Am I just being silly: I am going on a all inclusive... - NRAS

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Am I just being silly

Jennyrenny profile image

I am going on a all inclusive holiday in the winter I have been on sulfasalazine since January 2021 and doing really well would I be really stupid to stay of the medication so I can enjoy alcohol not going daft but having a couple of wines every day

49 Replies

But would you want to risk flaring on your holiday? Has your rheumy told you to avoid alcohol? I’d follow their advice as they know you and your meds, but here’s some info from Versus Arthritis

versusarthritis.org/about-a...

Jennyrenny profile image
Jennyrenny in reply to KittyJ

Thanks kittyJ I only see a nurse at my practice haven't seen rheumatologist since Jan when I was diagnosed the nurse says it's ok in moderation ie 14 units per week but I know I would be having a wee bit more than that I was just thinking if I stopped the medication for I week it wouldn't do much harm I suppose that's not ideal

KittyJ profile image
KittyJ in reply to Jennyrenny

I’d ask your nurse the question you’ve asked us as we can’t tell you whether to or not, we can’t give that kind of advice. Have a good time whatever you decide.

Jennyrenny profile image
Jennyrenny in reply to KittyJ

Thanks kittyj It's nice of you to reply I will ask the nurse and if her advice is to stay on my medication I will heed it I don't really want to go back the way I suppose I could have a couple and then soda water and lime 🤭

AgedCrone profile image
AgedCrone in reply to Jennyrenny

I wouldn’t chance it for the sake of a Hangover ….or worse.If you are comfortably settling on SSZ…let it do it’s job….easing your RA.

If you upset your blood levels ….it could mess up your reaction to the drug & you’d be back to square one.

Be thankful you have found something that helps,,,,& wait for the next holiday to hit the booze!

Jennyrenny profile image
Jennyrenny in reply to AgedCrone

Thanks AgedCrone I think deep down I know your right I was just thinking I could maybe get away with it but probably not

AgedCrone profile image
AgedCrone in reply to Jennyrenny

It’s your pain Jennyrenny….I’m sure you will have a lovely holiday without …oops the alcohol & once you are settled on a drug regime that suits you….you may be one of the lucky ones….like me…who can drink in moderation.But if I go over the top ….even after20+ years…I still wish I hadn’t!

Jennyrenny profile image
Jennyrenny in reply to AgedCrone

Thanks AgedCrone I have not had much alcohol for months now and have really not missed it that much I have been getting my blood tested every week then 2 weeks finally I am now at 2 months and bloods have been steady so my holiday 5 months away the company I am going with really enjoy drinking a lot of alcohol so I will just be sensible and keep within the 14 units at least I can have so alcohol I just wanted to be normal and be able to join my family and have a good time but I really dont want the pain back so I will keep taking my meds and behave myself

AgedCrone profile image
AgedCrone in reply to Jennyrenny

Do what a friend of mine did many years ago ….we were sitting on the windowsill on a very high floor in a hotel in New York drinking-and I knew I should only have one more ….so I went on to just tonic but didn’t mention I wasn’t having any gin …as I was pouring the drinks ….but my friend was knocking back the gin and normally she wasn’t much of a drinker …so I was thinking she’s gonna ofall off the window sill any minute.But she didn’t …& we all went off and met up the next morning ….most of them with terrible hangovers….. but she was as fine as nine pence ….so I said to her how come you drank so much & feel OK?

So she said….Oh . I didn’t drink much…..I was pouring it out of the window!

Everyone thought she was the life and soul of the party …well she was the only one stone cold sober anyway!

Jennyrenny profile image
Jennyrenny in reply to AgedCrone

Brilliant maybe I could do the same my son is a terrible one for saying it will be ok just have another one and I don't argue with him ☺️

Mmrr profile image
Mmrr in reply to AgedCrone

I drink fever tree tonic, no gin. Lots of ice and lime. Delicious, and stops those akward questions of why aren't you drinking?I've had no alcohol for over 4 years, used to love my wine and G and T, don't miss it at all now.

AgedCrone profile image
AgedCrone in reply to Mmrr

I am lucky enough to be able to enjoy a glass of wine…but whilst I was recovering from the side effects on my two Covid vaccinations I didn’t even think of alcohol…….I know if it made me feel lousy….I wouldn’t touch another drop..& probably not miss it.

Klutzy profile image
Klutzy in reply to AgedCrone

Awesome story! I barely drink unless you count 2 beers over 3 months. I'm in a state where it seems like everyone drinks, and they drink to the extreme. So when I go out, I'll order either a non-alcoholic beer or a cranberry juice, in a glass, so it looks like I'm having either an actual beer or a cranberry juice with vodka. It just stops the questions of why I'm not drinking. I don't want to tell people I can't walk a straight line sober, and if there is a problem with my brain, I don't want to deteriorate it more with alcohol.

Mmrr profile image
Mmrr in reply to AgedCrone

Wise words

Go for it ,enjoy your holiday ,I stopped all meds on holiday to drink,

Suffered a wee bit but no to bad next again week

When started meds again ,

2 wines may lead to 4 😊

Jennyrenny profile image
Jennyrenny in reply to Ajay575

Love you reply

I was told it was ok on LEF and AZA and Benepali and even with my CKD I can still have a glass of two just don't abuse the booze. And wine with soda water is lovely.

Thanks medway-lady I will just have to curtail myself 😔

Awe..........I think you should just stick to the moderate amount and stay on your medication. I know that I will totally miss not having my red wine at the next all inclusive I go to. I drank a glass or two every single day before I went on these medications so I know how you feel........ But we just gotta be good.😇

oh....I just read AJAY575.........maybe that is a better answer than mine!!! lol. Maybe check to see if the medication you are on goes right out of your system. I know that my leflunimide has a long life so it wouldn't do any good for me not to take it for a week.

Thanks smilelines I never gave that a thought that it will still be in my system so better try to be good 😇

I'm sure you can drink (in moderation) while on slz, when I was on it I wasn't told not to. I was told it's okay to drink on mtx, but my bloods apart from once have been fine since being diagnosed in 2008. They always say stick to the guidelines of 14 units a week.

Jennyrenny profile image
Jennyrenny in reply to Paula-C

Thanks Paula-C and everyone for your replies I will take heed and be sensible xx

To be frank, yes you would. Is alcohol really worth risking a flare for? I used to love wine and drank it quite regularly. I started mxt 19 years ago and stopped drinking at the same time. I haven't missed it at all and have still enjoyed fabulous holidays. Don't risk it.

Jennyrenny profile image
Jennyrenny in reply to Sheila_G

Thanks Sheila_G I know you're correct it's not worth the risk I remember the pain and distress I was in before my medication so I will stick to drinking in moderation

really great that the medication is working so well for you!

Thank you Yes it really is what a difference it's made so thankful to have been given it

First which country do you live in and which country are you going to!I used to pre pandemic,but in UK it's not really feasible at moment

Jennyrenny profile image
Jennyrenny in reply to summer32A

Going to Costa adeje bahia hotel all been double vaccinated and will adhere to quarantine regulations and we have insurance in place if we need to cancel

Ajay575 profile image
Ajay575 in reply to Jennyrenny

Posh ,I used to go to tenerife every year

You are in a good hotel, enjoy 😊

Jennyrenny profile image
Jennyrenny in reply to Ajay575

Yes its a beautiful hotel been a couple of years ago hopefully alls well and we manage to go 🤞

my typos arthritis fingers on phone,I wouldn't go unless it moves to green list.

On costs of PCR tests at 150 each approx,

And being on amber equally means it can move to red as well as to green

I am double vaccinated,but all of Spain and most of Europe is not

I used to go to , Lanzarote,fueterventura and once gran Canarian for a week any time between November and march.

Winter sun helped me .

Beware my pharmacy boss/owner yes I still work a bit!,Went to am ber country,one person on plane has a positive test whole plane had to self isolate!,he can afford the time and tests as we sell them. He was going to go to Everest base camp,until it became red!

I think that going at all at the present moment is a bit silly unless things changed,which they might

Jennyrenny profile image
Jennyrenny in reply to summer32A

I know but really hoping things will be a bit better in 5 months but you never know

Os I went to Tenerife over twenty years ago playas americas very busy,not now apparently Costa de Adele is very pleasant according a friend who stated in a.n all inclusive

Is it worth it for a couple of drinks darling. xxxxx

Jennyrenny profile image
Jennyrenny in reply to sylvi

Probably not so maybe just have a little wine and then loads of juice xx

Hi. I’ve been on SSZ for around 4 years. Whilst I’ve cut back on the booze when I’m on holiday (normally AI) I tend not to hold back nor stop the tablets and am happy to report there’s been no negative impact on pain etc.

Now I appreciate this won’t be the same for everyone but it’s certainly been my experience when it comes to holiday drinking and taking SSZ.....

I holiday 3 or 4 times a year in Adeje and have been to your hotel a number of times and can certainly recommend the spiced rum and Diet Coke.....

Jennyrenny profile image
Jennyrenny in reply to Jamarruk

Thank you Jamarrk 🍷🍸I will be a be careful and enjoy

As soon as it I'd safe my money is on 2022/3I will book too,buy buy them even the basic price will have gone up,

And it will be with a travel agent and with full cancellation insurance etc and option to move.

Because guess who had unknowingly booked on Dec 2019 for march 2020 !!

Jennyrenny profile image
Jennyrenny in reply to summer32A

Oh dear hopefully we can go but if we need to move it we will do 🤞

verywellhealth.com/sulfasal...

I think from what the article says that in moderation you can have a couple of drinks daily on Sulphasalazine, but I guess it all depends on how fast your liver breaks down the med. When I started Sulphasalazine 26 years ago I was told the maximum amount of alcohol per week had to be 2 units. As I had stopped drinking except for an occasional glass of champers or wine so it didn’t bother me. Alcohol had started to make me feel unwell after I was diagnosed with RA. I had a friend who stopped taking Mtx as he preferred to drink as he was told by my nurse also he should limit his beer to 2 pints a week back in the 1990s. As I said it was a long time ago when the alcohol advice was given to me as a new RA patient.

Thanks very much Neonkitti17 for your reply very helpful xx

You’re welcome 💗

I was on sulphasalazine for 20 years and I had the odd drop of alcohol to no effect. I wouldn’t stop your meds

Jennyrenny profile image
Jennyrenny in reply to Knit12

👍thanks for reply Knit12

My Rhuemy said being on salz you can drink in moderation, like everything else really , just have a great holiday 👍

Jennyrenny profile image
Jennyrenny in reply to essexgirl

👍thanks for reply essexgirl

You’ll be fine.. I’ve been on Sulfasalazine for ten years and drink occasionally.. I’m still alive… just make sure you drink lots of water… Enjoy your hols xx

Jennyrenny profile image
Jennyrenny in reply to CripLady

Thanks CripLady for reply I will do

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