Here I am on a Saturday, hungry and refusing to eat, because I am too fat. I just got home from a long trip and gained another 20 pounds. I love my life, but this weight issue stagers me. I have tried almost everything. Currently I am under a doctors care, and a few home ideas and products. I still gain. Seems like I eat almost nothing, and what I do eat is good, and good for you. Yet I continue to balloon out. Does anyone else feel like this?
Now what do I do: Here I am on a Saturday, hungry and... - NRAS
Now what do I do
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Puppet69
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Hiya Puppet69. You're in a vicious cycle it seems. I wonder, are you also on steroids as part of your RD treatment? Many have metabolic issues not only because of the disease but also through steroids, they're notoriously problematic in adding to weight issues, some existing like you're finding. We can also be less inclined to exercise when we're not doing well, that can also pile on the pounds, as can being sedentary when we have painful joints. It's important to eat healthily but sometimes it's not so easy if you have problems preparing food dexterity wise but it is worth trying our best, even if it means buying pre cut veg, as the disease responds to what we fuel our bodies with.
You say you're under a doctor's care but have you considered a nutritionalist, even one connected to autoimmune diseases? Might be worth giving it some thought as you're struggling so much just now.
What concerns me is you being hungry but refusing to eat... it's not good to deny yourself. Have you nothing in that you can eat without it making you feel so bad? You say you have a few home ideas, do they include something you can have that you won't feel bad about once eaten? I hope you have then you won't pick at things which will make things worse.
I hope you can find someone or something that makes all the difference to you. It might be worth searching through the Healthunlocked listings to see if there's a support group for your issues you could join, support from others often helps. 😊
To the best of my knowledge I am not on a steriod of any kind, except a nasal spray I use for constant congestion.
Is it a prescribed nasal inhaler? If so I'd check the patient information leaflet in the box, it may say it's a corticosteroid one. Other than that maybe this will be helpful reading, as I mentioned just simply having arthritis can have an impact on our weight nras.org.uk/weight-diet-and...
Yes it is a prescribed spray. I will check out the pamphlet. Honestly it does not work that well anyway. I find a saline solution in a neti pot works better.
Maybe discuss it with your GP if it doesn't work well. Little point of it otherwise. Can I ask, which arthritis do you have?
Rheumatoid arthritis. It is not so bad most of the time
That's good to hear. I wonder, could it not be one of your RD meds which is making you feel hungry? Which are you prescribed? It might be an idea to check to see if increase appetite is amongst them or any other meds you take regularly. Or, an alternative side effect could be possible water retention (oedema in the UK, edema in the US).
I don't take any arthritis medicines. I am trying to deal with it naturally. Ginger, beets and tart cherries.
Hi Puppet69.
I remember talking to lady who put on a vast amount of weight in a short time. The doctors at the hospital found out it was her "Pituitary Gland" It's made of 2 parts first is near the lobes. Closer to the face called anterior Pituitary Gland, back part is called posterior "Pituitary Gland" is found closer to the back of the head. It's called "Cushing's Diease" In adults symptoms include unexplained weight gain, mostly in the face, chest and belly.
Hope this helps.
Sending {hugs}
Best wishes
Pamela xx
I am off to the doctor in two weeks from today. I will ask him about my pituitary gland. I would love to find a medical reason for my weight. I did not gain it fast, it sort of snuck up on me for 10 years or so before I started trying to do something about it.
Hi Puppet69,
I would keep a strict food diary and chocolate , literally write down everything plus quantities.
Seeing gp you need to go in with a strong mindset be assertive ask questions you want answered. I know it maybe difficult but try not to get upset (cry). GPs tend to fog people off by saying your depressed here's some antidepressant tablets or increase the strength if your already taking. Ask for a hospital referral.
Not totally sure but think a scan of some sort will detect any abnormalities.
Best wishes
Pamela xx
You obviously are so much stronger than I am. I could not, will not confront a health care person. I must agree with your evaluation of GP's, but trust is so, so, so, so, so, (is that enough to get my point across?) hard for me.
Hi Puppet69,
It's not a matter of being strong, it's more about not getting upset when seeing a health care person who would tell you that there isn't anything wrong or to worry about, or what they think is wrong with you. Gp's have a round general knowledge, therefore, needing to be referred to a consultant who's specialises only in that field and not be diagnosed or fobbed off by a gp.
I wouldn't say I'm strong, but to talk up at the doctors for them to understand my concerns and how I'm feeling
Pamela xx
I am going to give it a try, but it won't be easy.
I'm so pleased and hope it goes well! . Go in with a strong mind frame knowing it's no longer than 10 mins max , I know it will be difficult it's about you and your care. I've gone in a surgery knowing I'm going to get up set you need to be listened too. Maybe take a friend or someone who knows you well that normally takes edge off things. They can also listen in case you don't take everything in.
I hope all goes well , let us know
Best wishes
Pamela xx
Try writing down what you want to say - not an essay, just bullet points and a reason why you want an answer to each particular worry.
You could make a copy for your doctor too and give it to him so that he can read along as you work your way through the points. That might help. Try to keep it brief if possible and stick with yur main worries. Good luck. Just try to stay calm - don’t shout or argue or cry - you can do that once you’re out. Can you take a supportive friend or family member with you for support?
This is something I might do. If you only knew the terror in my heart, because I feel it is my fault that I am fat, and my doctor knows it. My doc is great, but I am the wuss.
No, I can imagine. Three months before I went into total Graves Disease meltdown one GP I saw told me ‘ you’re needing your holiday’. That was after attending for so many vague symptoms even I felt like a hypochondriac. It takes a lot to make me go because I felt so bad before I was diagnosed.
Getting past the receptionist is the first hurdle for me and I just don’t have the strength for it. I do my own finger prick blood tests, deal with the dentist for anything related to my mouth, a fantastic podiatrist for my feet, my Pilates teacher is a physiotherapist, I see my optician for anything related to my eyes and I go to a hearing aid clinic place to have my ears vacuumed - all of which I pay for, I’m a pensioner and I’m definitely not rich - but I’m afraid that I find trying to get to see my GP is a very soul destroying experience - going there is my last resort..
You truly are very close to what I feel. Does not get me through the desk. What I hate is when you check in you are in front of everyone in the waiting area, and the receptionist yells, (yes, I am hard of hearing) are you on medicare for your age? Why are you here today? Do you still have bloody nose problems. Did you urinate or have a bowel movement lately? How often do you have sex? Well maybe not all those, but I just don't feel comfortable at all with sharing private information with everyone. When I mention it, I am told, "get over it", well I am not over it yet.
That’s awful. You can’t help but overhear our receptionist but at least they don’t seem to be ask such searching questions. How about next time you go you could anticipate all her questions and write down the answers to them.
As for ‘get over it’!! Well hopefully anyone who says that will have a similar experience themselves one day. Maybe you could suggest your surgery give you a questionnaire with all the information the receptionist needs then you could fill it in while you are waiting. My previous dental surgery used to do that - book in, collect clipboard with pen and questionable - it doubled as enterta8nment while you waited.
I think you are from the UK, where there appears to be some logic in healthcare. I am from the US, where the bottom line is the dollar. Very different. I think I would be teased if I wrote my responses to questions, or they would read my writings out loud and say huh, and ask why did I write this? Very different.
Sending you a big virtual hug and echoing the previous replies. 🤗🤗🤗
It could be an under active thyroid
I have had this checked a few times, but I will mention it again. My spouse has a thyroid issue, so it is something I am aware of, thanks for your words.
Has your doctor checked that there is no medical reason as asked in the other replies?
It helps me to keep a diary (I use my fitness pal app) when I need to lose weight and I log absolutely everything I eat. It really makes you think about the food choices you are making. Please don’t starve yourself as that will create other problems. I hope you find a solution but do keep talking to us for support x
Puppet69• in reply to
I have thought of an app, but I am old school and do not carry my phone everywhere, like younger people seem to. I will look up and give this app a try. I am getting desperate; and I am not feeling real good about myself.
Is your app called fitness app. I found tons of apps when I looked.
Or you can just write down what you eat in a small notepad that you carry with you, That's what I do.
I will give it a try, it would be easy today so far, water, coffee and a slice of natural ginger.
Puppet69, you will struggle to loose weight without eating. I know it sounds odd, but if you do not eat enough your body will go into starvation mode and reserve energy /fat, youwontloose weight. You could also reset your 'setweight' and make it more difficult in future to maintain a good weight.
Best take Drs advice, but something around 1000 -1200 cals a day will give you a steady weight loss and provide enough nutrients to keep you healthy, which you need with RD.
Thanks for you input. Do you know how hard it is to struggle? When I try and reduce my cal input a day, I panic, actually panic. I might not be worth saving, I feel losie and frankly who cares. The people I know only want to communicate with the version of me that does not exist. Wait, stop, this is more than I want to share now and so please just keep me in your thoughts. . . I am just a puppet. . .
I struggle everyday with the new version of me since I have had RD, most people do. I'm not the person I was or anything like her, I was fit healthy, active, now I'm fat unhealthy and inactive. But things are getting a better now.
Maybe your GP can refer you for some support to help with weight loss, but not eating isn't the answer and has the potential to so you harm. I wish you well.
Please don’t stop eating. Do it gradually, this is a good time of year with fruit and veg, so healthy eating may be easier. And those medical checks sound as though they make sense. More than anything be kind to yourself!
Oh Hun! I feel for you so much. As someone who has lost just under ten stone in the last few years i can really sympathise with your problems and the frustration and anxiety it causes you.
You sound like you have been given some really sound solid ideas from the folks above and of course, all of us wish you success in your fight against the flab that an awful lot of people find themselves doing in these modern times.
I think that if i can give you any ideas that might help you out its to forget about how you grew up and the routines that were instilled in you of when and what to eat. Most of us were brought up with the idea of breakfast, lunch, dinner and then, for some, supper too. Although the spacing of meals could well be of benefit to you the contents may well be what is throwing a spanner in the works! If i were you i would take a look at the ratios of what sort of food is going to be healthy for you and try to stick to that whenever you plan your meals. Planning is by far the most important rule you must stick to and avoid needing to quickly snack on anything handy because you have skimped too much and are ready to consume anything that moves. Rofl.
Your body will respond best when it is fuelled regularly during the day with just enough food of each category to keep it running smoothly and you will feel much better when you blow the idea of having to eat small meals during the day and then having a larger meal in the evening. The idea is to PLAN your food for the day and set it out ready to eat/cook to meet your natural eating routine. For most people this is three meals a day but some people find small meals up to five times a day helps them to get over the hunger thing so it really is up to you. Just make sure that you set yourself an amount of each food group PER DAY and divide that up between how ever many meals you have decided fits your own body.
This tip is just one that i can offer you having been a huge weight loss person myself and of course, the medical tips you have been given by other friends on this site also could affect your outcome so take everything into consideration. My suggestion is just something you can do yourself to try to help and you could well be surprised at how useful this is to your cause.
Take care and i wish you every success in meeting your goals really soon.
X xx
I tell people that my family life when I was young was very dysfunctional, before dysfunctional was popular. We were poor and simply did not have enough anything for all 9 of us. I was next to the last. Sometimes we ate, if the government food was available, other time we just learned to do without. As an adult, I tend to over buy, store, and have ready enough food "to feed an army". My children learned food was always there, even for their friends. I never have, nor never will deny anyone who needs food. I am not a sweet eater, because we did not have sweets as a kid, and so I learned to live without them. I know I tend to overeat, albeit the food is "good for you" kinds of foods. Does this help xandii? Thank you for you encouragement.
Yes Hun ..... i really get where you are coming from with your background story. I too was very poor growing up as my parents split up when i was five and i had a brother and sister. My Mother was taken away in a strait jacket and kept in a mental health hospital for months at a time so we had to live with my grandparents who struggled to feed us all. Consequently I used to keep much more food in the house than i needed and always cooked enough to feed an army! Lol. I cannot even now pass someone who is on the street and hungry and i always go and buy them some food. It is all part of what i was saying about forgetting how you grew up and the habits you had then. Even now i cannot leave anything on my plate as i was taught to eat everything up that you were given so for me the trick is to NOT put it on the plate in the first place! Rofl. To start with when i dished up a meal for myself i would place it on the worktop and look at it and how much food i had given myself to eat and then i would get another plate and divide the food into two halves and immediately put one plate in the fridge. I was never hungry after i had eaten the half portion so that proved to me that i was giving myself too much each meal than i actually needed. Sometimes i had the other plate of food the next day and some days the dog had a lucky break instead. Rofl. It is all about changing the way you look at food and the portions you give yourself. I’m still learning to train myself into new habits and I’m sure i will continue in my quest now for the rest of my life.
Take good care of yourself Hun and remember ..... you are special and always worth it!
X xx
I will try your idea. Most people believe everyone grew up like them, and most of the people in my circle came from good, kind, loving families that ate well all the time. I do not belabor the point, but I can say my family was never good, kind or loving. They did what they had to to to survive, I get that. Thanks for understanding a little.
I understand. I recently posted a question on this exact issue. I have unexplained weight gain. My rheumatologist says its the steroids causing weight gain in spite of healthy, low calorie etc eating and being active. You need to eat well to combat the effects of the RA and the meds. So its a dillema. I tried to cut back my food intake and i got run down.
I would ask to have your thyroid function tested as if it is under active then that will cause a slower metabolism and weight gain. I have just increased my meds for that and it has helped slightly. Take care x
Maybe you are not eating enough or not enough of the right sort of foods for your body.
Maybe it’s your thyroid. Ask your doctor to run a full thyroid panel, that’s TSH, T3, T4 and thyroid antibodies plus vitamin B12, vitamin D, folates and ferritin.
I find I lose weight more easily if I avoid potatoes and grain based carbohydrates - plus chocolate of course.
I will ask for a full thyroid panel when I see my doctor in two weeks. I must say that I love potatoes, and grain based products, and try to limit them. I don't know if I could avoid them completely. I know this goes back to my childhood when I would be given a hot potato in the morning and eat it for lunch. That is what keep me alive. To give it up, would be like giving up an old friend. A friend that keep me going.
Gosh, that hot potato sounds amazing! I can remember people doing that. I stoped jacket potatoes when I developed T2 diabetes when I was given a massive dose of steroids for arthritis. Fortunately it was discovered very quickly because I was taking part in a pre-diabetes study and I was able to act right away. I bought myself a blood sugar meter and discovered that among other carb containing foods my favourite ‘healthy’ lunch of jacket potato and salad spiked my blood sugar really badly as did anything with any sort of grain. I eliminated all the carb based foods that did that, got rid of the T2 and lost a load of weight, presumably because the carbs were being converted and stored as fat. I still eat carbs but get them from different sources. I also went totally gluten free to try and reduce my thyroid antibodies, that worked but I find GF bread is a bit sweet and lacks the things that make a nice thick slice of whole meal or granary bread tasty. I also discovered by testing that I can eat a couple of baby new potatoes without spiking my blood sugar but compared to a nice fluffy jacket potato possibly even with butter - it’s just not the same at all.
I can believe getting rid of your old friend would be very difficult to do. For me it was no longer eating a big fluffy sultana scone at my local garden centre - I’ve seen people eating lovely scones and considered snatching them as I go past and running off with them.
At least if you know how carby something is you could try not to eat too many heavily carby foods on the same day. That might help.
Fingers crossed for the thyroid panel results.
Do you know what your vitamin D and B12, ferritin and folates results are? You want all of them to be well up within their ranges to help your thyroid. Wonder if you could persuade your doctor to test them too although a lot of us test privately because their doctors don’t want to test them. Good luck anyway, you have come to a good place for advice
☀️
Yep strikes me you’re being too restrictive and not eating enough. If you’re eating healthy foods and not filling yourself with high sugar/fatty foods then don’t be so hard on yourself it might be for other reasons that your weight is increasing. It’s not your fault. It seems to be that lots of us with RA or other chronic diseases have issues with weight gain, sometimes there can be other factors to consider like under active thyroid or diabetes or medications or coeliacs but debility has to be the biggest one. If you’re enjoying your life then try not to be so restrictive about eating or starving yourself anyway because that will increase your weight every time.
been there on pred went up from size 14-16 to 22-24.... and when iasked nearest etc got 'no you're fine, not moonfaced' etc.. then i saw a wedding foto .. liars all of 'em. so cut out all white .. bread rice cakes puds sauces.. wine. cabbage with curry, grated carrot/ cucumber snacks, later brekkie, earleir dinner , smaller portions but protein, veg [ and only a little fruit - no juices] took a while but lost loads over abt 7-8 months. good luck xx.
As many others have said, you do need to eat well to maximise weight loss.
I'm trying to shed the weight I have gained since becoming unwell, but don't consider myself to be dieting, just eating healthy and losing a steady amount of weight each week.
If it helps I have either gluten free porridge with semi skimmed milk ( a little salt, but no sugar) each morning with a piece of fruit ...or.... a boiled egg and 1 slice of toast, with fruit (circa 250 - 300 cals breakfast).
Lunchtime a small pack of sushi and a banana.....or..... a bread roll with salad, lots of it, and a slither of cheese or tuna, a handful of raspberries or blueberries or a few strawberries. Or.... a bowl of homemade vegetable soup and two oatcakes. (Circa 300 -400 cals lunch)
Evening meal....a slice of fish ...haddock, or tuna, or salmon or cod, or mackerel.....with lots of veg, one small to medium sized potatoe, always with a small amount of melted butter...or a handful of homemade savoury rice.....or .....pasta.
Once a week I have chicken or red meat instead of fish. You can taste the rice / pasta up with garlic / ginger/ and a squeeze of fresh lime and chopped coriander.
Sometimes I have yoghurt (always full fat, no diet foods ever, I prefer natural yoghurt and chop my own fruit into it)
Or salad night ......lettuce, tomatoes, peppers , cucumber and a small amount of olives, 2 small boiled potatoes, a boiled egg all sliced up with a drizzle of olive oil and a squeeze of fresh lemon and a few slithers of parmesan cheese on top. (Evening meal circa 400-450 calories)
That leaves 100 calories or so for whatever I fancy each day, when I want it....or a semi skimmed latte, every other day, if I'm meeting a friend for coffee.
I had a small ice cream cone with my daughter a few days ago as my extra for that day, but cut out my 'extra' 100 calories the next day too. If you enjoy wine your extra 100 could be a glass of wine every other evening !
I never let myself get hungry, if I'm hungry I eat.....a green tea and an apple, a peppermint tea and half a banana, 2 oatcakes with a slither of butter and a cup of builders tea. I always sit down and take time to eat these wee snacks, psychologically it makes you feel that you have eaten and you feel less hungry.
Once you are established it becomes second nature, and not difficult to do.
Stepping on the scales and seeing the weight loss, is a massive boost ! I've lost 6 lbs in under 2 weeks.
Hi Hun,
Just noticed you like natural yoghurt as i do!
Have you ever looked at Quark ?? You find it in the cheese section by the cottage cheese.
Have a look next time you are in the supermarket and see what you think when you compare the per 100gm figures.
Take care and well done you!
X xx
I've looked at Quark, but haven't bought it , I will do now!
Thanks for the recommendation 😉
Love quark. We limit it nowadays (4 tbs per serving) but it's a good alternative to natural yoghurt or kefir (though not tried the latter). Do try it. We buy ours from Aldi.
I love your dedication and stick to it ness (? I don't know if that is a word, but it is what I see you have). You have the ability to stick to it, I don't even have the desire to stick to it. Sometimes I think I could just take a knife and cut this horrible fat right off me. I don't, but I think about it.
No don’t do that it would be messy😉 I know what you mean though, there are a lot of good autoimmune diets out there but for me there is no point if I don’t actually like the food. Basically I do low carb, high fat, in my case I do gluten free low carb, high fat
dietdoctor.com is a good place to look, they do a weekly free video course on all aspects of what you can eat - like foods grown above ground have fewer carbs than foods that grow underground, recipes and all that sort of thing. Eventually they start to offer ‘stuff’ you can pay for but I don’t use that.
thanks I will look into that.
I love DietDoctor.com and subscribe to the Dr. Fung theory whole heartedly. I'm doing the same structure as yours but going to move to the fast 20 hours, eat in 4 hour window.
May I ask if you fast, too?
I wouldn't call it fast, I just go for periods without food. Mostly because I feel disgusted with myself. My weight seems to be glued to me.
Please don't restrict your intake too much. It's a common mistake people make. The body will automatically go into famine mode if it doesn't get sufficient regular nutrition and will do everything it can to maintain your weight, rather than reduce it. Just thought but do you eat/drink much containing sugar substitutes? I read recently that research has found that these can actually cause the body to retain weight. If your doctor has checked out your thyroid function and found it to be normal could they perhaps refer you to a dietician for advice? I hope you find a solution soon x
Lots of people have suggested my thyroid. I definitely will have this checked out. As a matter of fact I think I will request this test before I see him. I think I can do that.
Can I ask if you're on amlodapine sorry for spelling it's for high blood pressure . Any tablets ending with pine not pine but sounding like peen can cause a huge retention of fluids . Not commonly known but is a massive contra indication . Don't beat yourself up . I'm back on naproxen and I'm putting on weight and retaining fluid . I definitely recommend My fitness app I lost 2 1/2 stone on it last year and haven't put it back on . When I start to gain a few pounds I'm right back on it again . Such as now . Thinking of you 🤗🌷
I checked my meds, and the only "pine" I am on is Nifedipine, which is for my high blood pressure and my heart. I also take a drug to reduce the fluid I tend to retain, something like (excuse my spelling) hydracholoridicene
Have a look at the side effects if Oedema Is one of them and you are definitely retaining a lot of fluid it maybe worth discussing with your GP and see if you could change . This May of course not be the case and I'm not a doctor but it may help . Also see if you can arrange to talk to someone , just opening up a tiny bit to someone who does not know you or have any opinion on your life , may really help . Remember our past may shape us but it never defines you . 🤗🤗🌷
You are right. I am not secure enough to speak with someone outloud. I feel I would be ridiculed and put down. Life is good, but oh do I carry a lot of bad baggage. Maybe someday I will step out, but not today. Thank you, thank you, thank you for your encouragement. It means more than you know.
Have you ever had any form of counselling Puppet69? I’ve re-read your replies to everyone today and do think that your past seems to be affecting what you eat and why. Talking to someone might help you get past those difficulties that are holding you back and you do seem very low at the moment. I hope you find a way forward soon but do keep talking to us on here for support x
Puppet69• in reply to
I have considered it, but have decided not to for many reasons. First and foremost I am retired and on a fairly limited fixed income. We do alright, with normal bills. Can't really swing any new additional bills. I have other reasons, some of which are too embarrassing to put into a form like this. Thank you for your concern.
• in reply toPuppet69
You wouldn’t have to pay Puppet69, you can self refer or get your GP to refer you for NHS counselling. Just so you know if you decide to try it in the future x
Puppet69• in reply to
Thank you, I will try, but basically I only have medicare, and they tend to be not so good. My supplementary is constantly telling me, that is not covered, whatever that is for my health. They say if medicare does not cover it, neither will we. I will keep you information and do thank you for taking time to at least send me a line.
• in reply toPuppet69
I’m sorry Puppet69 I’ve been answering you as if you are in the U.K. but as you said about Medicare I don’t think you are ? If that’s the case then scrap what I said about NHS counselling. Do keep talking to us here though, there are lots of us who are carrying excess weight since we have been less mobile. x
Hi, Puppet
In the US there are many counseling groups who will help and do so on a sliding scale basis according to your income. Lutheran Social Services is great just to name one. If you call Medicare they may be able to offer specific names. Your county health services will certainly have help for you. And, there are many groups which are free to join.
For groups:
The first thing to do is find a group and then go.
The groups are anonymous as most as structured as AA. Don't be afraid to go. Everyone is there for a reason they are there because their issues are not unlike yours.
You may find much solace in knowing you are not alone and even find a new friend or two.
I went to an Alanon group when I was in my twenties. The first time I didn't go in, I just sat outside the church watching people go in. The second time I did go but just was quiet. Finally, the third and fourth time I gave them my first name and started to share. My story, in this group was certainly not the worst but also not the easiest. That alone was helpful but also knowing I wasn't alone and my feelings perfectly normal and acceptable was soothing. The anxiety you feel may have deep roots, Puppet. I urge you to reach out and to continue to reach until you find that helping hand.
I wish you all goodness, Puppet69.
For reasons I can't yet share, I feel I am not eligible for a group. Partly finance and partly my history. Hard to explain, so for now I will say, "nuff said". I have accepted that I am like a little boat floating on the sea, without an anchor and without a port.
How are you getting on Puppet69 ?
Puppet69• in reply to
Just got back from weekend trip to see granddaughter. A little afraid to check both my blood sugar and my weight. Will wait until the morning. Thanks for asking
• in reply toPuppet69
Are you diabetic Puppet69? You haven’t said in previous posts but you said you have to check your blood sugar so now I’m wondering?
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