Does anyone have Tinnitus and what do you take for it?

[Patyganz]

Does anyone have tinnitus and what do you take for it?

[3LittleBirds2]

Yes, I developed it a few years ago, lots of tests etc and it was decided it was coming from my TMJ area and also my neck. I always know when I've overdone it or I'm flaring as my tinnitus sizzles away. I don't take anything for it, other than blocking it out with white noise, lots of apps you can get..it freaked me out at first but now I've got used to it , I don't need these so much. If I relax and rest it gets easier too. Good luck 🙂

[springcross]

Yes I do. I had it very mildly for a few years but since being diagnosed with RA and starting MTX, it has become worse. When I was also on Sulfasalazine it was horrendous and was a deciding factor in me coming off of it. I think mine is the same as 3LittleBirds2, coming from my neck and jaw - I also have TMJ disorder. I don't take anything for it, I don't think there is anything for it, not that I've heard of anyway but seeing either an osteopath or a chiropractor in the past has helped some.

[patsymay13]

Hi Paty, my hubby suffers with it he has for years he takes genko biloba and it seems to help him a bit but he doesn’t suffer with rd so not on any meds x

[Deniseelk]

Yes, I do. It appeared to come on after starting Methotrexate.... ? I don’t take anything for it just try to ignore it... very frustrating! Also recently heard it is a symptom during menopause so worth looking into?

[Fruitandnutcase]

Yes, I’ve had it for a while now. I don’t know what has caused it, although I sometimes wonder about the hydroxychloroquine I take - I’ve not done anything about it. I think you can get hearing aid type things to help mask it - I’ve not gone down that road - I suspect (but don’t know) that it could end up being expensive, I think some people mask it with music but again I’ve not looked into that. I just ignore it.

It’s irritating - mine is mostly a high pitched whine/ buzz that is always there. Sometimes I hear it louder than others, sometimes I hardly notice it.

I find I often hear noises when I lie down in bed - it’s as if there is a car parked outside with it’s engine on - there isn’t and if I lift my head off the pillow the noise stops.

[Karen12 in reply to Fruitandnutcase]

Hearing aids that produce white noise for tinnitus are available for free on the NHS.

[Hidden in reply to Fruitandnutcase]

Sulfasalazine gave me tinnitus. I stopped taking it. I still had tinnitus. I then stopped taking HCQ. I still have tinnitus. I hope it isn't the MTX causing it. I haven't seen that it does. I've been told there is no cure. They can only offer the noise generators (look like hearing aids), which do nothing for me, or group "counselling", which I don't see any point in.

[rabbits65]

Yes I have Tinnitus . It’s quite bad. I am told there is no cure . I have been seen by the e.n.t specialist. I’ve had an mri scan too . Sometimes the pressure makes me feel a bit dizzy. I don’t think two peoples systems are alike. There are lots of websites with information on. I feel that surly in this day and age that someone would have come up with more answers by now.

[springcross in reply to rabbits65]

I agree.

[Karen12]

Unfortunately a lot of the medications we take are known to cause tinnitus. Both Hydroxychloroquine and Sulfasalazine are known for this but I’m unsure about Methotrexate. There is no medication for tinnitus but as others have said, relaxation, CBT and white noise/sound generators can help if you are struggling. Speak to your GP. Also the hearing aids (white noise generators) that were mentioned for tinnitus are free on the NHS.

[rabbits65 in reply to Karen12]

Thanks for your information Karen . I have a feeling that maybe I have another condition running alongside the tinnitus as my head and ear are so blocked. I go to a specialist next month. Two months ago I paid a private specialist, he barely helped me, just said the mri scan was clear. We just have to suffer on our own, I guess

[benjijen]

I was diagnosed with tinnitus in both ears in my mid 20's (now 67). Not really a big problem most of the time unless there is no background noise. Even with that I can still hear it. After 40 years I've become used to it. Since my stents were fitted 4 years ago I also have pulsatile tinnitus which I have found really irritating. Fortunately that one is not there all the time! No meds to treat it just things to disguise it a bit.

[Sheila_G]

Sadly, there is no cure but I believe you can get hearing aids to block out some noise

[Fra22-57]

I have it in my right ear,my husband has it bad in both. Mine was discovered after went to see ENT consultant. My hearing test was bad in that ear so given MRI which discovered an acoustic neuroma which is is a tumour on the audio nerve.Regular MRI scans show it hasnt grown thankfully as then its massive op.I dont like the noises and when it's bad I tend to stick my fingers in ear to try alter sound.sometimes it works but mostly not.I just get on with it thou.Eventually tumour will cause that ear to be deaf

[Ruth12345]

If you put tinnitus into the search on here you will get a lot of information.

I've had it for years. Before RD. All the best.

[stbernhard]

I live with tinnitus since the 70's (too near the big sound boxes at the concerts probably) and just accept it as part of me. Not a lot else one can do. Vagus nerve stimulation is a thing scientists are looking into. They had good results in the Netherlands.

[springcross in reply to stbernhard]

That's very interesting. x

[Pulfs]

Yes I have tinnitus worse in right ear lots of white noise. Don't think any meds will help but I have an app with different noises to mask such as bird song which is relaxing. Worse in quiet situation so at home have radio on for back ground sound. I've got use to it and some days don't notice it. It's not a nice thing to have sorry you have it. Take care x

[Tia53]

I have tinnitus in my left ear - had it around 10 years or so, can't remember when it actually started. Some mornings I awake to it extremely loud but it eases off slightly as the day goes on. It's quite loud now (high pitched like an electricity pylon) as I'm typing this - I have learned to live with it.

I believe mine could be due to working at a desk in a call centre in headphones. I worked 13 hour shifts 3 days on 3 days off for 10 years, then worked part time at home for 4 years before retiring.

I'm on Methotrexate and haven't noticed any significant changes. I did mention it to my GP once a few years ago but she just stated if it becomes unbearable come back 😞

[Plann]

I was left with Tinnitus after back surgery. Hearing test at hospital, with ENT suggesting hearing aid, but Consultant saying “No, it would make it worse.” Anyhow, I listened, didn’t use it because Consultant knows better.

But months later when it was extreme, I tried the hearing aid. So glad ENT were involved and I contacted them to confirm they were right to try it.

So give it a go.