Burn out

[Elswick]

I hear some people say their RA just disappeared a burn out is this true if so I live in hope and their is light at the end of the tunnel. A chap I no at work he had it couldn’t cope with any of the drugs prescribed to him came off just takes ibrufon etc now when he gets a flare up is this possible !!!😚

[helixhelix]

There is a form of it called reactive arthritis that does tend to go after a year or two, seems to be more common in younger men. My rheumy did tell me that she has had a very few patients whose disease calmed down after a few years of aggressive treatment and they went into long term remission and were able to come off drugs. So I'm still hoping that will be me too!

And yes, some people do have a less aggressive type where you may be able to cope just using anti-inflammatories for flares. However what you won't know is what damage is being done in the meantime as this disease can attack many different bits of your body without obvious pain.

[Elswick in reply to helixhelix]

Thanks for information be nice if it did disappear and I start to feel normal get my life back just feeling low today feeling sorry for myself I will be ok tomorrow once again thanks 👍

[JayneN in reply to Elswick]

Never apologise for feeling low or feeling sorry for yourself... seriously we all have them days , some more than others but we can all relate to it .... hope your feeling better soon 🌹

[Hidden]

I think it’s rare but I’m told by my rheum that mine is probably a relapsing remitting non erosive sort - similar to the type of MS some get. It’s presently in flare again but I have Sjögren’s. I did speak to a secretary of a GP reception a few years ago who told me that she’d had RA, failed all DMARDs so put on Embrel - it went and after a few years she was able to stop altogether and it had not returned although she had been off it by a few years at the time of speaking to me.

The same week I met an elderly woman who had been diagnosed many years ago but has only had a few big flares and never been offered or taken any DMARDs. She sees a rheum every year who tells her that her RA is inactive. I have to say her hands are very drifted in classic RA way though.

[oldtimer]

I was told that my disease had 'burnt out' in my fifties and came off DMARDs. Then about ten years later I had a major flare with problems with other body systems and have been back on medication since. Looking back at those 'free from' years, I could identify that that I continued to have occasional, low grade symptoms that I attributed to 'wear and tear'.

[kaypiercy]

I wish

[Vonnie10]

Wish mine would burn out and go away I’m having issues with all the drugs lots of side effect oh how I hate this disease

[Elswick in reply to Vonnie10]

Same here I am a beginner and it’s getting me down I am only on methotrexate 10 weeks now feel nauseous and extremely tired all the time is this my life now 🙁

[Vonnie10 in reply to Elswick]

I’m three years in I’m having horrible blurry eyes and bad headaches with Leflunomide started it Monday , why can’t they just do a test to see what I’m intolerance to, I’m on about my fifth drug I think, I’m flying through there drugs list what will be left for me. So I’ve rang and left amessage can’t be doing with this in my eyes 👀 hopefully your not like me .

[Elswick in reply to Vonnie10]

No way I shouldn’t moan 3 yrs how do you cope and now your eyes as well soz for going on I hope you get sorted soon sending you a wish you will soon x

[Vonnie10 in reply to Elswick]

I don’t know how I go on fed up of it all, think I need a break from it all but I know for a fact if I take a break I will be crippled at the end if it hopefully your treatment plan is going to stop it in it tracks.

[JayneN in reply to Vonnie10]

I’ve been getting blurry eyes for months so decided to go for an eye test yesterday . I was told my eyes were exactly the same as 12 month ago so still only need reading glasses but they said my eyes were very dry mainly because of the RA and MTX so I need drops from doctors . Hope u get sorted soon .

[Vonnie10 in reply to JayneN]

So your eyes are blurry because of dry eyes ? Great you got sorted and ar3 doing well.

[JayneN in reply to Vonnie10]

That’s what the optician and Rheumy nurses told me

[Vonnie10 in reply to JayneN]

That’s great mine aren’t that dry to cause such headache and cloudiness I’m happy you got sorted .😀

[Hessie5 in reply to Vonnie10]

Totally concur, I am now going to another biologics! Feel like just giving up these drugs and living with it !

[Vonnie10 in reply to Hessie5]

Hessie isn’t it anightmare I live on steroid jabs just had my second one last week . When does it end ? I hate it with a passion .

[charisma in reply to Elswick]

Hi, it takes at least three months of taking DMARDs to feel the benefit. I felt like death during the time before drugs had the desired effect, so tired, pale, sick and painfilled. So hang in...

[JayneN in reply to charisma]

I’ve been on MTX for 8-9 month and Biologics 6 weeks. I can feel the difference but still in a lot of pain but hopefully in time I see a difference even to just have a bit of normality back in my life.

[Bookworm55]

I too know someone who was diagnosed some years ago, is on no dmards and says she just takes painkillers and drinks cider vinegar if she gets symptoms. I have very mild symptoms atm but have been on methotrexate and hydroxychloroquine. I have just had to stop hydroxychloroquine due to eye problems and am apprehensive, but curious about how this will affect me.

[Vonnie10 in reply to Bookworm55]

Apple cider vinegar I don’t think that Wichita it for me oh how I wish

[gilox]

I was lucky enough to be in remission for about a year, had a really bad flu, when I recovered from that I realised I was actually walking downstairs & not holding on to the rail! I could even walk upstairs free hand! It’s back again now &have just started Humira, with little effect so far, but Will always be thankful for that year of freedom.

[Vonnie10]

I’m so fed up of all these drugs just spoke with the nurse she said leav e it for a few days try again , it’s not just my eyes I had a blinding headache I felt funny thought I something was going to happen to me , all well and good her saying leave it and then re try it it’s not her body she all these drugs are going in three years down the line I’m still no better fed up wished there was another way.

[Hessie5 in reply to Vonnie10]

Hi Vonnie - I can relate to your message ! My consultant change me to a biologic back in January 18. Only to be told if anything it is worse the inflammation in my foot and it has moved! It just made me think I am injecting all this poison every week for it to get worse 😬..... I just breathe gently and taking things slowly. Wising you well.

[Vonnie10 in reply to Hessie5]

Hessie fluimide I’m on now amongst a good few other then after failing 2 biological drugs this fluimide or what ever it’s called iis giving me the worst headache ever I literally thought on Saturday something was going to happen to me just pure poison in my body like yourself I hope you get sorted soon 😘

[Hidden]

I too went gluten free and found great improvement but doc said I was not gluten intolerant so gluten free was not my answer. So I went back to a regular not to healthy diet and am now in pain again. On methotrexate that makes me feel awful. I wish there was an answer.