Flare or increasing disease activity

[sallygrain]

Hi all

Woke this am with shocking pain and stiffness not experienced before. I have been getting increasing disease activity but it always fades to barable after few hours and i get through the day only to return at night - that moment you stand up to get ready for bed and almost fall over because yr ankles dont work!

I am unable to contemplate even the most basic activity. My hubby brought me paperto read in bed cannot lift the bloodything I Had flares or thought i had but this is a step change. Someone recently said 24-36 hrs. Please tell me thats is likley gona go soon. I am on metaject hydroxy How does the falre versus disease activity work with DEs score. As drugs currently not doing anything. Our hopital use DAS rather loosly but still wont let me have biologicals without 2 moths of high enough score

Best s

[allanah]

So document this as evidence for your biologics. Write down your pain. Where it is. What joints are affected , on a scale of 0 to 10 whats your pain level. Take photos of swollen joints. Then call yout hospitals helpline and tell them how bad you are.

My hospital will normally arrange a quick appointment, often give me steroids and when they though I was at that stage started my biologics.

And back to basics. Resting in bed if needed, hot / cold packs, painkillers .

I hope you feel much better very soon, in the same boat today! We can suffer together lol( then improve together!!).

[allanah in reply to allanah]

Ps they will also check your blood inflammation.. So strike whilst the irons hot !

[sallygrain in reply to allanah]

Thankyou. I will do that. My bloods just came back from a week ago are feable crp and er? normal. And have generally indicated low/ minimal activity even when i have been suffering. Frustrating as they seem to be AN INTEGRAL part of DAS

[allanah in reply to sallygrain]

Yes that's the annoying thing timing the blood test so they catch it. Still worth to ging them otherwise they think you are going along ticket boo..But your not x

[Lesley_1]

I feel your pain. I’m experiencing a huge flare myself. Spent Friday to Monday resting in bed. Felt like my legs and hands, wrists and elbows were on fire and like I had a fever.

I started on short course of prednisolone to make it back off again. I hate doing it but can’t live in my bed.

I bought myself a book pillow to rest my book on so I don’t have to hold it.

[Lesley_1 in reply to Lesley_1]

Luckily I had my blood tested before the worst of the flare hit me on the head so I guess that was good. Saw the gp this morning started on prednisolone, upped breakthrough pain meds and increased lyrica