Nearly two weeks of no MTX and awaiting new drug sulphasalazineand the hand swelling increased every day and all my joints on fire 🔥 this morning.
Love a good start to the day. I was planning to go into work with hubby to make him cakes but think rest (quelle surprise) instead.
🥺oh Dee . My ankle and hands were like this yesterday and like you my joints especially in my feet were the hottest they have ever been. Steroids have taken my Achilles pain away only to be replaced with swelling and sharp pains everywhere. Double dose methotrexate , biologic and steroids not doing the job. Like you another bloody day of rest .
Oh well misery loves company x
I staggered downstairs and said not coming to bake cakes with you and the reply was I could tell by the way you slept it was going to be a tough day!
At least he understands. Mine does now took awhile but he can now see better than I when I want to do something. He will say not a good day leave it. Very humid here just walked the dog. ..PUFF !!! Hands and feet
Very reminiscent of mine Dee but you couldn't see any of my knuckles at all. I really feel for you as I live in fear of that ever happening again. I've mentioned on here before that I don't know which was worse, the pain of this or breaking my back in early 20s. This is a "life is such a bitch" time I think isn't it. Do you have some good painkillers? xx
On cocodomol and pred but the prednisone is not a big winner with me as it has made my fatigue worse even Consultant was no point with Pred wean yourself off as does not do anything for you. Needed it after anaphylaxis reaction for 6 days but now weaning off.
I said to consultant is my aim is to just feel ok and able to do basics at the moment not retire to the couch every day. I push myself to do things every day whether laundry, a bit of housework or cooking but ............
Now's the time to rest and let them heal a bit. I found that cool to cold water helped mine but I realise we're all different. I hope you get some relief very soon. xx
Poor you those hands look so swollen. I think a duvet day is what you need today and hope the rest will help. X
Oh dear, that looks painful, snuggle down with an ice pack and rest. Just think, it will get better once you get back on the meds.
I am hanging on to that right now!
Rest up Dee and be kind to yourself.
I've had a poor night too, drove to visit my mum yesterday, was just fine yesterday evening. Hot and bothered this morning. It is such a bummer.
Darling i am only on hydroxy and like you my fingers are really really sore even to touch this morning.xxxx
Weather I keep muttering weather as so convinced there is a link!
Oh there is definitely a link. I have found that in the past. Both my hands are sore this morning and i can't see me being on here much today. Also when the heat shoots up as well makes a difference and it has the same effect and the extreme cold and the wet as well. So we are all in a no win situation. Hugs darling.xxx
You could be right there. x
Every time it’s hot or humid I blow up
Oh dee that looks sore. Dunk your hands in ice cold water for 20 mins it helps the blood vessels carry away some of the fluid. When I've been in hospital the physios put my hands and feet in bowls of iced water, so cold but after a while you go numb. Made me cry but helped.
I hope you can get back on sulph soon 🤞🤞
I am looking at the ice packs and about to dive in. However one of my cats keeps coming to me and laying on my hands and licking them. I think he has gauged today is a tough day as tends to stick to me like glue on rough days and likes to lick me better!
🥰🥰he loves you
Ah bless 🐈I hope that the ice packs help and you can start the Sulphasalazine soon - you deserve a break 😘💐
Aww bless him, he's obviously very tuned in to you and trying to help. x
Aww bless your cat. They do know don’t they Dee when we are not ourselves. My Billy cat never leaves my side as snuggles right up to me. x
I was told to try the ice water etc, but it made me want to go wee all the time! 😝
Oh that looks painful Deeb. Sooner you get the new meds the better eh. A duvet day called for you today. Hope you get some relief soon. X
Goodness Dee! I really do hope that you get the meds sorted quickly and they work for you. You have been through so much already and continue to do so. Puts me to shame really. Gentle hugs xx
we all have moments Summerrain14 all go through the process x
Sending some supportive wishes Dee and rest today. x
Aww I’m so sad to see your hands are suffering. 😢💗 It will go down once the RA has calmed. Mine were puffy too and I had no definition between knuckles. I had wax hand baths twice a week at the hospital physio but you won’t be able to do that at the mo. 🤨 Also I used to put some Epsom Salts in the sink with warm-hot water and swish my hands around in it doing some gentle movements for my fingers. The wax baths took the swelling and sting out of my hands but it returned after a couple of days. All the swellings subsided in my hands except one area between my fore finger and middle finger. As I’m left handed and did such a lot of activity in my art degrees I’m sure that’s why. I’ve over used it during the years! I’m hoping your RA will soon be more controlled and pain and swellings subside. 💗🙏
Had to come off MTX. What next update
Mtx
Mtx 
