Fed up with pain: I have oa and fed up with the pain... - NRAS

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Fed up with pain

Jobslot profile image
7 Replies

I have oa and fed up with the pain, every time I visit the hospital I get my hopes up when they prescribe a new pain killer and after being on the new one for over a month still in constant pain any ideas on a pain killer that actually works .?

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Jobslot profile image
Jobslot
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7 Replies
Mmrr profile image
Mmrr

Firstly sorry to hear you are in so much pain. Can I ask do you have RA too ? If you have OA without RA you might be better on the OA forum, people there may be able to give more specific help.

You say you have been given drugs by the hospital, can I ask who you see there and why have you been referred to the hospital with OA ? How long have you had OA for ? Is a joint replacement being considered ?

Sometimes people have both, RA and OA like me ! NSAIDs are usually prescribed such as voltarol or naproxen, these tend to be the main medication for OA. Can I ask what you have been given ? NSAIDs can take a few days to work and need to be taken regularly to keep the OA managable, even missing one dose can make a difference to me and I've been taking voltarol for 27 years ! It's a bummer but thats the way it is sometimes.

There is no one drug that will work for everyone sometimes it is trial and error to find one that works for you. What have you been prescribed ?

Nsmith13 profile image
Nsmith13 in reply to Mmrr

Think when it's really bad you need morphine, you can get oral or tabs

Matilda_1922 profile image
Matilda_1922 in reply to Mmrr

I’m sorry to hear that you are in so much pain. If it’s oa and over 62 you will be able to have surgery by the NHS otherwise you need to go private. Have a friend who chose to have surgery in France. A lot cheaper than the UK.

Simba1992 profile image
Simba1992

Hello jobslot,

Perhaps it would be an idea to look into LDN. It has shown to make a big difference with pain in OA.

ldnscience.org/resources/in...

helixhelix profile image
helixhelix

I have both RA and OA. And often the OA is my greater problem...it's a rubbish thing to have.

What I have found is that it helps to really identify what is causing the pain. So for example I have several herniated discs in my back, but it's not the disc that's causing the pain but the way my muscles have contracted to protect my spine, and the way the nerves have been squished. So pain killers are useless most times, and all that works is exercise. But with my shoulder the bone spurs cause inflammation, so finding the right anti-inflammatory was the best thing. And if, for example, you have knees that are bone on bone then you need to push your doctors to Intervene more radically.

Matilda_1922 profile image
Matilda_1922 in reply to helixhelix

I’m sorry to hear of your plight.Have you tried amitryptline worked for me. I too been told I have Both RA and OA but fingers crossed it the RA that causes me the greatest problem.

Hope you find something soon to help ease the pain.

cariad68 profile image
cariad68

Good question. No one can answer that. What works for someone won't work for you. I am the same as you when they prescribe a new drug I am so happy looking forward to better days. But in the last 25yrs it has not happened. Now I am on mtx injection 25mg weekly. Just about managing. Also folic acid is a must. The last visit they prescribed leflunomide and a course of prednisolone. Three days into it couln't move my shoulders and my bottom teeth were hurting at the roots I couldn't eat. So stopped tabs myself .another huge blow to upset things the RA consultant of 20yrs died in a climbing accident. So next appt is not for another six months although can see nurse. So my advice is trial and error, there are so many factors affecting RA find out what they are for you. Food, drink, rest, emotions,stress these are the things I try to control.

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