Photo

[Vonnie10]

Photo pre RA I’m scared to take one 3years later and 3 years of steroids isn’t a good look .

[rabbits65]

I am sure you look just as good

[Shalf]

But regardless what you say following your pic Vonnie, look at you!! Beautiful!! Truly attractive and healthy looking!! What went wrong to develop RA? Do you think?

[Vonnie10 in reply to Shalf]

Suzie I have no clue I don’t think anyone in my family had it, although my mum didn’t suffer with her hands but never diagnosed with it and not Like the way I suffer, I literally feel like stone but anyway that’s me I’ve put on weight due to the steroids, my rtx isn’t working so gods knows what’s next for me I had to get rid of my love,y bike as well. X

[sjhewitt42]

Love pic Vonnie.. I didn’t expect you to look like that somehow!! xxx

[Vonnie10 in reply to sjhewitt42]

I wonder what you expected sj? The mind bogglesm me just pre diagnoses not so long ago before all this horrible pain and stiffness. X

[sjhewitt42 in reply to Vonnie10]

I think I expected really dark hair for some reason.. I know what you mean but I was diagnosed at 25 so can’t remember how that felt!! Sarah xx

[Vonnie10 in reply to sjhewitt42]

Sj how sad most of your life I was 50 so don’t know how you coped at 25 , I feel like stone I hate it with a huge passion, it’s raging at the minute I need some steroids hate it but love that the steroids stop it . I hope your not suffering . X

[sjhewitt42 in reply to Vonnie10]

I am suffering terribly at the moment but I have 3 boys (4 if you count my husband 😂) so I have to dig deep at times. It takes years to come to terms with it I think so the hatred has gone and it’s just my sheer bloody mindedness that keeps me going. xxx

[Vonnie10 in reply to sjhewitt42]

Sj could you imagine if it was your hubby that had it I know mine would be I can’t do a thing , mine is pretty useless, I’m still doing all the same stuff as before RA people don’t get it really donr get me wrong he is a good hubby but clueless when it comes to me struggling or maybe I just plod on, could scream at times tho. X

[sjhewitt42 in reply to Vonnie10]

I know exactly what you mean.. I also think because we soldier on and are so strong we aren’t good at giving signals when we need help!!! I virtually have to spell it out!! Lol Eg Please put the washing in the machine.... he puts it in and doesn’t turn the bugger on. 😂

[Vonnie10 in reply to sjhewitt42]

We live to fight another day sj I literally have to be crying real tears till I’m kind of believed hard work isn’t it, he tells all is mates she suffers terrible blah blah but still wants is tea, there’s hysterical I’m passed caring now . X

[Nsmith13]

Yep you look dam fine I'm on steroids been on them ages blow my face up and the other parts of me but the relief,,,,..,,,.,... makes me feel lovely would rather look fat and bloated anyway than suffer so much pain

[janny55 in reply to Nsmith13]

Very true Nsmith13 I said I would rather have 6 heads than not be able to walk and have all that pain 🤦‍♀️🤦‍♀️

[Vonnie10 in reply to janny55]

Jan in agree x

[Vonnie10 in reply to Nsmith13]

Nsmith I’ve been on steroids fir almost 3 years I love the way they calm the disease down I’m addicted but it’s injection I have every 6/8 weeks just wished they would give me oral because nothing as worked for me started rtx 8 weeks ago that hasn’t touched my RA I’m now desperate for a injection, I did book in two weeks ago but then I got a cold and cough so I’m booking in ASAP how good are steroids tho I love them. X

[janny55 in reply to Vonnie10]

Steroids are amazing I went from not being able to move from my hospital bed to being able to walk up and down the corridors, I had intravenous steroids, now on oral, I know they not good for your bones and the side affects( I break out in sweats all the time ) but it far outweighs being able to walk and virtually pain free 🤗x

[Nsmith13 in reply to Vonnie10]

I'm on tabs I take 2 in a morning so it's abt 10 I had dexta scan and I can carry on which is great news as I've tried bio mtx and others I'm still on hydoxy still have flairs an swelling

[Vonnie10 in reply to Nsmith13]

I see the consultant in February I’m going to demand they give me oral cos this is no quality of life struggling frequent they say rtx takes upto 12 weeks it’s now been 8 weeks there about I think and I’m worst than ever,like a cripple at times, it’s no fun. They keep saying I’m to young and try this first 3 years later. Still no better really great when they give me a shot for about 6 weeks max then downhill after that. X

[jojo_71 in reply to Vonnie10]

Hey hun. I would try to keep on with the injections.. If you can. Do they control disease OK at first? I was on oral for ages. But that was back in 80s /early 90s before they had anything else. I have really weak bones now, and broke my hip 8 Yrs ago, just from falling onto carpet. If you need short short term it's OK, but the injections do a lot less damage.. Is it rituximab your now on? Am on that and it is working, but it did takes ages to kick in, so I had steroid injections to help me over the first Yr or so... Main thing is tho really that disease is controlled, as if not its damaging joints, and there's only one option after that. Take care. Jo x

[Mmrr]

lots of us have put up pre RD photos ! me too. you look great.

[Hidden]

No yet bike missus...bet you still look great!

[Vonnie10 in reply to Hidden]

Net I love that bike it had to go 😠

[NanaFifi]

Hi Vonnie!

[Vonnie10 in reply to NanaFifi]

Hi Fife x

[keeta]

You look lovely x