitinib and a weekly dose of MTX). Thus far, I haven't had any side effects, but I am taking a lipid blood test on Monday as is advised. All the best for good results!

[Wannabeabago in reply to MoniqueB]

Are you still on Olumiant? Did you end up with any side effects? Asking as I’m about to try it. Thanks

[Deeb1764]

I too have Ra OA asthma and fibro they hunt in packs AI. Anyway after 2 years of not coping on lots of meds I was put on Olumiant in April and now on week9 . It has been the best so far and for me take pill carry on the day. I can feel the edge has been taken off things but still 4 more weeks to go but I can see a hint of light at the end of the tunnel. Now need to sort the Fibro!Wen I saw a private consultant a week before starting it he said he feels one of the best new RA drugs out there and wished on NHS it could be given out earlier.

[Hidden]

This one worked for me. No side effects. Been on it since September. I wrote a post on It . Best drug I’ve we been on .

[Mermaid11]

I'm also new to this medication, 7 weeks now and like others have said I feel a little better as the weeks go on. I am feeling positive for the first time in 2 years that this medication will give me my life back ❤🎉🤞 I hope you have a good experience on it too, once you start. Let us know how you get on x

[Tottie10]

I started on Baracitinib with Leflunomide in 2018 (after 4 anti TNFs) and while it worked very well I was told last week that I am being moved back to anti TNF as my joints are generally getting worse. I was warned at the start about the increased chance of developing Shingles and was even given a 15 minute session on how to spot the symptoms plus went home with an anti viral prescription. 6 months after starting I got Shingles. Bad enough but would have been worse without being able to take the anti viral so quickly. You might want to ask your GP/ consultant about this. Good luck

[JJJA in reply to Tottie10]

Sorry to hear about this and the advice I see my doctor on Tuesday and will ask about antiviral I’ve had shingles years ago and it’s just awful best of luck for the next dmard x

[ElizabethW in reply to JJJA]

I have been taking Olumiant for just over 3 weeks. I am still getting used to it and not sure what to expect. My rheumatologist had me take Shingrix vaccine (it is not a live vaccine) before starting Xeljanz (another JAK inhibitor) last year. If you have not had shingles vaccine, maybe you should ask about it.

[Madmusiclover]

Miraculous for me. Pop Baricitinib in the search. It’s getting mentioned more and more!

[JJJA]

Thank you for your advice it really helps to know of your experiences ❤️ Xx

[JGBH]

It might work for you, so good luck. It didn’t work for me, and I was diagnosed with shingles on 1st January this year and still feeling the pain and itchiness now. Am now on tocilizumab weekly injections but this too indicates shingles as possible side effects… not feeling great even after my 15th injection. Am worried. The best treatment for me was Enbrel (Etanercept) an anti TNF. It gave me my life back and lasted for 14 years. This has been replaced now by the bio similar (cheaper) Benepali which I understand doesn’t work so well. It looks like bio similar drugs don’t work as well as the original. Hope it will help you.

[Mmrr]

I started on baricitinib and was changed to toficitinib (a very similar JAK inhibitor) due to continued minor viral infections.Toficitinib has been the best med I have been on. You probably won't get the viral infections, best wishes.

[skinnycappuccino]

Hello there JJJA 😊

I've been on baricitinib since 2018 and no side effects at all (just got a mild case of shingles after about a year on it - but someone in here has told me there is actually a vaccine against shingles now?). I'm taking it in combination with leflunomide (20mg).

Before that I was on Simponi (golimumab) for 6 years but sadly after all these years I got side effects and it stopped working as well as before . I was quite worried when I was told to switch meds (I loved Simponi!!) but I'm glad to say it works just as well as Simponi at its best for me.

Best of luck with it and hope it works really well for you!

Best,

Christine xx

[wilbertjellyfish]

I was on baracitinib. I thought I had flu for two months. Was able to function and it helped my arthritis. But I started in in September, kids wen5 back to school so I thought I'd got a cold of them. 6/7 mornings I'd wake feeling crap and have to hug the radiator in work. Paracetamol sorted it but once a week had to go to bed early. Hope it works for you. I tried to cope but it was not really living. On a different J kinase thing now. Don't get above symptoms as often so it's OK.

[Green230461]

Tablet baricitinib is working for me took 12 weeks to start working but I am now six months in and pain in knee has gone!Best of luck with this 🐢 I have had no side effects - yet.

[WillowsMother]

I've been taking Baricitinib for just over 6 months now. I've not had any side-effects, despite being quite sensitive to all the DMARDS. I take it with 10mg Leflunomide daily. I started to notice some real improvements in my knee and hand pain after only a couple of weeks and blood results echoed that. However, after my second covid jab, I went into a massive flare lasting for over 6 weeks. I began to think Baricitinib had stopped working, but 8 weeks on and I'm starting to get a bit better again. I'd definitely say it's worth a try!