Advice from my Rheumatologist

[Smithycat]

Attached is the advice that I received today. I will post the second page too.

[TBird1]

Thank you for posting this letter. I’ve not had anything and feeling very anxious (as we all are!) Have you or anyone else had a letter about being extremely high risk and need to be shielded? I keep reading if you’re on immunosuppressants you’re at risk. I’m supposed to go to GP surgery for B12 jab next week and wonder if I should if I’m on shielding list? I’m on methotrexate, sulfasalazine and Naproxen.

Thanks!

[Keeley08 in reply to TBird1]

You should receive a letter from your GP telling you to stay home for 12 weeks re Methotrexate, I spoke to my GP and he told me I'd receive one soon. Where I am Gps are dealing with medication letters and hospital is dealing with letters re Biologics (Cimzia injections in my case) I have been told by the hospital I will receive a letter from them saying the same. Try leaving a message for your rheumatologist nurse or specialist - I was very lucky mine got back to me within the hour, good luck and take care

[linmar in reply to TBird1]

I phoned my rhumatoid nurse as I was working as a cleaner in an NHS building and she said she would send a letter to me for work to say I had to self isolate 12weeks. I use methotrexate and Amjevita injection. This took over from Humira.

[bpeal1 in reply to TBird1]

This is the scoring system which the British a Rheumatology Association are using to identify those who are at highest risk and need shielding. If you score 3 or more you should receive a letter. rheumatology.org.uk/Portals...

[bpeal1 in reply to bpeal1]

Following this you score 1 for methotrexate and 0 for Sulphasalazine. If you are over 70 and/or have any of the other comorbidities you score another 1.

[TBird1 in reply to bpeal1]

Thank you! Really useful information.

This was my first post ever! So not sure if everyone will see this but thanks to all those who have responded. I hope everyone stays well.

[Joolief]

I received a letter yesterday saying I was to stay home for 12 weeks. I’m on prednisone and methotrexate.