Do you have 20 minutes for a survey on back pain? As an AS sufferer myself I'd like to understand how others often deal with it.

[sumalingum]

Would anybody struggling with back pain be interested in chatting with me about it for a few minutes? I was recently diagnosed with Ankylosing Spondylitis (AS) but had been living with it for a decade, and have managed to deal with back pain on my own way. I would like to learn how others do it. Please let me know by email (xenoach at gmaildotcom) if you would be interested in talking more.

[Jean--]

My upper back drives me crazy 15 years my only comfort is hot water bottle ! 🌸

[allanah]

Lovely idea but surveys have to be cleared with NRAS first xxxx

[sumalingum in reply to allanah]

Ah--did not know that--thank you for pointing this out--any suggestions how I might do that allanah?

[allanah in reply to sumalingum]

Just send them a message on their email

[e-mail] .

If you look on their page their is a telephone number but I guess that might be quite busy just now.

Good luck. Im sure they will be helpful xx

[sumalingum]

Thank you allanah and Hidden !

[sumalingum]

allanah and Hidden I sent them a message almost a week ago and they have not responded. Likely flooded with emails right now, understandably. Would either of you mind chatting if you have any back issues? And would you please circulate my request to others in your network? Thank you!

[allanah in reply to sumalingum]

I dont have back issues I'm afraid ... but good luck x

[sumalingum in reply to allanah]

No problem, thank you

[sumalingum in reply to sumalingum]

allanah FYI just heard back from NRAS--they have asked to review my survey and will send out likely in a few weeks because they are flooded with COVID-related requests at the moment, which is understandable. Thanks for suggesting that I contact them, they are responsive and helpful!