Shielding call: Hi Got another call from the National... - NRAS

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Shielding call

allanah
allanah

Hi

Got another call from the National shielding centre( their number us on the government letter) saying continue shielding until June 30th . I said there have been so many confusing messages , should I be going out ? she said its my call but I'm high risk and they advise total shielding , did I need anything.

So your guess is as good as mine but shielding till the original date of june 30th remains for me !

77 Replies
oldestnewest

Same here, but I’ve also had messages from my rheumatology and respiratory teams urging me to remain shielded until at least 30 June.

Because I’ve had to increase the steroids ( in the absence of a new Biologic), the risk of infection is exponentially increased, apparently. And there’s the pulmonary fibrosis. I’ll have to take a risk at some stage. But not yet. J

allanah
allanah in reply to Jora

Dud you watch fridays nras talk with doc from st Thomas, goes into a lot of detail ...

Jora
Jora in reply to allanah

Yes, I did. x

whaleroad
whaleroad in reply to allanah

Is this available to watch online do you know?

bubblyalex
bubblyalex in reply to whaleroad

Yes it is. On the nras Facebook page

allanah
allanah in reply to whaleroad

Yes on NRAS facebook page x

bubblyalex
bubblyalex in reply to allanah

Snap lol

allanah
allanah in reply to bubblyalex

Great minds think.alike , or this one doesnt read everything!!,😂

bubblyalex
bubblyalex in reply to allanah

I’ll opt for the great minds option please 😂

allanah
allanah in reply to bubblyalex

😂😂

whaleroad
whaleroad in reply to allanah

Thank you both!

It was discussed on BBC Breakfast TV this morning, they stated some confusion over shielding. They said people shielding, should do so to the end of June, they are allowed a walk a day. I’ve had one walk since the announcement last weekend, the weather has been awful since. Will resume when there isn’t a fear of being blown over. X

Thanks for this update...it's been so confusing. I'm wondering if they will extend it especially as in my area the R rate is supposedly at 1 and without a vaccine who knows..I guess we will have to wait and see.

It's hard to make sense of all the conflicting advice but I'm glad they're following up on people .

I'm giving up on shielding. None of the support I was promised has materialised (priority shopping); I still haven't received a letter so I have no idea who put me on the list or why. Whoever it was didn't inform my GP, yet the shielding service message told me to call my GP to ask them to confirm with the shielding service that I was shielding. Head. Desk.

J1707
J1707 in reply to whaleroad

I’m in the same boat

whaleroad
whaleroad in reply to J1707

Sorry, it's more than a little dispiriting isn't it.

Have you contacted your GP? I spoke to mine earlier in the week and although I was frustrated to find they had no record of me shielding, she was incredibly helpful and reassured me that I could call them for any reason.

J1707
J1707 in reply to whaleroad

They have called and checked up so I’m on the radar but like you can’t get priority slots. British Rheumatoid site says shield my works have said I’m on as shielding on their charts my clinic says do what’s comfortable for you I’ve have registered with Gov. com numerous times... given up

allanah
allanah in reply to whaleroad

Call your local council , they seem to be organising it x

whaleroad
whaleroad in reply to allanah

Hi. The council called me and I asked about it. They said they didn't know how to get a slot but would try to find out and call me back. They didn't. Then I spoke to the NHS shielding service who said they had registered me for priority shopping and I would hear from the supermarkets. That was 3 weeks ago. I haven't heard anything yet but I know it takes a while and everyone is inundated.

It just feels like I'm always slipping through the cracks for some reason.

allanah
allanah in reply to whaleroad

Have you gone onto a delivery site like tesco yet.? I I didnt get a verification call , I jyst went on and put in priority and got a slot ...

bubblyalex
bubblyalex in reply to allanah

Same happened for me... and with Sainsbury’s.

J1707
J1707 in reply to allanah

Yep all of them

whaleroad
whaleroad in reply to allanah

I can't see any option for doing that on the Sainsbury's or Tesco sites. I contacted Waitrose, which is where I did most of my shopping before (because it was on my way home from work). Waiting to hear back.

bubblyalex
bubblyalex in reply to whaleroad

Don’t wait for them... with Waitrose you have to be sent an email allowing you to register as priority with them. Sainsbury’s and Tescos it is worth calling them to tell them you appear to have slipped through the net. Don’t be fobbed off... have you tried to create an account with them.

Karen12
Karen12 in reply to whaleroad

Have you tried booking? I know that may seem daft but that’s the only way I knew. If I tried to book a slot it just said slots are for vulnerable only. One day I tried and it just let me book.

happytulip
happytulip in reply to whaleroad

My local council helped me by organising food deliveries from.the red cross and it was actually stuff I could eat! Gluten free and dairy free!

I hope your local council can help you?

allanah
allanah in reply to happytulip

Did u get a shielding letter, if do call the number on it and explain

happytulip
happytulip in reply to allanah

Yes, I got a letter. But I've also has a call each week from my council to check on me.

The government food parcels were no good to me because I couldn't eat 70% of it. But the council arranged a food parcel from the red cross and it was definitely taylored to my dietary needs.

I will see if I can have them again if needs be

My council have never contacted me but I have a great local community group and was able to get online deliveries sorted.

That's good to hear.

Kerensa21
Kerensa21 in reply to whaleroad

hi whaleroad; you can ring Tesco’s on 0800 917 7359 to obtain priority slot whether shielding letter or not. I did same. I didn’t receive letter until a couple of weeks ago; it’s all beena bit muddled I know as automatically got slots from others 🤷‍♀️

Mmrr
Mmrr in reply to whaleroad

😥

Nyreedw
Nyreedw in reply to whaleroad

Did you register on Gov website and tick you have no one available to help you? Supermarkets use this list for slots. I've only been able to use Asda plus were you registered for online shopping previously? You need to contact council for help as well x

whaleroad
whaleroad in reply to Nyreedw

I did; I've been registered and told to wait. I have managed to get another Sainsbury's slot, so it's all good now, it's just a bit hit and miss. But if we go into lockdown again (which I don't think will happen tbh) and there's another surge in demand, could be back to square one. x

Do you reckon there will an official 'anything' before the end of June or just a throwaway govt comment given that shielding was 'only guidance'?

bubblyalex
bubblyalex in reply to Stayloose

I can’t see this ending in June for us... but maybe I will be wrong.

allanah
allanah in reply to bubblyalex

They said announcements in june 13 th and 30th , but ill wait and see 😂😂

bubblyalex
bubblyalex in reply to allanah

Let’s hope they announce a miracle solution?? That is what I’m hoping for ... sooner rather than later please. 😀

allanah
allanah in reply to bubblyalex

Vaccine , september ..fingers crossed

bubblyalex
bubblyalex in reply to allanah

Yes please but please let’s be sure if it. I see they’re saying that the tests that have been done so far are not fully reliable and not picking up everyone who’s had it?

allanah
allanah in reply to bubblyalex

They wont release it until they know

bubblyalex
bubblyalex in reply to allanah

😁👍🏻

happytulip
happytulip in reply to Stayloose

Probably a "Tweet" from a secretary of state at about 11pm on June 30th. As an afterthought with no forthought and no advice or input from NHS England or anyone with an ounce of medical knowledge or respect for people with disabilities or chronic illness or respect for GPs who are trying to support those with chronic conditions.

Just my guess.

That's what's happened so far....

😏 let’s hope not eh 😊

allanah
allanah in reply to happytulip

😂😂😂😂😂 as usual!

happytulip
happytulip in reply to allanah

I just tried to mention you in a reply....I used a phrase that you said when I wrote to my MP about the Twitter post and it not being the right platform for announcements.

I said "we're worth more than that." I'm pretty certain that I got that from you.

Anyway, it worked! I got a reply that they would pass it on.

allanah
allanah in reply to happytulip

Fab !!,

allanah
allanah in reply to allanah

Let me at them !!! Or even Claire CEO NRAS , shes good you know !

Stayloose
Stayloose in reply to happytulip

Hmmmm....

Well being optimistic just changed our holiday to cape verde September 2021 woooooo

happytulip
happytulip in reply to allanah

Fingers crossed for you. Does your insurance cover CV?

allanah
allanah in reply to happytulip

Just changed the booking as we would lose money, from now , to september 2021 ... we should know more by then fingers crossed !!!

Hello. I live in wales and we who are shielding are now evidently going to be sent a letter to keep shielding till the 16th August! Evidently we can go out to exercise or meet up with another household outside adhering to social distancing but will wait for letter to arrive as things keep changing. 😒😢

Aliceeliza
Aliceeliza in reply to Sorop

How can this advice be called shielding? I'm confused

allanah
allanah in reply to Aliceeliza

Think we all are !

Liberty43
Liberty43 in reply to allanah

I won’t be listening to government advice; will use my judgement based on advice from my respiratory and rheumatology consultants. I think it best if you contact your consultant/hospital as it appears that many GPs are being left out of any decisions made by the government. Whatever we do, we should do safely and l will wear a mask if l do venture out at all after 13 weeks of isolation. Keep well.

allanah
allanah in reply to Sorop

Hows that shielding , it's what everyone is doing !!! X thanks for answering, its strange the differences xxx

I still don’t have a clue what’s happening either. My Rheumatology team say I don’t need to shield my GP is sitting on the fence but has written to my Respiratory team for advice seeing as I havnt managed to get even a call back from them. No follow up from latest CT on 1st Feb either.

I had a couple of text messages from the government early April but nothing since. My GP has suggested I shield till she hears back from Respiratory team. So reluctantly that’s what I’m doing but seeing others now out & about is going to be really tough mentally. X

allanah
allanah in reply to Otto11

If you dont hear soon contact your PALS service and explain, they might help x

Otto11
Otto11 in reply to allanah

Thanks. Do you think they are currently working? I asked my GP why I was on the shielding list but as it was a GP who I had never met & she couldn’t answer hence her writing a letter to them. X

I got told on the phone (in a regular appointment - NHS) that I should wait for a health care professional to contact me to tell me when it's safe to stop shielding and go out, not to follow the political things on TV by MPs who don't know or perhaps don't care about the clinical risks involved (for each situation).

I live inner city, it's so busy always there just isn't enough room for 2 metres distancing, the pavements aren't even 2m wide anyway so I can't get to anywhere quieter without passing through a whole lot of people. To get to a less crowded area involves transport (public transport as I don't drive now) so not an option. If I lived where my parents live though they can walk ages without seeing anyone else and easily walk around people. So I guess it largely depends on individual situations

That’s true. My respiratory consultant phoned me about a week ago and also had a letter from my rheumatologist, urging me to keep fully isolating. The advice from government is confusing, as quite sure they don’t consider all repercussions involved. Haven’t been through the door of my flat for 13 weeks now and will definitely wear a mask if l do when it feels safe to do so. It is far too early to ease lockdown for the clinically extremely vulnerable, in my opinion.

I’ve been very lucky then. I had an e mail from Iceland offering me a slot. When I rang Tesco, as I always do my shopping there, he said I wasn’t on the list. After words back and forth he put me on list. I then got a slot for 2 weeks away.

Sallysuk
Sallysuk in reply to Marykate7

Iceland was the only supermarket that I could get deliveries from for weeks although I registered with Gov UK from April 3. At the end of April I reregistered with Gov UK stating I not only needed help with shopping but also BATHING etc after that I was contacted by the council and soon after went on the supermarket priority list as well as receiving government food boxes! I felt awful as I only needed help with shopping and have since removed the bathing etc requirement but it was the only way my name was sent to the supermarkets. I have found Morrisons have been very helpful for shielding and vulnerable people who do not use the internet as they have a dedicated phone line for orders for next day delivery from quite a long list of essential items

Marykate7
Marykate7 in reply to Sallysuk

That’s a good thing to know. I didn’t apply to council as I felt too vulnerable but didn’t the whole package they ere offering

Shield shield shield. I had a rare car ride yesterday and picnic inside it on top of a moor, with my husband. I did find out I had incorrectly been scored 2 and should be 3 and rheumatology are addressing that in case proof needed for a vaccine etc. As someone shielding wrote in The Guardian recently .. How have things changed for her ? They haven’t really got safer and she is still as vulnerable and will be made difficult by the huge increase in people out and about since lockdown eased and they aren’t distancing enough, so I’m just doing the same as since end of Feb. Garden and essential blood test at GP and the odd car ride twice more recently to somewhere very remote in terms of terrain (but local!) on a weekend, but I’ve been in the house mostly for over 12 weeks. You get used to it and I’m creative and do loads of art but your freedom has been curtailed but that’s the way it is isn’t?! I’m definitely shielding and should be, so you are treble shielding I think! xx

allanah
allanah in reply to Neonkittie17

Yes I am xxx only been out for my drip !

Neonkittie17
Neonkittie17 in reply to allanah

My only physical interaction with people other than my OH was the nurse at the blood test at the docs practice.. I can’t walk round locally as most people won’t attempt to distance. I have seen that from the house/window and even more so yesterday when we had a car ride. We passed a small lake on our way back from our little car jaunt and there were people paddling even though it was cold and reining and they were queuing up closely for ice creams. 😫😱. It didn’t look as though that would be hygiene conscious even without the virus. 😑 No thanks. xxx

I got the same call x

allanah
allanah in reply to chacha700

Did u ask any questions? Tell them its confusing?

chacha700
chacha700 in reply to allanah

I thought to myself next time!!!😂😂

allanah
allanah in reply to chacha700

😍😍😍😂

Yep I said what I thought and they just said if I need anything get back to them!

allanah
allanah in reply to chacha700

😂😂😂😍

Hello Allanah, I agree with you most of the way, due to steroids effect, but have found a fellow U3A member with COP-D. She is immensely nervous after a serious episode earlier in the year, but as we are both self-shielding and live alone we can regard each other as safe. We could walk to see each other, but she came up by car. I am fortunate as my neighbourhood is very quiet at present (till students return in Autumn) so I do feel safe to take the allowed daily walk. Need the exercise due to bad side effects of steroids - you name it, I’ve got it!

Anyway, whatever you decide to do, good luck. We have to ease up a little bit somehow, sometime, depends on where we live I think.

The Botcher

allanah
allanah in reply to Botcher

My area is high r number so for now I'll just bide my time and be patient, but yep decision as to when the risk is less will have to be made, although my personal risk wont change. Xx

Fair enough, bad luck that you’re in high risk area, bye

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