Big update time! Can I apologise in advance that I won't be able to answer each and every reply to this, or get into discussions - I'm preparing to move house. For the first time in 45 years!
After a season of waiting,waiting - for the results of latest foot scan;. for the PIP decision; for the council to offer me a sheltered housing flat..... everything happened in one week!! The PIP letter arrived on the Monday, and unbelievably, they've given me the lot! Same as I had before, full award, nothing changed or taken away. I was still reeling from that wonderful but completely unexpected news, when two days later- and on my birthday!!! - I got a phone call saying I've been allocated a flat! So I'm moving to the "big city" in two weeks time! The stress and pressure are unavoidably getting to me a bit, but I know it's the right move for me. At last I won't have to struggle upstairs every time I go to the loo! The emotional upheaval is massive too, but I've had a lot of help, and I'm coping. But it's still the most daunting thing I have ever done. 😨
Lastly, my rheumy sent me a letter about the results of the ultrasound on my feet, and it arrived at the same time as all the other news..... it's a bit weird. After 6 years of every scan showing joint inflammation and erosion consistent with rheumatoid, THIS one shows no inflammation in my joints!! What???? The pain certainly hasn't changed. She now says it's more osteoarthritis changes in my feet. What??? The only explanation I can come up with, is that a couple of months ago I started taking Advanced Turmeric with Bioperine capsules. I won't mention the company's name that I get them from but it'll be easily found. I tell you, guys, I can't get my head around this - where did the RA joint inflammation go? Really need a talk with rheumy, but she's sent me an appointment, not till August!
So, still in severe pain, I'm having to concentrate on packing and getting rid of stuff, and organizing is no longer easy for me. But I'll get there!
Sorry this is so long, but wanted to share all my news with you. I promise to read any replies but please excuse me from answering again - there just aren't enough hours in the day at the moment.
Thank you all for reading.
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scotslass333
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Thanks for sharing, Great news!!!good luck with your move 🤗 X
A very busy lady, but so pleased things are going your way, moving is a very big stress. My sister and husband moved a couple of weeks ago, took 14 months, they were so stressed and they don't have RD, but getting older and downsizing. Good news with your PIP. August is a long wait for your rheumy appointment, hopefully you may just be able to bring it forward. ( or win the lottery ) !!!! Take care a big change in your life but enjoy. X
Such good news Sheena, it could have been spread out a little but hey, who's complaining, it's better than a poke in the eye with a big stick. In order of most happiest for you... PIP (so, so pleased, a long time coming), moving (that will be hard work but will be so worth the effort) & your feet (well, whatever it is it's painful so hope your Rheumy has a plan in place).
I moved last November to be on one level, and nearer family.....and downsizing after 40 + years.
It has been hard work, and I still have packing cases. My advice is to take things slowly once you have moved. The packing cases are going nowhere!! At least you will have a direct move, I had two mini moves, and all my furniture was in storage.
Make sure you keep tv controls and phones safely separate....it's amazing how easily they get lost.
I now know that my decision to move was the right one. I hope you will also feel that. The best of luck, hope you have lots of help. Welcome to your new life......and belated birthday wishes xx
Wow! What an eventful week you've had. I'm thrilled DWP got the right result for you, tickled pink by your move to a much longed-for flat, not so sure about the result of the scan of your feet but, hey, happy birthday! I hope all goes well for your move. I've always found it useful to pack a box of necessities to stay in the car with me or easily accessible. A kettle, tea cups or mugs, teaspoons, tea, coffee, milk, washing up liquid and brush or dishcloth, loo roll, soap, teatowel or kitchen roll, a couple of light bulbs and biscuits should keep you going. If, on arrival, you make your bed everything else can be done as and when you feel you want to. I wish you all the very best for your new life
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Changing my diet may give me some relief, is it all in my head?
Changing the day for MTS
change of pain relief.
Change biological drugs
