Hi there, I’m new here and am really happy to find this place.
I was diagnosed — Sero Positive — in 2012. For many years all was fine and the RA was well controlled with Hydroxychloroquine. Then last year after a ‘life event’ my RA flares went crazy and I was in a bit of a state. I was given Leflunamide but has a bad reaction so stopped that immediately
From November I’ve been on Sulfasalazine (along with the hydroxychloroquine), and it’s been such a battle. I have terrible dizziness with the room seeming to be whirling around me, my tinnitus is much worse than it’s ever been and the headaches are crippling. My rheumatologist has asked me to lower the dose but keep at it. Now my bloods are a mess. It’s so hard to focus with the side effects, but I’ve decided to stop taking the Sulfasalazine as it’s so distressing. I’m hoping to speak to the rheumatologist — but it’s hard to get hold of them. I’m the meantime I’m still on 2 weekly blood tests due to the ‘problems’ with my bloods. I’m still in flare up, although it’s not as aggressive as it was.
Any advice from people who have had similar situations would be amazing. I’m in a state of some distress over all this and feel very alone.
Thank you I advance.