Anyone got any experience using... Rheumabuddy: Mobil... - NRAS

NRAS
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Anyone got any experience using... Rheumabuddy: Mobile App

Should I try this app? thoughts and opinions will be appreciated...

17 Replies
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Nope never heard of it

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Developed by NRAS, here's link

nras.org.uk/rheumabuddy-an-...

I downloaded it, but didn't find it useful.

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Tried it but it just made it harder to not focus on the RA ! Made the RA higher profile so a bit of a downer ?

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I tried using it for a while but it made me feel more depressed focussing on my symptoms every day. But it was a good way of keeping a record of what was happening and did make me realise how much I just accept disability.

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I do use it , but find it does not transfer the scores you record every day onto the graph, which isvery annoying at times.

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I did try it briefly but, as others have said already, I found it made me concentrate too much on the RD. I am more than my complaint

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Exactly.... no matter how rough I’m feeling I don’t really want to dwell on it & write about RA 24/7!

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I tried it and not for me. I try to focus on life and staying positive

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Nope, for all the reasons listed above but have kept records before & not found at all helpful because it’s an unpredictable disease & little you can do changes that.

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There are 2, Rheumabuddy and 'Know your DAS'. I use Rheumabuddy more and its graphs are fab. Very useful for my nurse appointments. The socual function is pretty pointless but the logging is good. (Has a reminder function too) Heads up, you have to slide the markers and not click on the score

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I've used it for a while and because you have to score your pain, stiffness, mood and fatigue daily it does make everything more "in your face" and conscious rather than subconscious on a daily basis.

I started using it on my old phone when it came out - early last year I think. In late June I got a new phone but I still have to use my old phone because the data won't transfer to my new phone. So if I use my new phone, all my old data is gone. Extremely annoying!

I contacted the help desk last July and every 2/3 months I get an email from them. But it's still not resolved.

Given that I was using it to keep a record, it's really annoying that it's not a mobile record as I can only see it and add to it on that one phone.

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Responses on this one seem fairly negative MJBH. Are you still going to give it a try?

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Errr, No....

I find it rather disappointing that RB is the best they've got...Maybe an app has limitations helping people cope with a disease...

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Dear RheumaBuddy users,

We are happy to see that you are using the app. We want to let you know that we hear your concerns, and that we have collected your thoughtful feedback from the last months. We are now in the middle of building an updated and improved version of the app which will be more efficient, and hopefully address most of your concerns.

Thank you for your great input!

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I'm flabbergasted you replied, well done... Get your act togeher as people with RA Need all the help they can get..thank you...

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i just started last week. its pretty good

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