Stopping infliximab: I was due to have an infliximab... - NRAS

NRAS

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Stopping infliximab

Teddyedward profile image
5 Replies

I was due to have an infliximab infusion last Feb but due to covid this appt. was cancelled. I was called last March by the RA CNS who advised that they were unable to offer infliximab now and that she would call me back in 6 months time to reassess the situation. She did, indeed, call me back and advised that she still cannot get me back on infliximab. I am now in severe pain with my hands being all but useless. I have an appt on Feb 11th (hopefully) but wondered whether anybody else is in this situation or are you all still receiving treatment?

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Teddyedward
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KittyJ profile image
KittyJ

There was a post on this same situation yesterday or the day before, if uou scroll back you will find it ( Dickfend was the poster if you want to search for them) 😊

Teddyedward profile image
Teddyedward in reply toKittyJ

Thank you - found the post!

helixhelix profile image
helixhelix

Here’s the post that KittyJ mentions

healthunlocked.com/nras/pos...

Teddyedward profile image
Teddyedward in reply tohelixhelix

Thank you - post found. Will try to call GP for a steroid jab tomorrow.

KittyJ profile image
KittyJ in reply tohelixhelix

Thanks HH I can’t use the search on my new phone 😞

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