Does every one agree with me that everyone how has an illness that has on queer should get the enhanced rate of pip for the rest of there life and you don’t have to get an assessment every three years
Pip: Does every one agree with me that everyone how has... - NRAS
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Jimbo64
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38 Replies
•
Jimbo you are very right in saying that i aggree with you am worried as mine is due soon and if i dont geg it again my car will have to go then what do i do about getting about
I’m not sure what ‘on queer ‘ means Jimbo so I can’t comment on that but not everyone gets an award for just 3 years.
Jimbo64• in reply to
Hi Kitty i ment to say incurable
I don't get the enhanced rate and I am afraid to apply for it in case I lose what I have
Exactly..... but if the assessors were qualified to recognise your condition and understand why you need PIP you wouldn’t need to feel like that. I stupidly volunteered for some sort of research study and the woman came to my house and started asking questions from her clipboard, and it was quite obvious she didn’t understand the question so when I gave her the answer she just looked at me.
In the end I politely ...well quite politely .....said to her I don’t think we’re getting anywhere do you and she left .
That taught me not to volunteer .
Thank you for replying, even though I have become a lot worse my local advice centre have advised against trying to get the enhanced rate.
That is so wrong..... I know very little about how to apply for benefits et cetera but if the CAB ....which is what I am presume you are referring to ...... has advised against you re-applying they presumably understand the system...& feel you would not get a good outcome .
It's not the cab but a local resource centre in n.Ireland. lots of ill people here are getting re_assessed resulting in benefit reductions
Hi mccaffs2014 I'm the same got face to face by capita in Belfast lost full care got 1point short yet worse .people here are to scared of losing it all .amy
Of course I suppose it doesn’t help in Northern Ireland that you haven’t had a government sitting for so long-let’s hope when all this Brexit nonsense is sorted there will be elections or whatever needs to happen to get your government back in place .
So true.
Got moved from DLA and had the assessment in October. I got higher rate for daily living, but standard for mobility because the assessor 'saw me walk 20m supported on my friends arm'. I'd appeal, but don't want the stress, or like Mccaffs, the risk of losing what I did get.
Quite a few centres a couple of years back measured the distance from parking spaces to reception desk, a number of people who stated they could NOT walk 50 meters walked 80 + metres, some immediately had benefits cancelled without even getting the re assessment
Thing is, you're supposed to be able to do the activity, safely, repeatedly and within a reaonable time. In my case for example, I wouldn't be able to do that distance repeatedly and certainly not without my neighbour taking my weight on his arm. Since I don't have my neighbour to hand at all times - he just did me a favour taking me to the assessment - it isn't fair to judge what I could do at that time. They do this kind of thing all the time.
I had my PIP review April 2018 & my award was increased from enhanced Daily Care & no award for Mobility to enhanced Daily Care & enhanced Mobility. My next review won't be until April 2024 (though as previously it will be a year or thereabouts before so 2023) so was extended from 3 years to 6 years. This period was acknowledged as my situation is unlikely to change much before my next renewal so it does vary, it's not an inclusive time period.
I can only surmise it still depends on how your disability affects you. My mobility has declined since my first PIP application/assessment, this was acknowledged in my award. I still wonder in your case if it wasn't declared as a problem (you didn't disclose it in your renewal form) that your two new knees are considered such that your mobility has improved hence fewer points which is reflected in the reduction in your previous award from enhanced to standard.
Sorry to not fully agree with you, I think each application is/should be awarded according to need. We do have big issues with interpretation (by Assessors) I totally accept that, not sure how quickly the DWP are addressing them in all honesty.
If you feel your disability has worsened & this isn't reflected in your renewal award then the initial step is to request a copy of the Assessor's report, then if you feel it's unjust go forward to Mandatory Reconsideration. Seek advise from the disability forums, Benefits & Work are supposed to be good at all things PIP related, ask for help from Citizens Advice if you don't feel confident enough to form your argument.
Hi nomoreheel answer to both my knees replacedments I still have trouble walking my balance is terrible and now I’m getting checked for bowl cancer
Was your balance commented on at all by the Assessor?
I'm sorry you're being checked for bowel cancer. If you prefer not to request MR & depending on your results you may consider applying for a Change in Circumstances?
No the Assessor didn’t say enything I nearly went in to a glass cabinet the Assessor had to stop me
Did you ask for a copy of the report?
What do you mean by “on queer”?
For people too old to get pip,the only way they can get any sort of Benefit is to apply for attendance allowance...no matter how much worse they are than younger people.
All Benefits should be given on need, & how incapacitated someone is ...not just because they have been diagnosed with some condition.
Assessments are made in a very ad hoc way-that is what should be
addressed....... The people employed to do assessments should have recognised qualifications ..... that way those who are the most deserving would get what they need.
The PIP process is a national disgrace. Really it should be carried out by medical professionals who see you AND your medical records and assessed whenever a change is obviously longer term than just you on a single assessment day. At the moment a short period of feeling a bit better makes you worry you'll be jailed. It really needs to be much more reasonable in how it is awarded, removed and prosecuted for.
It genuinely does cost more for you to live if your seriously affected. Taxis, restrictions on where you can buy stuff, buying in help for the million and one things you used to do but now cannot....
If people need it they should get it. No question. However, it is possible for people's circumastamces to change radically, and not always for the worse. Sometimes people can improve hugely, so no I don't think just because you have a disease that is currently incurable you should get PIP for life. However the assessment process is crap!
We're currently running a survey for benefits (PIP and UC):
surveymonkey.co.uk/r/nras-b...
Following this, we will be running a campaign aimed at improving the benefits system for people with RA and JIA.
We would be very grateful if you could help us out with this. It shouldn't take longer than 5 minutes.
Thank you,
Emma B - NRAS
No I don't agree because some illnesses you can recover from so it can't be blanket cover. Much like travel insurance things change so get better or worse. It needs to be better examination by medical personell like a proper nurse or doctor. In my view having a particular illness should not mean automatic entitlement unless its end of life. No easy solution to these issues.
Incurable doesn’t mean that you should automatically get PIP. Many folk are well controlled disease wise and therefore shouldn’t get it. It’s not a right but there for people who genuinely couldn’t function without it.
Most people’s illnesses get worse as years go by so therefore they deserve pip for life I my self suffer from Rheumatoid Arthritis and Osteoarthritis so I deserve pip for life but the robbers at the DWP have reduced my mobility from enhanced to standard and I’m losing my mobility car so I can’t get to doctor appointments and hospital appointments
• in reply toJimbo64
Sorry but I don’t agree just because you have OA and RA you deserve it. If you have been refused mobility then you can go for mandatory reconsideration if you feel you should qualify, then appeal after that. Good luck and let us know how it goes.
I too have RA (& OA ) for life, & at times have been housebound - which living alone can be difficult, but I certainly don’t think I deserve PIP for life. In fact I’m too old to apply for it, & it would be nice if some physical help could be available when needed. I have my own car, but if I’m not able to drive for any reason it costs me £50 return in a taxi to get to the hospital....the days of hospital transport seem to be long gone.
Unless you have something like Down’s Syndrome -from which there is no recovery - there should be assessments at regular intervals so that Benefits are awarded as fairly as possible.
At the moment the assessments definitely need looking at....certainly the assessors should be required to know something about the condition of the person they are assessing.
I think if assessors had to be present at appeals & justify their reports, more care may be taken, & the powers that be might understand where they are going wrong.
• in reply toAgedCrone
My friend lost one arm and one leg on the same side in an accident and he was recently called in for an assessment. He did ask them If they thought he would get better as it is unlikely his arm and leg would grow back
AgedCrone• in reply to
My Godson has Down’s Syndrome...when his mother took him for his assessment the assessor asked if he had been “Clinically Diagnosed”..May the same assessor?
I'm sorry you feel so hard done by and it is a difficult situation. I've worked all my life paid in as a higher rate taxpayer moreover and am now hit with RA, Kidney failure stage 4, Thyroid failure dating back 30 years or more, Cylindrical Bronchectasis and this week Gout!! I've never had a day unemployed or any state benefits, but I don't think I should qualfy automatically for any help. It has to be done on a test basis its not perfect but does'nt mean to say they get it wrong all the time. By the way I've worked in benefits too and could add a lot more.. The system is not perfect we all know that, but its not so easy to get a one size fits all system. If you feel so strongly then appeal and contact the CAB and your MP for support. It may help and I wish you well.
I agree with you ML.....if everybody diagnosed with RA could claim PIP, it would be far too much of a strain on the system. But I do think there should be some sort of help scheme whereby if somebody with an ongoing disease like RA is house bound for a while...either financial or physical help when recommended by your doctor, it might go someway to
lessen the affect when people have their Benefits reduced.
AC
PS (You just shouldn't have had that last glass of Port should you?)
LOL I wis it was down to port. and yes definately should be a recognised and respected qualification such as nurse or gp. x
• in reply tomedway-lady
I agree but do feel that the assessors should be qualified as there is no way anyone could work or even communicate on some of the crap that they give to me, presently now on 25 pills every day.
medway-lady• in reply to
Me and totally agree- properly qulaified and not just a weeks trainig as disabilty is complex.
TBH all it needs is someone with a bit of common sense-when I was applying for attendance announce for my aunt who was then 92 the assessor was obsessed with whether she could get into a Victorian bath which stood about 3 foot off the ground and my aunt was 4’ 10”..... I am 5‘4“ tall and I would’ve had difficulty getting into that bath ......but this girl who was about 20 wrote on the report that my aunt had a daily bath .... so not unreasonably they decided she did not need daily help . Eventually a retired GP did the assessment and actually put pen to paper and said how ridiculous it was that a lady of such great age had to go jump through hoops to get what she obviously needed.
The sad thing was she had to go into a nursing home before she got a penny
RA and many other chronic diseases fall within a wide spectrum, i.e. from recently diagnosed, affecting only a few joints to long standing disease, every joint affected, deformed/worn out necessitating lots of surgery. There are so many variables and factors that make everyone's RA different that it would be impossible to put everyone in the same category, so no, I do not agree everyone with RA should be eligible for life time PIP.
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