Thought I would come on and say hi and have a nose through experiences as i don't necessarily fit the 'norm' criteria i believe?? I may have an inflammatory arthritis, i may not. Any advice or experiences greatly received
so...
I have had odd joint pains dating from 2013.....
However,things seemed to progress from March this year as I have had continuous but migrating joint pain, with no pain free days. First, my fingers swelled and were stiff and painful in the mornings and evenings after sitting and relaxing. This lasted for 14 weeks alongside pain either in my achilles, left elbow, knees and hips and right shoulder. All bloods are negative but I had an appointment with a rheumy who told me that 3% of people can have inflammation without the bloods being positive. The only positive I had was a slightly raised RF 1/80. He asked me to trial Kenlog 80mg intramuscular injection beginning of Sept to determine that if it worked that it would point to an inflammatory arthritis. I'm not sure how long it was supposed to last for or take to work, I forgot to ask! But after 6 days my flare that I had in my shoulder when seeing him had gone. I was pain free getting up in the morning with my achilles and ankles- it was amazing to feel 'normal' again! Fastforward 3 weeks and here I am now....... achilles, ankles, hip and shoulder on the beginning of a flare.
So i wonder if it is RA at all or should the injection have lasted for longer if it was? I have next rheumy in Dec, so until then it looks like I'm back to being in pain again
Hello, and welcome. We're not doctors, but what you describe fits into the normal experiences here. Sure the books say it starts with hands and feet, and is symmetrical, and maybe that's the majority. But there's certainly a large majority of people who don't start that way.
However great that your doctor wanted to try steroids as a diagnostic, lots don't and just leave you in pain. For me they last 6 weeks on average, but it varies and some people only get a couple of weeks relief. If steroids do work for you, then you could ask your GP for prescription strength anti-inflammatorys to tide you over until next appointment with rheum? If you do get them, stop them 5 days or so before appointment so rheum has the unvarnished view of your joints.
now thats good ADVICE not opinionated as i "LIKE"to ask what about tum with strong anti inflammatorys and if "chatting" what are they
I have omeprazole to take once a day when I'm taking strong anti inflammatories
i have taken omaprozole it does work but off to private hospital friday 3/4 being icky/sick daily 3 endoscopes one up nose and they talking about bottom end but we will leave it unless necessary probing and poking can get you BROWNED off wife says i need that white stuff drink it and they watch throat i think but all the "EXPERTS" keep coming and going and failing again you may think i don't "LIKE" I don't "LIKE" if they don't listen to obvious PUT ME on day ward video me and something to EAT AND DRINKi wont be in for an hour or if they they want brecky dinner but wont listen sos pen for going on