Which infusion: I am in need of some advice. I have RA... - NRAS

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Which infusion

Olmettig profile image
7 Replies

I am in need of some advice. I have RA seropositive and Fibromyalgia. I thought I had it under control the last few months. But I think I might be in a flare. My body hurts to touch! I am taking plaquenal and cymbolyta for RA and the Fibromyalgia. Already had methotrexate and leflomide, was not working. What infusion is the best??

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Olmettig profile image
Olmettig
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7 Replies
oldtimer profile image
oldtimer

Have a look at the treatment pages on the NRAS website. There are quite few now and they work on different parts of the immune system, so it isn't a case of which one is best, but which one is best for your particular brand of Rheumatoid Disease! You need to discuss this with your medical team, but go armed with information.

Olmettig profile image
Olmettig in reply tooldtimer

Thank you, I will research before I go. I appreciate your good advice.

AgedCrone profile image
AgedCrone

Only your medics can tell you what may be suitable.

What helps others will not necessarily help you.

Olmettig profile image
Olmettig in reply toAgedCrone

Thats true, I was just trying to see if there is a more common one to start with.

AgedCrone profile image
AgedCrone in reply toOlmettig

Not really.....your physicians will know why your past drugs haven't worked & will include all that information & your present condition, when they decide what to offer,

For instance, I'd had cancer & I was only given the choice of two Biologcs that were thought suitable. But some have far many to choose from.

Look at what you are offered,& if all things are equal you can choose whichever fits your lifestyle. I chose 6 monthly infusions, but that might not be everyone's choice,

Mintychristine profile image
Mintychristine

I have been taking Palanquin + Sulphasalizine for about 4yrs since diagnosis. Good days some really bad days Joints are damaged but still mobile etc. Been on Methotrexate about yr I'm used to it I take it at night drink loads water and keep my w\e clear. Last wk at review I have patch of eczema \psoriasis he decreased my palanquin to 1 day I feel slightly better I suppose the only fact is each one of us is different what's ok for one there's no blanket treatment And the most irritating thing is we are just trying to get through I wish you the very best and hope you can get what works for you x

Olmettig profile image
Olmettig in reply toMintychristine

Thank you, I to have tried Methotrexate, made me really sick. I have notice a change on only my left side of face, keeps breaking out. I am wondering if it is from the plaquenal. I will see what they suggest at my next visit. Hope your feeling better.

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