Rheumatologist in Edinburgh or Glasgow that listens? - NRAS

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Rheumatologist in Edinburgh or Glasgow that listens?

mistygrey profile image
25 Replies

Hi there

Does anyone recommend a good caring rheumatologist who listens and doesn’t dismiss you if your bloods aren’t all ‘positive’.

I’ve been really struggling with RA type symptoms and could barely walk last week, luckily my Gp saw how unwell I was and put me on a short course of steroids to help my joint stiffness and pain.

If anyone knows a good Rheumy in Edinburgh or Glasgow that I could see private or via the nhs that does listen and doesn’t dismiss let me know, many thanks

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mistygrey
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25 Replies
Mmrr profile image
Mmrr

I've found Dr Harris, Edinburgh WGH to be very good. I'm seronegative, she listened, asked questions and changed my biologic based on examination and my account. She does some private work at the Spire Edinburgh, but I don't think they are offering appointments at the moment.

mistygrey profile image
mistygrey in reply toMmrr

Hi thanks for your ur reply. What did you have to get a seronegative diagnosis? I have no positive bloods except a positive Ana at the moment but have all the symptoms

Mmrr profile image
Mmrr in reply tomistygrey

Time and a new consultant who reinvestigated me at my persistence, my old one retired. The diagnosis was cliched by MRI and my symptoms.

mistygrey profile image
mistygrey in reply toMmrr

I will have to try and ask for an MRI but with the current situation I really am not sure when this would be able to take place :( or if Dr Harris would let me have one

mistygrey profile image
mistygrey in reply toMmrr

who was the new Rheumy you saw? thanks

Mmrr profile image
Mmrr in reply tomistygrey

Dr Hauser , WGH. She does not do private work. I would suggest Dr Harris first.

mistygrey profile image
mistygrey in reply toMmrr

Thank you :)

mistygrey profile image
mistygrey in reply toMmrr

Hi can I just ask what Dr Hauser is like? Does she rely heavily on positive bloods and positive scans?

I didn’t get on with Dr Harris she dismissed everything I was saying so going to get a second opinion

mistygrey profile image
mistygrey in reply toMmrr

can I also please ask who diagnosed your seronegative diagnosis? Thanks

Mmrr profile image
Mmrr in reply tomistygrey

Dr Hauser, I only saw her twice before she transferred me to the biologics team.

auldreekie2 profile image
auldreekie2 in reply toMmrr

Dr Harris is a excellent Doctor, and sits and listen to you, she is my second doctor at the WGH.

I have my own doctor that I go to as well at WGH, I have found them all to be nice.

Even when I got taken in to the hospital the professor came to see me, one morning he was nice.

They are doing there best with us and trying to get the right medication that works for us.

I have been waiting 5 years for the right medication to work, so far no joy.

Hope everyone is doing well.

Mmrr profile image
Mmrr in reply toauldreekie2

Yes Dr Hauser is my consultant now and really moved my care along, but she doesn't do private work. I'm going into my 4 year and haven't found my medication yet. Soon I hope.

hatshepsut profile image
hatshepsut

Dr Anne McEntegert at Glasgow Royal is superb. She is open minded, listens to her patient, and looks at the whole picture, not just bloods. She also works at Stobhill hospital. Don't know about private work, but think not

mistygrey profile image
mistygrey in reply tohatshepsut

Hi there

Thanks for your reply. Does she diagnose without positive bloods or scans? Thanks

hatshepsut profile image
hatshepsut in reply tomistygrey

Yes.....she looks at how you are feeling

Circledancer profile image
Circledancer

I was diagnosed with seronegative RA by Mr Lambert at Spire Murrayfield, Edinburgh last year after MRI scans and several consultations.

I had high inflammatory markers but all other RA bloods were apparently fine.

He is retired from NHS now and only does private appointments at Murrayfield.

He has always been happy to get emails from me with any queries too in between appointments.

He put me on MTX last July gradually titrating up to 20mg in January.

Had a phone consult with him last month as face to face appointments are off at the moment of course.

mistygrey profile image
mistygrey in reply toCircledancer

Hi

I’ve seen Dr Lambert too. I find him good and he does listen, my bloods aren’t showing anything yet however I’m waiting on mri scans and hoping something shows up. Will he diagnose seronegative without bloods do you think? I can’t see him until October as spoke to him on the phone and he said face to face at spire are off until at least then :( he can’t start new meds via telephone calls either and prefers to wait until I can see him again in person. He gave me steroids the last time which was well before lockdown and they massively helped

Froggie70 profile image
Froggie70

Hi, I’m not sure if she’s still there but I had the most fantastic rheumatologist, Dr Isla Morrison who I believe is at the Queen Elizabeth in Glasgow (I saw her in Lanarkshire before she moved to Glasgow). She was so easy to talk to and it felt like a partnership when discussing treatment. She moved to Glasgow about 3 years ago and I will be honest I feel my health has got worse since she left.

Hope this helps.

Lizard28 profile image
Lizard28 in reply toFroggie70

I’ve seen DR Morrison as well in Hairmyers Hospital, she is very thorough, my first appointment lasted about an hour and a half, she listened and wrote everything down.

Froggie70 profile image
Froggie70 in reply toLizard28

She’s so easy to talk to. The only downside is that all her appointments used to run over so I was never taken on time, usually running an hour late, but it was worth it. I really do wish I could be under her care again. The consultant I have now is very cold and uninterested and you’re in and out in 10 minutes.

Lizard28 profile image
Lizard28 in reply toFroggie70

Yes I agree with you, I was actually shocked the time I was in with her, I did feel bad for the other patients waiting. Mine was an urgent appointment with her and it was slotted in over lunchtime, her afternoon clinic must have ran very late. I’m at another Glasgow rheumatologist now, although she is nice, if it doesn’t show in bloods it’s a no go.

Froggie70 profile image
Froggie70 in reply toLizard28

I’m actually scared of my consultant, she makes me feel like I’m back at school and have been summoned to the head mistresses office 🤪.

Take care🤗

mistygrey profile image
mistygrey in reply toFroggie70

I felt like that with my old rheumy in Edinburgh but I swiftly moved from her before she did anymore damage to me!

Bbandit123 profile image
Bbandit123

I was diagnosed by Dr McRorie at Edinburgh Spire and he was amazing and I wish I still had him. Straight talking but caring and he listened. Then I transferred to Western General for care. I’m now on my 3rd Rheumy and although my treatment has been good until recently, my current doctor seems fairly uncaring imo and I don’t feel believed all the time which is stressful. I’m wondering how I go about changing doctor when in nhs care. Does anyone know?

mistygrey profile image
mistygrey in reply toBbandit123

I’ve sent you a message :)

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